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Renovating and Fibromyalgia Education
Tue, 01/11/2011 - 4:55pm
Hello my dawlinks! No sooner do we unpack in our Florida townhouse, I have to pack again to go help another friend in need. I left my wonderful husband home this time, he should rest and be well from our long schlepp out of New York; I smooched him on the head and took my tuchus out the door to the waiting taxi to fly off to... to fly off to... Oy! Don't get old Liblings, you can't remember what you ate for breakfast let alone where you fly off to or who you helped! Far be for me to question G-d's plan but does it have to be made in such a way that I can't remember it?
So, no sooner do I get done there that another phone call comes and I'm off again, meshugedik (crazy), so instead of going home I'm off to some other person's house. This goes on for three weeks or so, enough to run me down and become a khoyle (a sick person), so home I finally go for my dawlink husband to take care but he has to shrayen (shout) at me first. I have to say it Bubelehs, he's not wrong; but what am I going to do, stop helping? It brings me nochas (joy) to help others. Which brings me to our friend Ellen. Such a sweet girl and good neighbor, you should only know.
While I was off fluttering about as Moisha says, Ellen was taking care of him. When I got back Ellen's townhouse was in a shambles. Oy, the dust, the holes, the peeled off paint, no appliances, no kitchen to speak of and no bathroom! What's a woman to do if you can't do laundry? So I said, "Ellen, dawlink, did you forget to pay something? Do you have a bookie and lost on the ponies? Are you doing drugs that I should know about?" And all she did was smile and say "we're being renovated. Actually, I'm being renovated too."
My dawlinks, Ellen's kitchen was completely torn out as was her 1/2 bath/laundry room. As for her personal renovation, no she's not having "work" done physically but her medications are changing again. It seems there's a nu (new) thinking in fibromyalgia. Time for the head spin and pea soup spit. Go ahead, I'll wait.... For you kinderleh, that's a reference to a Linda Blair movie called The Exorcist; very popular in the 1970's, you should see it if you like horror films. Personally, all I can think about is the mess the Mema (mother) has to clean up every time the child spews pea soup.
I went to see my doctor, good man this doctor and we were kibbitzing as always, his mother is fine in case you wanted to know, he just spoke with her in the morning; and he said fibromyalgia goes back many years but didn't come into it's own until recently. Wait! Let's do that again, see if you can follow me on this one. DIDN'T COME INTO IT'S OWN. So what, it went to college, got a degree, a job and now it's all grown up? A misstatement perhaps? A shande (shame) I should think. Here's the scoop, bubelehs:
Back in the day, say around 1904 it was once called Fibrositis by a Dr. Gowers (I found that by using Google thanks to Rubin, Ellen's son, such a mensch). Before that it was simply termed as Rheumatism or muscular rheumatism and wasn't until 1976 (the disco era that we will NOT talk about) that someone called it 'fibromyalgia' but just to confuse everyone someone named Smythe "laid the foundation for FMS in 1972 by describing widespread pain and tender points." Don't question me, I'm on a roll.
The first sleep study was in 1975. Then people sat on their hands until 1981 when the first controlled study with validation was done with known symptoms and tender points and was published! Who knew? Actually, we do now. And it was this study that gave the first proposed criteria. Wait, there's more! I feel like one of those informercials....
In 1984 the concept of FMS and other similar conditions are interconnected and introduced, and the first American College of Rheumatology criteria is published in 1990. The same decade, neurohormonal mechanisms with central sensitization were developed. Somewhere around 1986 however, Serotonergic/norepinephric drugs were found to be effective in some cases. Impressed liblings? Don't be, you'll find it at:
www.ncbi.nlm.nih.gov/pubmed/15361321
I just paraphrased. I never thought this stuff would be interesting but it is. Mardy said, "sniff it out, Yenta, you'll see." And the shikse (non Jewish girl) was right. Education is a good thing. And there it is my dawlinks, what about your education? What have you learned lately? Are you ready to tell your Yenta about the history of what ails you? It might make you smarter, it might make you smile, it might shock your doctor. One thing's for sure, It couldn't hurt!
Your
Yenta
__________________
Yenta Tellabenta is truly a 'creation' for outreach and education with Lumigrate.com through storytelling and reinforcement of key concepts related to body, mind, spirit. Written by a very talented and somewhat mysterious younger wise woman who found her way to Lumigrate the summer of 2009, we hope you enjoy having your own Yenta with us at Lumigrate! Yenta (meaning 'town gossip' or 'connector') has a dedicated Forum at Lumigrate at http://www.lumigrate.com/forums/health-issuesdis-eases/fibro... and can also be found on facebook.
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Yenta, I really appreciate your 'sniffing this out', as I believe it will help people understand the past, which then helps to understand the present, allowing us each to be the most effective in the future moments. This might be interesting to medical providers, so I encourage people to cut and paste and email it, or print and take it along and say 'this might be interesting to you, and it's a FUN read', because medical providers are typically pretty worn down from all the thinking and processing, I've found.
