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Myalgia.com; FIF/Fibro Info Foundation; nonprofit at Oregon Health Science University (OHSU).
Sat, 10/08/2011 - 3:08pm
While searching on something related to a neuroscience website Robin Thomas had suggested I look at, I found another website along the way and I really liked the information they have posted and the way they've gone about things; they don't take any money aside from donations and post a statement that it keeps their content neutralized, which is a factor to be cautious of. I wanted to post the link here for others to follow along to, since it's a bit off the beaten track but looks VERY good. It appears to me that perhaps there was more effort put into it in years past but it also looks like it's being updated a bit to be 'current'. ~~ Mardy
Here's the scoop from their 'about us' ... (In hopes it will speak YES, spend some time following the link/above)
About the Fibromyalgia Information Foundation Welcome to the website of the Fibromyalgia Information Foundation (FIF). This Foundation was started in 1995 by Drs. Rob Bennett and Sharon Clark and their colleagues at Oregon Health & Science University (OHSU), under the name of the Oregon Fibromyalgia Foundation. The name was changed in 2007, to reflect the wider appeal of our activities. Mission Statement The Fibromyalgia Information Foundation (FIF) is a not-for-profit foundation, registered in the State of Oregon, whose directors are University Researchers engaged in the day to day management of fibromyalgia patients or fibromyalgia research. We are actively involved in research projects to further understand the cause of fibromyalgia symptoms and develop effective treatments. The major aim of FIF is to increase the public's understanding of fibromyalgia, by providing information that is based on scientifically validated research studies. We also recruit and train the next generation of fibromyalgia researchers. To these ends, we provide educational and self-help tools via relevant postings, internet links, books, articles, video media, conferences, and our speakers bureau. In order to maintain absence of bias commercial endorsements and/or advertisements are not accepted on our website. The Fibromyalgia Information Foundation is an all volunteer organization with no full time staff, and cannot answer questions about specific treatments, diagnoses, or symptoms. We hope you find the information on our website helpful in your quest to improve your knowledge about fibromyalgia. Oregon Fibromyalgia Foundation
Current Officers of the Foundation
President:
Kim Dupree Jones Ph.D, FNP
Secretary:
Gay Hanson
Treasurer:
Sharon Clark Ph.D, FNP
Medical advisor:
Rob Bennett MD, FRCP, FACP, MACR
Exercise advisor:
Janice Hoffman BA
Public relations:
Rae Gleason
Webmaster:
Rob Bennett
PO Box 19016
Portland, OR 97280
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Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
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