Pilates and Fibromyalgia

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Alice's picture
Alice
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Aug 23 2009
Posts: 51
User offline. Last seen 11 years 8 weeks ago.

Pilates and Fibromyalgia

I have been intrigued with an Aeropilates® exercise machine for some time now. Several times I watched the demonstration on television, you know, on one of the home shopping networks. I wanted it, but the first time I saw it I could hardly move, waiting on spine surgery. That was not the time to buy exercise equipment. My biggest exercise at that time was trying to make it up and down the stairs a couple of times a day.

Then after surgery but before I could do much, I saw it again. Still not the right time, but I watched the entire presentation. It seemed like the right fit for me.

I had read about Pilates and watched programs on TV about it. My understanding is that it is beneficial to lengthen and strengthen your muscles while providing better balance and muscle control. Who doesn't want to be long and lean? With fibroblast, my muscles are knotty, stringy, and frequently spasm and draw up. Sometimes my balance is bad and I loose control of my muscles.

On this machine I would be able to lie on my back and exercise. That sounded perfect for me as that would protect my spine and not put undue pressure on my joints.

Well, a few weeks ago while I was surfing the channels I noticed it being presented again. This time it was the “Today's Special Value”.  The pricing was better than I had seen before, they offered a four month pay schedule and the shipping charges were waived. An added incentive was that if I did not like it for any reason I could send it back within 30 days. They had me, hook, line and sinker. I got online and ordered it.

When it arrived I was surprised that it was so heavy. You are supposed to be able to fold it up and roll it away. Easier said than done. Assembly was not too difficult, but it took some time. 

Finally, I had it, in front of the television and I was ready to go. I knew I had to start slow and build my muscles. It felt so good to stretch out my muscles doing some of the first exercises on the DVD that came with the machine. It was especially good for my calf muscles.

When I watched the demonstration on TV I thought the rebounder for cardio would be a good feature. It kinda looked like fun. I never dreamed it would be so hard to do! When I first tried it I had very little success.

I am proceeding slowly and I have to say I have had sore muscles each time I have added new exercises, but that quickly goes away. I can work all of my muscles at my own pace. I am gaining more ability to do additional exercises and I can even use the rebounder now. Sometimes when my pain is getting worse I do a few good stretching exercises and some rhythmic exercises on this pilates device. It helps reduce the pain. The machine keeps drawing me to it, I love the way my muscles feel after doing a few exercises. It feels so good. I am gaining strength and stamina for other areas of my life. I am able to do more and feel better. Pilates may just be the perfect exercise for people with fibromyalgia.

Here's a link from About.com's chronic fatigue area about exercise with Pilates

http://chronicfatigue.about.com/od/exercisenutrition/a/pilates.htm

Here's a link on YouTube about the brand of device I have written about here, posted by QVC if you're interested: www.youtube.com/watch

 

__________________

Alice Franklin was raised on a sandy beach in Point Clear, AL and lived along the Gulf Coast from Texas to Alabama in her youth, graduating from Fairhope High School on Mobile Bay. Prior to becoming disabled due to severe spine problems, she worked her way into management and purchasing positions in industrial manufacturing and art industries. She worked her way into Lumigrate unknowingly by impressively writing at Lent 2010 about utilizing her religious and spiritual beliefs with chronic pain/disease management (she has had fibromyalgia and chronic myofascial pain for decades); it turns out she holds the priesthood office of elder in her church and became active again in this office in May 2010 and has been pastor or copastor in previous churches. We are so very proud to have her words and thoughts gracing our 'pages' of this website and look forward to what the future holds for her.

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 16 weeks 6 days ago.
Re: Pliates and Fibromyalgia

Alice, THANK YOU for sharing this!  I know it inspired ME today!  I am going to take a little break after I post my response and get out my yoga mat and dumbells (very light weights, 1-3#) and do some of what I do at home (though not frequently enough).  

I've been following about Pilates with interest since I first learned of it when I moved to Denver when I graduated as an OT.  My best gal pal was doing it at a studio with a trainer and it was quite expensive.  At that time (1996/7) I don't think any of these home 'gadgets' had been invented/marketed yet.  She was an international flight attendant with a lot of years with her airline and was quite an inspiration to me at that time because she had gone back to work as a flight attendant after having her right/dominant arm/hand amputated below the elbow.  I'd read about her gushing appreciation for her OT in the article in the newspaper about the phenomenon of her going back to work as a flight attendant with her new prosthetics and all. I read that one December day when I was about to write out Christmas cards and sent one to her through the article's reporter, who sent it along to her.  It inspired her as she got it when she returned from her first trip after returning to work and thought she wasn't going to be able to do it.  I'd included in my card about my recovering from chronic fatigue syndrome and my husband's struggles with hydrocephalus and surgeries/infections and our accomplishments in spite of all that in life and work.  Anyway, I'd have to try to keep up with her when we went bike riding or snowshoing and was quite impressed with pilates!

Knowing a bit about the history today when I read this wonderful piece you've shared with us about Pilates, I thought I'd try to find a good resource online to refer people to for more history about it.  I chose the pilates.com website only because they have the domain for 'pilates' and after getting a domain for a word I know what that means (yes, we had to make up a nonsense word like Lumigrate!).  Here's a link, below, to that website and the entire info they have about the history of how Pilates was developed -- It's fascinating I think and I'm going to get you started here with some of the information then let you follow out on the link to the website this came from (pilates.com) if you want to read more ......

Joseph Pilates and the History of Pilates

What's all the fuss about? Pilates seems to have burst on the scene out of nowhere in the last 10 years. After decades as the workout of the elite, Pilates has entered the fitness mainstream. What’s the fascinating story behind how Pilates began, and why the recent “overnight success”? Here's a brief look at its history.

