Vitamin D and Chronic Pain/Illness

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Aimee Shannon LSW's picture
Aimee Shannon LSW
Title: LumiGRATE Poster - Major
Joined: Sep 9 2009
Posts: 40
User offline. Last seen 12 years 31 weeks ago.

Hi Everyone,

I wanted to make a quick post regarding Vitamin D.   As we've learned from the information here, Vitamin D can help us avoid getting sick this winter or at least make any illness less.

Well, Vitamin D also has some link to fibromyalgia, in my opinion.   I run two support groups and asked ALL my folks to get their vitamin D tested.   It's a simple blood test.   ALL of us came out with very low vitamin D levels!    I'm also a member of several online support groups and a large number of those folks have also gotten tested and also have very low levels.

Now, some of these folks living in sunny Phoenix, some are even on beaches in Florida!   A couple are sun worshippers, admitting to being outside day in and out.    So, somehow, despite plenty of rays from the sun, their D was still low.    Several of us also take good multivitamins, I know mine says I'm getting the recommended daily allowance of D.

So now, I am taking in 2500 IU's of liquid D3 daily in addition to my multivitamin.    Some of the other people I know were put on mega doses, 50,000 IU's weekly for 12 weeks and then retested by their doctors.    We all seem to have trouble getting our D back into the normal range and then keeping it there.

I don't know if it's the fibro affecting the D, the D affecting the fibro or quite what, but I do know that with taking the additional supplement, I feel a bit better.    My pain has been out of control for some time, and I can say that it's a bit better of late.   Adding the D liquid has been my only change.  

So, I highly recommend asking your doctor for a blood test to check your levels of vitamin D.   Once you know that number, it's easy to see if you need the mega doses, just a good additional supplement, or if you are getting plenty of D in other ways!  

Take care everyone!

Aimee

__________________

~~Aimee
Aimee Shannon is a licensed social worker who has fibromyalgia along with a collection of other illnesses.   Aimee is passionate that those dealing with chronic illnesses need education and support to best manage their illnesses.    Along with writing for Lumigrate, Aimee can be found leading a support group on Facebook, as well as two in person support groups in the Dayton Ohio region.   
 
http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee/94975642116

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 16 weeks 3 days ago.
Info about chronic pain and vitamin D/Mayo clinic link

What a great job Aimee did of writing that up!  (Please see above post) 

In the summer of 2009, I blogged about a presentation I'd seen about chronic pain and vitamin D and wanted to put the highlights here.  The title was "Managing Opiods in Seriously Ill, Hospitalized Patients -- Pitfalls and Pearls, " by Daniel Johnson, MD, FAAHPM of the Life Quality Institute, Kaiser Permanent, and University of Colorado.  I learned a lot about opiods for pain -- aside from when having a hysterectomy, I've never been prescribed opiods for pain and wanted to learn more because of the number of people with chronic pain who are advocating for the long-time use of narcotics.

I'd also met Dr Jerry Rand in the summer of 2009 when speaking at a chronic pain conference he was also presenting at, and his perspective is that doctors overall have not realized the side effects of narcotics on the brain related to sleep, and prescribing them long-term ends up contributing to the problem of chronic pain with most patients, and a 'vicious cycle' occurs.  I can see how this occurred during my generation as in our "modern medical system" crunched by insurance-based funding issues with providers having time to barely understand the top layer of a problem and needing to 'do something' results in handing a Rx rather than getting the patient educated about other strategies such as biofeedback, mindfulness, and proper exercise/stretching/massage of the body, etc. 

In talking with Dr. Johnson after his presentation and describing Lumigrate and the integrative medical approach we are utilizing, he volunteered that he would like to include more integrative concepts into his presentations, thanked me for my perspective, and asked to be included in information we gather about fibromyalgia. My encounter made me reflect upon the substantial information credible, established organizations possess and how they also gradually change in their perspectives.

I'd recently seen some interesting information from one of the best known, large, established and 'revered' Western medicine organizations in the United States, the Mayo Clinic.  Below is a link to a piece at their website about patients taking pain medications and their vitamin D levels.  I encourage you to go look at it.  

