I wanted to easily show the YOUsers of Lumigrate the comments that ensued under a Washington Post article from September 15, 2014. I created this topic comment and titled it about two days of battle, but after another two days there were more comments that were worth adding here for our YOUsers to more readily be able to read if they have difficulty, as I have with busy website comment threads. What a 'whistleblower', Kathleen Dixson, had to say was the best I have yet seen her present, but when they limite your space to comment, she was not putting in breaks and making it really easy to read. So our YOUsers get the easier readable version here. I hope it is helpful to those trying to figure out the Lyme reality and who the players are in the 'fight'. 

Since the information is so complex, if you can make it EASIER to read, then it might help people be able to absorb and become functionally literate about Lyme.  That was my thinkin'.  However, PLEASE GO TO THE SOURCE DOCUMENT and read the article and  look over the comments thread as there will be more than what I put here, for one thing... and all the bells and whistles are there. It was a very typical article about Lyme that comes from the mainstream media.  If you're at all familiar with Lyme you might just take in these comments FIRST and THEN go read the article.  It is titled:   "A Big Dispute Behind a Tiny Tick Bite: What to call the lingering effects of Lyme disease?", by Janice Lynch Schuster.  

BEAR with the presentation on this from me, below, please, as I had worked on bringing these comments here and making them easier for people with Lyme or other brain (and vision) difficulties easier to read and comprehend and 'follow'.  So I grabbed what was there from 9/15 to 9/17 on 9/17, and then came back on 9/19 and got the more pertinent comments and added them at the top (as the most recent comment is at the top and the first comment anyone made about the article at the bottom.  

When you see three horizontal breaker lines, below, that is what I added on 9/19 above, and below it is from the first batch (where I brought every comment because they were all good, after 9/17 there appeared to perhaps be a heckler of some sort (perhaps paid, who knows for certain) trying to attack Kathleen for not having published research and referring to her own website as reference. She is no longer working as a researcher and there are limited peer-reviewed publications that would likely take it on; she'd then dilute her time and energy for activism rallying people to do the pressuring of the Dept of Justice. So this is really a great little 'study' for people to see how this Lyme war goes. 

YUP!!!! 
http://www.thedailybeast.com/articles/2014/09/19/p... [57] 
 
While spirochetal diseases are permanent and one does need 3 months of IV ceftriaxone (Fallon, and Dattwyler and Krupp) as soon as possible since these bugs go right to the brain as discovered by Ray Dattwyler et al, by examining spinal fluid while the EM rash is still there, it is also true that the NIH has admitted publicly what they found regarding exposure to such antigens as the Lyme vaccine, OspA. It's likelier to be about fungal-antigen induced immunosuppression and the reactivation of the latent herpesviruses (see the NYT last year with Jane Brody and NINDS' Adrianna Marques). So, indeed, ILADS is ripping these people off and they refuse to consider how LYMErix causes the same systemic disease as "Chronic Lyme (Dave Persing and Ben Luft)." Sickening, really, that ILADS refuses to put up a fight over the Dearborn case definition, TOO!! - while they expect Senators like Blumenthal to take on the CDC and IDSA over their bogus testing, FORCING the FDA to do their jobs. What a FARCE of a "country," seriously, 
http://www.actionlyme.org/index.htm [58]

Does anyone care to know what the NIH thinks is the reason Lyme is primarily seronegative and why the NIH thinks OspA-like antigens are the cause of the New Great Imitator outcomes? Or is 8 years not enough time for ILADS to consider the science? 
http://www.ncbi.nlm.nih.gov/pubmed/?term=martin+an... [59]

Four Things we know for sure, now, about "Lyme Disease": 
1) When I recommended on ActionLyme.org that the other 49 states should sue the State of CT for participating in Yale's Lyme and LYMErix crime (140909),... the various dot edus went a little kookoo, and then the usda.gov (Plum Island) showed up to the tune of 47 individual pcs from that domain in one day. So, it looks like someone asked the usda.gov, "Now what? It was *your* idea to say Lyme was just a bad knee..." 

The scientific data says 2) the area of Lyme, CT/East Long Island was the original outbreak area (Bosler, SUNY-SB), and that this particular borrelia (closest relative = African bird borreliosis, anserina) showing up in this particular tick in this particular region was evolutionarily, genetically, unlikely (UPenn).

3) There is an obvious press black-out. NYTimes's Holcolm Noble quit the NYTimes in 2001 when they refused to publish his Lyme-LYMErix cryme story...

And 4) notice that none of the major dailies wrote a story about the reasons Senator Richard Blumenthal sued IDSociety.org in 2006. 