I'm glad you had a good kibbitz with your doctor, Yenta, and that his mother is doing well -- I recall you mentioned him in one of your first pieces maybe about a year ago or so! And I'm sorry you have to pack up and be off again, and I hope you -- like everyone -- takes good care to monitor and think about the long game when it comes to activities. Everyone is their own best guide related to that, I believe, once the person knows how to tap into that wise guide inside of themselves. At least you have a good neighbor and hopefully she'll make you some Peace Soup in her new kitchen someday very soon. Again, thank you for this informative and humorous (as always) piece, and in particular offering up a beneficial link to a reliable source. I look forward to what more you will be learning and writing about for us when you have the time! ~~ Mardy
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
Mardy dawlink,
This is just a start. Thank you for putting this idea in front of me bubeleh. I've found this very interesting. I gave a light, over-all, quick nip history that goes back to "my" time. And on a different subject, I'm so happy you like your peace blanket. I'm making a football blanket for a young man in college as part of a care package that Ellen is sending. I volunteered to help her. We've found that friendship has actually lessened pained levels (this is a fact) and working together on projects is enjoyable plus we get to kibbitz about all sorts of things.
Peace soup? Not a bad idea, libling! A new project? Something for me to create? What a surprise! It couldn't hurt!
Your
Yenta
Yenta Tellabenta is truly a 'creation' for outreach and education with Lumigrate.com through storytelling and reinforcement of key concepts related to body, mind, spirit. Written by a very talented and somewhat mysterious younger wise woman who found her way to Lumigrate the summer of 2009, we hope you enjoy having your own Yenta with us at Lumigrate! Yenta (meaning 'town gossip' or 'connector') has a dedicated Forum at Lumigrate at http://www.lumigrate.com/forums/health-issuesdis-eases/fibro... and can also be found on facebook.
I'm sure people will be looking forward to more pieces from you about fibromyalgia -- It can't hurt to have a Yenta's perspective on it, no?
Yes, I LOVE the peace fleece blanket and have some plans for it to get out more, like it did to Ouray to the Ice Falls on New Years Day, and influence others. It's kinda like taking a beautiful and interesting dog with you -- it's an 'ambassador' to open up conversations, for sure! Ouray, Colorado, is one of Colorado's gem's related to history, and naturally, your piece about the Peace Sign is what got us going about history near the end of 2010.
(To find the Forum where Yenta writes, from this page, scroll up to the top where you see the Lumigrate header and horizontal purple 'tab bar', and to the right of the Cart, you'll see words that are underlined (links) for Home, Forums, .... Yenta's is at the end. When you click on that link, you'll go to her Forum. Same principles for navigating around anywhere in the Forums here at Lumigrate.com.)
Little insider story: When Yenta first learned of Lumigrate she didn't realize there was a website, she was thinking the facebook pages was Lumigrate, as opposed to a full blown website with video and shopping cart, Forums, products, etc. But she's a fast learner and she rapidly started participating in the Forums and we're all so very lucky for that! A person who understands history, who isn't afraid to learn now and has the desire to learn is a powerful combination, especially when there are many who are searching to learn! THANKS AGAIN!
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
Mardy dawlink, not for nothing, as my Tante (Aunt) Celia would say, but since our dogs are being fed "people" food more and more and getting diseases like us, and medicines like ours, I'm just wondering ... perhaps, should I ask Ellen's veterinarian if animals also get FMS? or maybe RA? I'll tell you why; of course I'll tell you why...
It seems Ellen had to "take a run" as she calls it, to her vet's office because Lucy's hip wasn't feeling so gut (good) with this colder weather, she should only know from cold weather. So the doctor, we'll call him Paul, said he has a sample of something chewable, Lucy will like it. We pick up a bottle of Deramaxx and they give a brochure of different therapies they do for animals with arthritic hips. Oy vey! They get better treatment then I do! It's a day at a spa, I'm telling you!
I've been told many times by Ellen that people are buying food at the market to cook up themselves for their dogs. Some don't even cook it, they just give it as is! They think their doing them a toyve (favor) by returning them to their "roots" of wild dogs. This bares kibbitzing.
So nu? What do you think bubeleh? Our dogs develop a lot of the same ailments and illnesses we do, they take many of the same drugs we do now, is it possible they could develop FMS or perhaps RA? Should I find out? We do have strong connections with our animals, no? It couldn't hurt!
Your
Yenta
Yenta Tellabenta is truly a 'creation' for outreach and education with Lumigrate.com through storytelling and reinforcement of key concepts related to body, mind, spirit. Written by a very talented and somewhat mysterious younger wise woman who found her way to Lumigrate the summer of 2009, we hope you enjoy having your own Yenta with us at Lumigrate! Yenta (meaning 'town gossip' or 'connector') has a dedicated Forum at Lumigrate at http://www.lumigrate.com/forums/health-issuesdis-eases/fibro... and can also be found on facebook.
Well, this little Peace Fleece is loved wherever it goes so I thought we might just follow it around with a camera a bit and talk about where it goes and what it does to promote awareness about fibromyalgia (and Lumigrate, Yenta, all the FUN we have and valid, progressive information to refer people to!). Here's the link -- come with us on the journey!
www.lumigrate.com/forum/lumigrates-2011-peace-fleece-yenta
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!