In the spring of 2011, I finally had my vitamin D levels checked, after having been 'turned onto' the amazing resources (pharmacists/co-presidents) at ITC Pharmacy, who reviewed my vitamin D intake through bone builder supplements and educated me about the absorption of D being better through drops since it's a hormone and the mouth being a better uptake mechanism than having it in the gut via a supplement capsule.  They sell a very inexpensive ($19) drop that lasted me the whole fall and winter and I had my levels tested and found I was needing to take the amount I had been in the sunny months and in the nonsunny months double the amount! However, I had increased the supplemental D in a way my body was able to get more into it and saw the results, having only one cold all winter/spring that 'got me', and I look forward to this cold and flu season not dreading being sick all the time like I was in the past.  So I really encourage you to have your vitamin D levels checked, and hope my story here about this aspect has helped those reading to see how this might apply to them or someone they care about who gets sick a lot! (Or who a cold turns into a secondary infection like bronchitis, as mine has ever since I had chronic fatigue/fibromyalgia 'come on' in my early adulthood. I'm finally 'back to the way I was before' in terms of not getting colds often, not getting very sick if I did succumb to something) 

An ounce of prevention is worth a pound of cure -- so please check in with yourself (a.k.a. "think") and get information about YOUR nutrition and supplements and see if you're in a good place with it.  Then make changes in what you're doing and I hope you'll see improvements similar to what I report! It irritates me to think that I went through years of what I did and it was unknown about vitamin D levels by my providers; even my providers who knew about vit D deficiency didn't suggest I get tested -- I took that upon myself, again proving the doctors cannot think about YOU as much as YOU do, as you're inside yourself 24/7.  

Team with GRATE providers who can assist you, and you'll do well! Lumigrate provides an ND, RPharm, NP (who operates under a physician) and other experts on supplements who work with people coast to coast through technologist.  We also have coaches that have backgrounds in addictions, spirituality, and physical therapy to assist you, in addition to what I do as an occupational therapist and 'guide' on Lumigrate.  So if you have questions on what your next step might be, send a request through Contact Us.  

Look for more information in the Supplementing / Nutrition area of Forums and in the 'colds/flu' forum.  I've tried to segment the forums in a way those healthy and without pain concerns can find information about chronic wellness / prevention and those with interests related to getting from illness to wellness have focused forums about ALL that they might be needing.  It's a lot of work to do, but I assure you that improvements can be made and sometimes the simplest things can make a BIG difference, as this vitamin D issue demonstrates.  Go out into the sun more, how simple is that! 

newsblog.mayoclinic.org/2009/03/20/mayo-clinic-researchers-link-vitamin-d-and-chronic-pain-relief/

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

bltomson
Title: LumiGRATE Poster - Itinerant
Joined: Oct 17 2009
Posts: 5
User offline. Last seen 13 years 39 weeks ago.
Re: Vitamin D

I recently started taking Vit D. One of my M.S friends suggested taking it. He has been taking D for quite sometime and feels it's made a great difference. I'm now taking it for my Fibro and M.S.

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 16 weeks 3 days ago.
Re: Vitamin D and Chronic Pain/Illness

For the cold/flu season 2011, we have a GRATE new piece I wanted to be sure to drop the link around Lumigrate for so those looking at these threads would know of.  Lumigrate keeps getting better and better in terms of the experts providing information being set up to help people anywhere coast to coast; we started with the best local providers who came together for one year and formed an integrative center and then went their separate ways, and that gave us the amazing videos you can download and watch for $0.00 (that come with handouts to look at on your computer or have printed -- my thinking was the consumers might drop those or written info from Forums, etc and help their providers learn of wonderful seminars they can learn from and direct their patients to.  

Here's the link to the 2011 Cold/Flu / Vitamin D piece, and it has links to the top stuff from the past on Lumigrate related to alternatives to cold and flu as well as a NEW piece this year about getting the flu shot or not.  Kinda rhymes!  Enjoy and be well!

 www.lumigrate.com/forum/flu-prevention-lifestyle-basics-plus-vitamin-d-japanese-study-kids-20089-flu-season

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.

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