fibromyalgia

Hello everyone!!

When Mardy first set up this area for me to write and I saw that she called me an 'activist', it took me back a bit.  I have visions of Black Panthers, groups sitting and holding hands, others hugging trees when I hear that word, and really, could that be me?   On further thought I realized that yes, I am an activist.  First and foremost for myself and then for the fibromyalgia community.  read more »

Mardy's note:  I copied this in the summer of 2010 from it's original place in the Fibro Awareness forum here at Lumigrate so that it is ALSO located here to be caught here as well.  In two months it had gotten almost 2,000 reads, and by year's end it had just over 3,000 in that original location, as well as the hundreds it had here.  That's really VERY rewarding and inspiring, and tells us what you like to have on Lumigrate.com!  And from there, we develop in the present and that turns into the future, which you are then a part of forming.  read more »

As part of the Lumigrate collaborative effort for raising awareness this year about FMS/CFS, On Wednesday, April 14th, 2010 a very special conversation on Addressing Fibromyalgia's Pain, Insomnia, Fog 'n' Fatigue with Integrative Approaches took place and was recorded and hosted by Deirdre Rawlings, ND, PhD at her website about foods for fibromyalgia.  (The link is provided here as well as the bottom -- we encourage people to take a minute to review this introductory discussion in order to get people in the fibromyalgia awareness community 'on  read more »

I was most pleased to inadvertently have a change in my schedule and be able to attend a medical education conference today that was of great interest to me: concussion.  In the past when it was my privilege to work in the same building and team related to mutual patients with Chris Young, PhD, I learned a tremendous amount about the brain and the long-term effects of head injuries.  I've been on other teams in hospital systems with neuropsychology as well, and have a tremendous appreciation for the dimension they bring to looking at cases.   read more »

So we all know there is much drama occurring around the XMRV discoveries or lack thereof.   It's hard to know what to think anymore.

For me, I never had much hope that the XMRV discovery was going to help those of us with fibro.  Perhaps there is a connection with CFS, but that doesn't automatically mean it will mean anything for fibro.    I also wondered from the get go if this was going to be a chicken/egg situation.   Does XMRV cause CFS or does having CFS leave one open to a retrovirus such as XMRV?   read more »

Well it's about time I got myself on here, huh?   So I thought I'd start with an introduction and tell you why I'm here.  read more »

I was so pleased to have my copy of Deirdre Rawlings' outstanding book Food that Helps Win the Battle Against Fibromyalgia with me recently when my sister said "I need to get out my cookbooks and get some inspiration."   This was brought on because our dad, who is in what I call 'the home stretch of life' was trying to figure out what he might eat differently to get better results for what is 'paining him' and making his joints malfunction.  I believe he had undiagnosed / misdiagnosed  fibromyalgia and chronic fatigue issues basically his who  read more »

 Hi All,

The last few weeks I have been extremely out of it. I am here physically, but mentally, not at all. You see I have experienced one of the worst things possible in life... the loss of a dear friend. 

His name was Brian. He just turned 21 years old in April and returned from Iraq a few months ago. He was in the army and survived war! However, when he came home, another soldier took his life over something stupid.  read more »