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Myalgia.com; FIF/Fibro Info Foundation; nonprofit at Oregon Health Science University (OHSU).
Sat, 10/08/2011 - 3:08pm
While searching on something related to a neuroscience website Robin Thomas had suggested I look at, I found another website along the way and I really liked the information they have posted and the way they've gone about things; they don't take any money aside from donations and post a statement that it keeps their content neutralized, which is a factor to be cautious of. I wanted to post the link here for others to follow along to, since it's a bit off the beaten track but looks VERY good. It appears to me that perhaps there was more effort put into it in years past but it also looks like it's being updated a bit to be 'current'. ~~ Mardy
Here's the scoop from their 'about us' ... (In hopes it will speak YES, spend some time following the link/above)
About the Fibromyalgia Information Foundation Welcome to the website of the Fibromyalgia Information Foundation (FIF). This Foundation was started in 1995 by Drs. Rob Bennett and Sharon Clark and their colleagues at Oregon Health & Science University (OHSU), under the name of the Oregon Fibromyalgia Foundation. The name was changed in 2007, to reflect the wider appeal of our activities. Mission Statement The Fibromyalgia Information Foundation (FIF) is a not-for-profit foundation, registered in the State of Oregon, whose directors are University Researchers engaged in the day to day management of fibromyalgia patients or fibromyalgia research. We are actively involved in research projects to further understand the cause of fibromyalgia symptoms and develop effective treatments. The major aim of FIF is to increase the public's understanding of fibromyalgia, by providing information that is based on scientifically validated research studies. We also recruit and train the next generation of fibromyalgia researchers. To these ends, we provide educational and self-help tools via relevant postings, internet links, books, articles, video media, conferences, and our speakers bureau. In order to maintain absence of bias commercial endorsements and/or advertisements are not accepted on our website. The Fibromyalgia Information Foundation is an all volunteer organization with no full time staff, and cannot answer questions about specific treatments, diagnoses, or symptoms. We hope you find the information on our website helpful in your quest to improve your knowledge about fibromyalgia. Oregon Fibromyalgia Foundation
Current Officers of the Foundation
President:
Kim Dupree Jones Ph.D, FNP
Secretary:
Gay Hanson
Treasurer:
Sharon Clark Ph.D, FNP
Medical advisor:
Rob Bennett MD, FRCP, FACP, MACR
Exercise advisor:
Janice Hoffman BA
Public relations:
Rae Gleason
Webmaster:
Rob Bennett
PO Box 19016
Portland, OR 97280
__________________
Mardy Ross, OTR Founder, Lumigrate "Lighting the Path to Health and Well-Being" Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate facebook: My personal page: Mardy Ross Fan Pages: Lumigrate, Lumigrate: Fibromyalgia, Lumigrate: Fibromyalgia Health Education and Counseling (Lumigrate Webucation is a 'personal page' replaced by fan pages but used for 'fun' still).
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