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Fibromyalgia Awareness Day 2009
Tue, 05/12/2009 - 1:50pm
As Lumigrate's Creative Director, it has been a pleasure talking to and learning from several of you out there who have Fibromyalgia. Looking back on when I first came to Lumigrate, I'm amazed at how much I've learned. Like so many of you, I spent years going to my doctor with symptoms and was never properly diagnosed (with Hypothyroid). So many times we don't take control of our medical issues and we just trust that our doctors know what's best. And how many people out there are like me, and thought, "I'm just going to give up. This is what happens with aging and there's nothing I can do about it." I commend all of you who haven't given up and who take control by visiting sites like Lumigrate to get better educated, and to share your stories providing hope and inspiration to others. I invite all of you to share your stories in the Forums area of our website and please feel free to start comments in any other forum that would interest you or where you have information to share. Because so many of us have more than one condition, for example Fibromyalgia AND Hypothyroidism AND CFS, we have several different topics in our Forums section so you can share your stories and ideas on several issues, ALL at the same website. Thanks so much for your comments, and please continue to share! :)
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e-mailThis forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.
Hey everyone,
Since today is Fibromyalgia Awareness Day we encourage everyone to check out the below link to the National Fibromyalgia Association's (NFA) web page. There is also a link to a fun Fibro quiz that Dr. Teitelbaum contributed for Fibromyalgia Awareness Day.
NFA
http://www.fmaware.org/site/PageServer?pagename=fibromyalgia
Dr. Teitelbaum's Quiz
http://www.healthnewsdigest.com/news/Commentary_510/Chronic_Fatigue_Syndrome_Awareness_Day.shtml
Hope these are helpful!
-Alex
I had some good discussions on facebook with people about the clip we posted that is from Dr. Lepsito's 'Food Allergies and Sensitivities'. (We've added it to our Forum section on Fibromyalgia also) He recognizes that some people with FMS have food allergies and then goes on to say that there typically is a stressful event related to the onset. Someone I was talking with initially thought that this clip was reinforcing the concept that 'it is all in your head.' These are two very different things if you think about it -- Dr. Lepisto's comment is actually able to validate for us with FMS that there IS a brain/body connection! If you download his free video 'Chronic Illness: Full Barrel Syndrome' you will see that stress is one thing that contributes to chronic illness (whether it be FMS or another). The great part about Full Barrel Syndrome is it opens the door for us to look at what we can do to get our bodies' barrels unfull and get back to being chronically well. So if you like the clip, please let people know how to find it here by providing a link to where you are right now! Lumigrate has much in development related to chronic pain and fibromyalgia so we really look forward to people knowing about us.
Mardy Ross, OTR Founder, Lumigrate "Lighting the Path to Health and Well-Being" Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate facebook: My personal page: Mardy Ross Fan Pages: Lumigrate, Lumigrate: Fibromyalgia, Lumigrate: Fibromyalgia Health Education and Counseling (Lumigrate Webucation is a 'personal page' replaced by fan pages but used for 'fun' still).
I thought it was great -- it really showed what momentum there can be when a lot of people are applying themselves at the same time. Like rowing a boat.... I was every so honored to have a former patient who moved away when our live and successful Fibromyalgia Forum was going on write something on facebook that was so complimentary (and make me miss working with patients!). I had amazing conversations with really neat people that are circulating out there on facebook, and was very pleased to make some good networking connections with pretty important people in the fibromyalgia world. It reminds me that if I worked this hard every day I might be getting farther faster!
I think it is ironic that we were joking about having 'repetitive NONmotion injury' today from so much on the computer and it just serves to remind me that balance is the key.... and that a year from now I hope I'm better at both and have continued to have great conversations and networking and feel that the FMS world is going to get a whole lot better all the time... (and then think of what we FMSers could do to help the OTHER problems of the world!). -- Mardy
Mardy Ross, OTR Founder, Lumigrate "Lighting the Path to Health and Well-Being" Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate facebook: My personal page: Mardy Ross Fan Pages: Lumigrate, Lumigrate: Fibromyalgia, Lumigrate: Fibromyalgia Health Education and Counseling (Lumigrate Webucation is a 'personal page' replaced by fan pages but used for 'fun' still).