See the PI and Trainer Pages page of A-L for the scientific data on phylogeny:http://www.actionlyme.org/PIIB.htm [60] and 
http://www.actionlyme.org/TRAINER_2012SUMMER.htm [61]

Therefore, long ago we decided we were DONE with this baloney. We'll just fax the foreign embassies with the scanned in data. ActionLyme was a precursor to WikiLeaks. I'd say it was effective at proving one thing: "Doctors" are severely undertrained, almost to the point where you could say "Medical School" is where they're exposed to a form of socially-acquired-dementia. A contagious disease of character. A model for proposing the theory that arrogance negatively affects cognition in a linear way. 
http://www.actionlyme.org/index.htm [58]

Then from a Ross Anderson: Hello, I would like to see the leadership at the CDC and I.D.S.A retire early. Send them off to clown Island and let them keep their money and ignorant ideas. The other alternative will be prosecution and a legacy of disgrace. This never ending, ridiculous debate over what to call a disease is literally killing us. We shall call it Lyme Disease. Please pull your collective heads out of the sand, and work together to end this suffering. #CureTheCDC

Ms Dixson's response: BigPharma and the NIH were losers, too, since they chose to ignore something as big as a "New Great Imitator" that caused MS, RA, Dementia, Lupus, Cancer, Chronic Fatigue and the other non-HLA-linked outcomes. China is ahead of them, Brazil makes fun of the CDC/IDSA clowns on "Lyme Disease," and Russia kicked out Americans and banned human DNA samples being taken out of their country six months after I started faxing their embassies with data about Pam3Cys and what the likes of the associates of Durland Fish and Gary Wormser were doing with that disease susceptibility pharming out of New York Medical College. 

"In May 2007, Russian newspaper Kommersant reported that the Russian government banned all exports of human biosamples.[13] The report claims that the reason for the ban was a secret FSB report about on-going development of "genetic bioweapons" targeting Russian population by Western institutions. The report mentions the Harvard School of Public Health, American International Health Alliance, United States Department of Justice Environment and Natural Resources Division, Karolinska Institutet and United States Agency for International Development." 
http://en.wikipedia.org/wiki/Ethnic_bioweapon#Russ... [62] 

Coincidence? Possibly, but I started faxing the embassies in June, 2006. By Sept 2006 I had 14,000 visitors from Russia, alone, and then the following May, 2007, Russia kicked them out. 
http://www.actionlyme.org/index.htm [58]

 

Fascinating stuff. Who the H *are* these people? 
http://actionlyme.org/BOGUS_RUSSIAN_NYMC_ARTICLES.... [63] 
CHAPTER 8, Mysterious Russian (Defectors?) Scientists at New York Medical College study the cyst or spheroplast form of spirochetes as well as human racial diseases susceptibilities.  
 
Some of the other Russian Scientists either publishing in Durland Fish's 'Journal", or New York Medical College- Look closely at all of their publications. They're very interested in genetic backgrounds of peoples of foreign nations: 
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=... [64] 
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=... [65] 
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=... [66] 
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=... [67] 
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=... [68] 
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=... [69] 
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=... [70] 
 
 
 
That all ^^^ means the bioweapons to be developed against these people have to be stealth against their HLAs. That is, the disease cannot be an HLA-linked disease or else there will be antibodies against the stealth infection, which would render the disease detectable. Read more about it here.

MzCitizen2   #1 7:12 AM MDT  (Note from Mardy - with no date it meant 'today', 9/17, so you can see as this goes on, it's going backwards in time with the discussion). 

 

For those who have been experiencing symptoms that their doctors, or the CDC approved testing, has not been able to define - please look into what is fast becoming the new "gold standard" in Lyme testing 

 
Lyme Blood Culture Test 
Advanced Labs of Pennsylvania 
 
Advanced will culture a blood sample for six weeks or more, in an attempt to "grow" borrelia burgdorferi spirochetes from cells in the blood. (A well known "Lyme Literate" physician helped to develop this test.) 
 
It is expensive (about $600.00), and most health insurers will not cover the cost. Also patients are advised not to take antibiotics for one month prior to the blood draw. But people who have not been able to get a definitive diagnosis in the past, are finally now getting some answers, with a 94% accuracy. 
 
The lab sends patients a microscopic photograph of any spirochetes grown from their blood.  
 
Imagine the progress that might be made if insurers were required to cover this test? 

 

KMDickson1 #1-1 - 7:48 AM - That's not a validated test. Besides, most of the borrelia escape to "immune-privileged sites" (code language for BRAIN) and are not typically blood-borne; not this borrelia, anyway. And, what's the disease if it was caused by OspA/Fungal vaccination, too? Please, let's be sure we know what we are talking about and stop quoting ILADS - who does not know what they are talking about. Bad enough we get confusing garbage from CDC and IDSA. ... http://www.actionlyme.org [11]

OspAfail - #3  6:21 AM MDT

Ask the eminent doctors who are quoted in the article to explain what OspA is/does.

  

KMDickson1 - #7   3:59 AM MDT

 

Go back to the 1950s to see Rockefeller Bioweapons Inc experimenting with mycoplasma antigens like OspA - Enhancing Mouse Leukemia Virus, just like fungally-contaminated vaccines do, which was the reason they put Thimerosal in vaccines, to prevent fungi from doing this (Clue: HIV and "Lyme" bearing the same immunosuppressing triacyl lipopeptide fungal antigen, OspA): 
https://www.facebook.com/notes/kathleen-dickson/18... [79] 

"In Swiss mice, animals with high natural resistance to hepatitis virus, the pathogenicity of this agent was markedly enhanced by combined infection with eperythrozoa. Eperythrozoa were maintained throughout 18 successive passages in normal Princeton and Swiss weanlings with intact spleens.

