CFS

I've invited Carla Gillespie, who is the creator of this effort on facebook to start a Topic about this. 

I had the pleasure of getting to know her pretty well last year after and through the exciting facebook interactions going on last FMS Awareness Day, and very much look forward to this year!  (We're both big fans of Jon Kabat-Zinn and mindful meditation, but she's REALLY into it -- I'd LOVE to see her writing/ contributing in the Forums about it, actually).   read more »

Having suffered with IC, CFS, IBS, Fibromyalgia and Chronic Pain for over a decade, and having to take increasing amounts of narcotic pain medications, antispasmotics and other medications that interefere with normal bowel functioning, a very simple, albeit messy, recipe for an enema was introduced to me during a hospital stay this last year. As you may know, a bowel full of feces can likely increase pain and cause other symptoms such as urinary retention.  read more »

Hello Everyone,  read more »

UPDATE/Note from me/Mardy on September 2, 2014: 

I've removed all the information from this topic from ALMOST five years ago, because the group that had been 'gung ho' when I went to an early-on meeting fell apart and apparently never resurfaced. This is the ending line from what I'd written though: 

"Remember, telling others what you know is the best way for word to travel!  Be part of the solution!"  read more »

In November I received a call from one of my best friends in Grand Junction, who said 'I saw something in the paper you might want to know about".  Due to the holidays and busyiness, I called last week -- just in time to get in on the do-over meeting, as people were so scattered with the holidays the guys starting this group here realized they needed to wait until this new year to get started.  It was interesting to me that it was two GUYS who were doing a group -- it's rare!  I called the first name that was listed in the ad in the local paper, which was Alan.  He'  read more »

I wanted to set up topic areas for people in the SLEEP Forum at Lumigrate.com which are similar to what has worked with Fibromyalia Forum: Provide the base structure and then let others start topics too.  My intention with Lumigrate is to provide a progressive, valid, streamlined, fun health and well-being website experience (and related facebook and Twitter) that maintains what Aretha Franklin would say 'R-E-S-P-E-C-T'.  Please keep these things in mind and diplomatically guide others who might be used t  read more »

This is one of the more read topics as I'm editing today, and I'm going to bump this up in the forum as well.  The Forums area originally was used well to get people who wanted to comment doing so -- there weren't many websites then which had the capability to do that for people with 'fibromyalgia' as a focus as Lumigrate did in our formative times.  You'll see below a wonderful example of how it worked.   read more »

As you might have seen throughout my story and blog posts, I had a pretty good / bad case of CFS in my late 20's, which was 1989.  So this is a topic near and dear to my heart -- in the phases since when FMS was getting the best of me, it is the fatigue as much as anything that was so excruciating.  The causes are generally coming to be recognized and there are many schools of thought and much to learn from each other.  So please SHARE, and we can develop this area with topics as the Fibromyalgia Forum is, or similarly ....  Thanks!