Headaches with Fibromyalgia: How Common and What Causes Them?

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Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 17 weeks 4 days ago.

From Fibromyalgia Network, on Facebook

How common are headaches in fibromyalgia? Recurrent migraine or tension-type headaches are seen in about 70% of fibromyalgia patients and can pose a major problem in coping for this group. For some people, aggressive treatment of the migraines also provides tremendous relief of the overall pain of fibromyalgia. Myofascial trigger points, or those knots in your neck and shoulder muscles, are the primary cause of your headaches and they can be treated.

 

This is a very simple little topic that I thought I'd copy and paste and post here, suggesting you follow the link to Fibromyalgia Network's Facebook page and out to their website and learn more! They are, after all, one of the FEW nonprofits I have selected so far to link out to and support related to their congruence of philosophy related to information as well as not taking advertising money as that ends up leading to pressure about what is provided for education.
 
AND I ALSO WANT TO SET UP THE LUMIGRATE PROVIDERS TO ANSWER THE QUESTION: TREAT THE MYOFASCIA TRIGGER POINTS HOW?
 

Live and Learn. Learn and Live Better! ~~ Mardy

PS -- in my years of experience getting various types of treatments for symptoms of fibromyaliga, as well as working to uncover the underlying causes I have it, and remediating what I can of the causes in my particular case (known as functional medicine), I had great relief from taking a muscle relaxant at night, tizanadine.  It affects/lowers the substance P in the cerebrospinal fluid and for that reason was a preferred medication and was clearly getting at the underlying causes -- in this case the substance P, as well as the short-term muscle tightness.

But I realized about a year ago, when only taking that medication some nights and not others, that I was half waking up with my neck extending backwards, and in the morning waking up with a VERY sore neck: Jim Kennedy, DDS (of the holistic dentist variety) was on my schedule shortly after that and I discussed it with him. "That's sleep apnea, it sounds to me."  After having a CT scan of my head and neck, it was found there is some sort of narrowing of the throat/neck which likely is contributing/causing, so muscle relaxants, sleep medications and things that affect the muscles would be making that worse!  Wow. New paradigm of thought about treatment! 

So I pursued doing a cursory, self-administered 'sleep study' using a wrist oxymeter which recorded the data over a couple of nights, and darn if I wasn't going down to 80% for up to two minutes at a time, and was not at or above 88% at all when asleep. (And that was without taking any medication besides my hormone supplementation, as soon as I realized things were not 'right' after nights I was taking it, I stopped taking it entirely, at night; I will use smaller doses in the daytime when I am able and if I need, which is typically not the case, but sometimes longer than expected or desired sitting or standing can cause my muscles to respond with tightness and pain.) 

I wanted to bring this up for all readers, since many who have fibromyalgia have sought medical advise using insurance and often have treatments that are exclusively allopathic and insurance-based. Naturally, there is lots of information out there about those strategies, and we include it at Lumigrate in an 'integrative fashion', as medications are part of the picture of treating fibromyaliga, but at Lumigrate we use the YOU Model and collaborative care, integrating different types of providers, and overall having a functional medicine "discover what this condition is caused by and remedy those things" approach.   

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

Frank Gresham CMTPT's picture
Frank Gresham CMTPT
Title: LumiGRATE Poster - Frequently
Joined: Apr 3 2011
Posts: 12
User offline. Last seen 10 years 35 weeks ago.
Standing, sitting, lying positioning as well; my YouTube and Web

So true about headaches for fibromyalgia patients that I see.

Usually, a heel lift for the shoe is needed as well (levels out your hips when standing). Also, an ischial lift to sit on ( levels out your hips when sitting, the ischial tuberosities are a.k.a. your 'sitzbones').  

Then correcting your sleep postures (head and neck position being level and not too far forward) will start my patient to eliminate the tension in the two main headaches muscles, which are the trapezius and the SCM, or sternocleidomastoid.

For answers to your questions about the sleep postures....go to my Youtube channel, "paininvirginia" (or access it through my website, the link's in my signature, below) where I show you "why" it's important to sleep and sit correctly. You CAN help yourself 

__________________

Please follow along to my website at http://www.thechronicpaincenter.com/Home.html. You can connect with me on Facebook and Twitter from there, and also view my palate of videos on YouTube. Or the link is http://www.youtube.com/user/paininvirginia (PainInVirginia, but I consult via Skype and phone/photos as well).

This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.

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