Facebook and Fibromyalgia "Activists" - Ideas, Organization, Synergy!

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Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 16 weeks 1 day ago.

Fibro Awareness Day is in May and last year that fell about a month after Lumigrate launched.  It was an exciting day for us because of facebook!  It has been my observation that many people are out there looking for information and somehow missing the good resources that are on the Internet.  People had spent tons of time online and hadn't heard of some of the basic information that could have really helped them.  So I want to start providing solutions about that, and offer Lumigrate as a place for people "active" in the fibromyalgia community to come and start organizing, strategizing, brainstorming, coordinating.  OR when Dr. Oz and Oprah inevitably 'say the F word' (or do a whole show on it, or include it as part of one), how are we going to 'make the most of that' opportunity for education of the communities in which we live, work and play (and 'surf')?  If this gets enough interest, I will gladly set up a Forum under Fibromyalgia just for that purpose. 

Remember, this Forum area is for all kinds of information about facebook, and goes over the reasons I set this up, but most importantly, each person can start a new 'Topic' in a Forum, so please do, if you have something to add that's not already covered in an existing Topic.  These are YOUR forum areas, I'm just trying to set it up and shape it a bit if needed.  The fibromyalgia community, I have found, is very knowledgeable and has a LOT to offer!  Grab and oar and let's see where we can get this boat to go!

 

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Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.

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