Sleep Dysfunction

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Emma-Kate
Title: LumiGRATE Poster - Itinerant
Joined: Dec 17 2009
Posts: 8
User offline. Last seen 14 years 12 weeks ago.

Hello again,

I have just completed a blog  entry on Sleep Dysfunction.  Although it is with regards to ME/CFS, the information may be useful to individuals hwo have sleep dysfunctions associated with Fibromyalgia.

Feel free to add yourself to the blog list, to pass it on to others, or even just copy the information within it and use to educate yourself and those around you, including, of course, your medical team.

www.cfsandxmrv.blogspot.com

ek

Cherie's picture
Cherie
Title: LumiGRATE Poster - Frequently
Joined: Aug 28 2009
Posts: 22
User offline. Last seen 12 years 16 weeks ago.
Re: Sleep Dysfunction

 

Griff Niblack

 

 

How true this is~ esp for me~ my mind seems to work so wonderfully well when im up all night long! so how come when i am switched around and up on daylight hours ~ why does my mind not whiz and whirl along during the day, as it does during my insomnia nights??

hmmm~

this might be half of my problem as to why I love ~ just LOVE ~ being up all night long!!!

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 18 weeks 5 days ago.
Could be a Lionel Richie song!!!!

VERY nice little post, Cherie -- What a neat quote, and I've never seen it before!

I was just thinking last night when I was just too tired to think that I sure kinda miss the way I used to be where I could stay up late ... sometimes all night working.  It makes me think, which comes first, the chicken or the egg?  

There are some who have seen a connection between the way the brain percolates with people with fibromyalgia and bipolar II, and I don't have any proof of that anywhere, it's just something I heard kind of through the grape vine but from a reliable source in medical research.  Whether it's true or not, it's made me think differently about how people might come to have fibromyalgia.  For instance, I never slept well as a kid even, so maybe my predisposition for my mind having all these creative ideas kept me awake!  It also made me be lying there in my parents bedroom after I'd gone in and hung with my mom before she got out of bed and was looking at the dust on the lower level of the bureau and thinking how I wanted to dust that for her.  Maybe THAT is what started getting me in trouble!  I'd exhaust myself shoveling snow to do it the way my dad expected and taught me, throwing it as far as possible so that the next storm you weren't having to shovel over a pile.  (We literally ran out of places to put the snow in those very hard Colorado Mountain winters that started mid 50s and went to mid 80s).  I then was expected to help cook dinner, which the way my mother did it was very slow and monotonous and took until 9 or 10 pm sometimes to be done cleaning up.  I'd have homework to do after and then in high school I got up at 5 and 6 am and I remember hating my cat because she'd stay in the warm bed and I'd have to go out and feed horses and get in a cold car or cold bus stop. 

If adrenal fatigue and the hypothalamus, pituitary, adrenal axis is what gets off and causes the cascade of events with fibromyalgia, which pretty much is an established fact, then what caused each of us to get that system going haywire?  Well, for me, I'm really liking the information I get from the books advertised here in the Forum areas by the smart lady authors.  Deirdre Rawlings and her Food / Fibro book (and website, facebook , etc.) AND Angela Dunston Barakat's book about Autism to Zzzzz due to gluten, casein, colorings and etc is really VERY good and streamlilned.  Both are WONDERFUL resources.  

As for me, I'm LOVING sleeping when I do -- and for the first time in my whole adult life it is without Rx or OTC sleep aids or exhausting myself with hours of working out each day.  But I have to admit, I've had that thought about how I'm used to being able to get a WHOLE lot more done each day than I do now, since I'm in bed 33% of the time.  

You're backwards on your circadian rhythm.  NOT that I'm saying you're bipolar BUT that is one of the hallmarks of bipolar II.  WHAT IF people with FMS and BPII end up with some similar symptoms in their minds because there is something genetic they have in common and it has to do with food allergies?  Simply eating the paleolithic diet might turn it all around, and wouldn't THAT be cool?  Simple!  Then we could all sit around the campfire at night and tell stories before retiring for a good sleep together.  

In the mean time, I hope many commune at Lumigrate.com to share ideas and learn together. 

Just like you've kicked off a GRATE topic, Cherie.  So good to see you and those penguins!  ~~ Mardy

 

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Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

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