How Pilates Began

Joe went to England in 1912, where he worked as a self-defense instructor for detectives at Scotland Yard. At the outbreak of World War I, Joe was interned as an "enemy alien" with other German nationals. During his internment, Joe refined his ideas and trained other internees in his system of exercise. He rigged springs to hospital beds, enabling bedridden patients to exercise against resistance, an innovation that led to his later equipment designs. An influenza epidemic struck England in 1918, killing thousands of people, but not a single one of Joe's trainees died. This, he claimed, testified to the effectiveness of his system.

After his release, Joe returned to Germany. His exercise method gained favor in the dance community, primarily through Rudolf von Laban, who created the form of dance notation most widely used today. Hanya Holm adopted many of Joe's exercises for her modern dance curriculum, and they are still part of the "Holm Technique." When German officials asked Joe to teach his fitness system to the army, he decided to leave Germany for good.

The Pilates movement gains in popularity – from Europe to the U.S.

In 1926, Joe emigrated to the United States. During the voyage he met Clara, whom he later married. Joe and Clara opened a fitness studio in New York, sharing an address with the New York City Ballet.

By the early 1960s, Joe and Clara could count among their clients many New York dancers. George Balanchine studied "at Joe's," as he called it, and also invited Pilates to instruct his young ballerinas at the New York City Ballet.

"Pilates" was becoming popular outside of New York as well. As the New York Herald Tribune noted in 1964, "in dance classes around the United States, hundreds of young students limber up daily with an exercise they know as a pilates, without knowing that the word has a capital P, and a living, right-breathing namesake."

His students begin to teach

While Joe was still alive, only two of his students, Carola Trier and Bob Seed, are known to have opened their own studios. Trier, who had an extensive dance background, found her way to the United States by becoming a performing contortionist, after fleeing a Nazi holding camp in France. She found Joe Pilates in 1940, when a non-stage injury pre-empted her performing career. Joe Pilates assisted Trier in opening her own studio in the late 1950s. Joe and Clara remained close friends with Trier until their deaths.

Bob Seed was another story. A former hockey player turned "Pilates" enthusiast, Seed opened a studio across town from Joe and tried to take away some of Joe's clients by opening very early in the morning. According to John Steel, one day Joe visited Seed with a gun and warned Seed to get out of town. Seed went.

The second generation of Pilates teachers

When Joe passed away in 1967, he left no will and had designated no line of succession for the "Pilates" work to carry on. Nevertheless, his work would remain. Clara continued to operate what was known as the "Pilates" Studio on Eighth Avenue in New York, where Romana Kryzanowska became the director around 1970. Kryzanowska had studied with Joe and Clara in the early 1940s and then, after a 15-year hiatus spent in Peru, returned to renew her studies.

Several students of Joe and Clara went on to open their own studios. Ron Fletcher was a Martha Graham dancer who studied and consulted with Joe from the 1940s on, in connection with a chronic knee ailment. Fletcher opened his studio in Los Angeles in 1970 and attracted many Hollywood stars. Clara was particularly enamored with Ron and she gave her blessing to him to carry on the "Pilates" work and name. Like Carola Trier, Fletcher brought some innovations and advancements to the "Pilates" work. His evolving variations on "Pilates" were inspired both by his years as a Martha Graham dancer and by another mentor, Yeichi Imura.

www.pilates.com/BBAPP/V/about/origins-of-pilates.html

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

Aimee Shannon's picture
Aimee Shannon
Title: LumiGRATE Poster - Major
Joined: Jul 12 2010
Posts: 30
User offline. Last seen 11 years 33 weeks ago.
Re: Pilates and Fibromyalgia

Hello Alice!

Loved your information.  I have never seen the commercial about that particular machine, although I do catch alot of product commercials in the middle of the night while awake!   I have only known about Pilates done on a mat.   A link was recently shared about Pilates and it being a positive exercise, especially for those with medical conditions, and I shared my inability to get up off the floor easily.   Well, someone suggested doing it, at least initially, on the bed.

Lightbulb moment!!   

I do a lot of stretching before and after sleep and I walk on my treadmill several times a day, just about 10 minutes each time, to help with my Chronic Venous Insufficiency.   I go to the warm water pool a few times a week.   But it seems to me that I need to add in some Pilates and I hope I have a similar experience of it helping the fibro!

Take care and thank you!

 

 

__________________

~~Aimee
 
 
Aimee Shannon is a licensed social worker who has fibromyalgia along with a collection of other illnesses.   Aimee is passionate that those dealing with chronic illnesses need education and support to best manage their illnesses. Along with contributions of writing for Lumigrate in 2009-11, Aimee can be found leading a support group on Facebook, as well as in-person support groups in the Dayton, Ohio region. Please connect if you wish, at
 
http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee/94975642116

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 16 weeks 6 days ago.
HOW interesting! I think of Pilates as big, expensive equip ....

That's so interesting about how we can get a mental block about things, and take a while to realize 'bed' instead of floor. 

And that your 'put in point' about Pilates has to do with mats only, as that's really the way to get some of the benefits but I think the machines were there from the beginning.  I thought of it in the past as the machines are what you pay for with an expensive trainer 1:1 and the mats are a way of having more people with an instructor so costs less per class. 

Thanks for adding in, Aimee, it's good to hear how you go about your activitiy.  I learned from a seminar once that the hormone system gets 'worked' by exercise so it's better to do several short exercise sessions per day in terms of reguating blood sugar and inspiring other things that have to do with hormones.  Sounds like adding that bed work has really rounded out your routine to be pretty good!  Good for you!

~~ Mardy

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.

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