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Angel29112
Title: LumiGRATE Poster - Minimal
Joined: Jul 2 2009
Posts: 1
User offline. Last seen 14 years 45 weeks ago.

 Hi Mardy,

  So much to learn and you have been a big help.  Sometimes I wonder if all the Fibro stuff going on is part of a bigger picture.  I will keep you updated on what the MD says.  Thanks again!!

DrRollins
Title: LumiGRATE Poster - Itinerant
Joined: Sep 5 2009
Posts: 2
User offline. Last seen 14 years 36 weeks ago.
Re: learning

Angel,

FM is definitely "part of a bigger picture" in that there are so many different aspects that contribute to the symptoms - I've had patients get better with one single remedy many times, and even more often it takes many different treatments to achieve success.  Please share more of your history so I might provide helpful comments.

Best,

Dr Rollins

Alice's picture
Alice
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Aug 23 2009
Posts: 51
User offline. Last seen 11 years 10 weeks ago.
Re: learning

Dr. Rollins,

 

Are you really ready for this?

 

I am a 63 year old female, born and raised in the deep South. I have spent my life increasing my knowledge of and practice of heathly eating and lifestyles.  I exercised everyday until just the few years. I still do stretching exercises but because of back and fibromyalgia pain can not longer walk long distances or attend exercise classes.  I have always had an organic garden but haven't been able to maintain it this summer.  Despite my efforts to be healthy I have the following:

 

 

Hypothyroidism

Diabetes (newly diagnosed)

High cholesterol (newly diagnosed 212)

High Blood Pressure

Fibromyalgia

Chronic fatigue

Chronic Back Pain with cyadic nerve pain and sometimes with muscle spasms and muscle cramps

Neuropathy

Sleep Apnea

Insomnia 

Acid Reflux Disease

Hiatal Hernia

Mitral valve regurgitation

IBS

Interstitial cystitis

TMJ

Degenerative disc disease

Asthma

 

Surgeries:

Age 28:  Hysterectomy for endometriosis.   The endometriosis was all over my abdominal cavity, intestines, etc.  The doctor told my husband he did not know how I was still alive and did not know if I would survive.

He told me at my checkup after surgery that in his 30 years of surgery it was the worse he had ever seen.

 

Age 52 Laminectomy L4-L5

 

Age 56 Spinal Fusion L4-L5 with bone graft from hip, titanium cage, rods and screws

 

Age 59 Gall bladder removed and stones from bile duct removed

 

Age 59 Eye surgery to repair torn retina caused by a fall

 

Age 59 Kyphoplasty – to repair crushed vertebra L1 

Caused by the same fall (I do not have osteoporoses, my bone density is very good) 

 

Three heart catheterizations

 

Biopsy of blood vessel at temple to check for giant cell arteritis

 

 

Serious Medical Occurrences:

 

December 1998 – Heart Attack – no blockage – no blood clot. Attack occurred during spasms from severe back pain. They told me the blood vessels in my heart spasmed. My entire body had gone into spams from the intense pain.

A disc in my back had come out and fallen down with pieces lodging on nerves on both sides.

 

Kidney stones - three times.

 

Two miscarrages and one very difficult full term pregnancy with bed rest required most of the term.

 

2000 Intensive care - low blood oxygen level, fever, difficulty breathing.  They  determined it was a virus. A few days later I broke out in a rash that reminded me of the red measles I had as a child.

 

2002 Intensive care - difficulty breathing due to allergy to lexapro.

 

Childhood diseases:  chickenpox, red measles, german measles, mumps, whopping cough.

 

Allergies: Fish, shellfish, corn, penicillin, keflex, erythromycin, covera, lexapro, ibuprofen, feldene, aceon.

Now, is there a connection between ALL of that or is it conincidental? 

I know genetics played a role in a lot of this, from my father, my mother is 84 and very healthy. 

There are probably some things I have forgotten because it did not occur to me to keep medial records when I was younger.

 

Thanks.

 

Alice

__________________

Alice Franklin was raised on a sandy beach in Point Clear, AL and lived along the Gulf Coast from Texas to Alabama in her youth, graduating from Fairhope High School on Mobile Bay. Prior to becoming disabled due to severe spine problems, she worked her way into management and purchasing positions in industrial manufacturing and art industries. She worked her way into Lumigrate unknowingly by impressively writing at Lent 2010 about utilizing her religious and spiritual beliefs with chronic pain/disease management (she has had fibromyalgia and chronic myofascial pain for decades); it turns out she holds the priesthood office of elder in her church and became active again in this office in May 2010 and has been pastor or copastor in previous churches. We are so very proud to have her words and thoughts gracing our 'pages' of this website and look forward to what the future holds for her.

Alice's picture
Alice
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Aug 23 2009
Posts: 51
User offline. Last seen 11 years 10 weeks ago.
Re: learning

Add osteoarthritis to the list.  I need both knees replaced but I am putting that off as long as possible. 

I get injections in my knees every three to four months to keep them "lubricated".

Alice

__________________

Alice Franklin was raised on a sandy beach in Point Clear, AL and lived along the Gulf Coast from Texas to Alabama in her youth, graduating from Fairhope High School on Mobile Bay. Prior to becoming disabled due to severe spine problems, she worked her way into management and purchasing positions in industrial manufacturing and art industries. She worked her way into Lumigrate unknowingly by impressively writing at Lent 2010 about utilizing her religious and spiritual beliefs with chronic pain/disease management (she has had fibromyalgia and chronic myofascial pain for decades); it turns out she holds the priesthood office of elder in her church and became active again in this office in May 2010 and has been pastor or copastor in previous churches. We are so very proud to have her words and thoughts gracing our 'pages' of this website and look forward to what the future holds for her.

Alice's picture
Alice
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Aug 23 2009
Posts: 51
User offline. Last seen 11 years 10 weeks ago.
Re: learning

Wow, you can tell I am in a fibro fog - add migraines since my teenage years to that.

__________________

Alice Franklin was raised on a sandy beach in Point Clear, AL and lived along the Gulf Coast from Texas to Alabama in her youth, graduating from Fairhope High School on Mobile Bay. Prior to becoming disabled due to severe spine problems, she worked her way into management and purchasing positions in industrial manufacturing and art industries. She worked her way into Lumigrate unknowingly by impressively writing at Lent 2010 about utilizing her religious and spiritual beliefs with chronic pain/disease management (she has had fibromyalgia and chronic myofascial pain for decades); it turns out she holds the priesthood office of elder in her church and became active again in this office in May 2010 and has been pastor or copastor in previous churches. We are so very proud to have her words and thoughts gracing our 'pages' of this website and look forward to what the future holds for her.

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 18 weeks 5 days ago.
Re: learning

I was just looking at Alice's ''are you ready for this" and thinking 'what a great historian!  And so to have the last two entries she added to update it 1) made me chuckle and 2) reminded me to keep working on suggesting to people they make a notebook or file and have their medical history all done up so that all you have to do with a new provider is to pull out a printed copy (or someday or today, get it to them electronically).  THIS portion right here Alice was able to communicate to Dr. Rollins in I'd guess 2 minutes of his time to read at the most -- he probably is a fast reader so maybe one minute and would take HOW long to verbalize it?  Again, make it EASIER on your providers as much as you can! 

I'll let him know this response is here; I know this is a busy week and time of week for him with it being a holiday just behind us.  THANKS for the use of this area!  

Mardy

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.

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