 

The combined infection of Princeton mice with eperythrozoa and the virus component of Gledhill, Dick, and Andrewes, which is nearly inactive when injected alone, resulted in acute hepatitis with fatal outcome." 
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC213632... [80]

 

 

The reason the CDC refuses to reveal what Borreliosis is all about (Immunosuppression and the activation of latent herpesviruses) is because that mechanism reveals the source of the "Autism" pandemic. See the above experiment  And we have a lot more data on that, including the CDC's and BigPharma's own data confirming. 

 

Join us here @ the OCCUPY the USDOJ page for all groups [Autism parents, Psych Rights, Fake Criminal Courts, Police Brutality (Ferguson), Lyme Disease, Chronic Fatigue, Fibromyalgia, etc) because we are going to DEMAND the USDOJ do their jobs and protect us from corporate criminals: 
https://www.facebook.com/groups/271420453060565/ [71]

 

Recall that the Scientific Fraud and Racketeering complaint was already filed with the USDOJ in July 2003 (New Haven, CT), upon the recommendation of Richard Blumenthal's (now a senator, at the time, the CT Attorney General) staff lawyers once they had seen that the testing schema for Lyme had "CHANGED??!!"

 

Later in 2006, Blumenthal sued himself for "AntiTrust." So, obviously something strange (and criminal) is going on. 
http://www.actionlyme.org/USDOJ_COMPLAINT_RICO.htm [22] 

 

Shainzona - #14   9/16/2014 5:09 PM MDT

  

We lived in the Lyme Disease Capital of the World - Chappaqua, NY - and dealt with another tick-borne illness: ehrliciosis. While traveling through the various medical channels I learned that no one wanted to admit another tick illness was out there...so much so that we were told that in order to investigate they would need to send investigators into the woods in protective suits...and they were sure the neighbors would not be happy to see that. 
 
You are your own best advocate. Don't give up.   (I (Mardy) ADDED THE BOLDING TO "pop" it)

 

 

KMDickson1 - #22   9/16/2014 2:37 PM MDT [Edited]

 

Thankfully we can all now report our adverse events to the falsified Dearborn "Lyme Disease" "case definition" to the FDA because now the FDA is being forced to assure lab testing is validated according to the FDA's own rules. See ActionLyme.org for more data on how to report your AE to the FDA, and join us on Facebook, we have an OCCUPY the USDOJ group going to Washington next year and we're gathering the Autism Parents, CFIDS, Gulf War Illness, Psych Rights, Ferguson-type Victims, etc.

 

We're going to contact the FOREIGN press and explain in detail why this country is such a FARCE on the word "Democracy" and an insult to anything anyone ever knew about the concept of Human Rights. Look for "USDOJ Protest for All Abused Groups" 
https://www.facebook.com/groups/271420453060565/ [71]

 

 

So far in the planning stage for the OCCUPY JUSTICE: Bring clown and Zombie costumes. Oh, and a lanyard that says "USDOJ EMPLOYEE" to wear on the clown suit. 
http://www.actionlyme.org/USDOJ_COMPLAINT_RICO.htm [22]  

 

 

 

Bill64738 - #23   9/16/2014 2:29 PM MDT

 

 

My father had this problem as a child half a century ago -- apparently severe arthritis. So bad his doctors recommended he be institutionalized. Instead, my grandparents found a forward-thinking doctor who treated with year long courses of tetracycline (antibiotics)... and it worked. I'm kinda glad it did -- I wouldn't exist otherwise.

 

 

 

homeschool4joy - #24  9/16/2014 2:06 PM MDT

 

I knew nothing of the controversy around Lyme when I found a tiny speck of a tick on my abdomen in May 2010, followed by a bullseye rash less than two weeks later. Because I was breastfeeding, I got two weeks of amoxicillin and was told I was fine. 
 
When a new bullseye rash showed up on my right knee in October 2010, I never saw a tick. My knee swelled and became stiff and painful. This time, my primary doctor and a dermatologist both said it was cellulitis, instead of Lyme, and the orthopedist I saw for my knee said it was probably related to a knee surgery I had had five years earlier, and there was nothing for me to do except lose some weight. 
 
That bullseye rash kept coming back, despite several rounds of antibiotics. My knee didn't get better, either. Then I started to get other, strange symptoms: heart palpitations, chronic sinus infections that left my eyes red for months (while no one else in my family got sick), skin rashes that came and went, anxiety and even panic attacks for no reason, profound fatigue that also came and went...and then one day, I ended up in the ER, because I began to stagger, and when I tried to say something was wrong with me, no words came out, and I lost consciousness.

 

When I woke up, the right side of my body felt heavy and dull, and my right leg felt shorter than my left, so I could not stand. Tests didn't show anything, so I was told it was a TIA. Still more: the left side of my face went numb; my arms went numb and weak; it felt like I was walking on broken glass, and that someone was stabbing my feet, hands, joints; my hands grew stiff and swollen and painful; more strange rashes and marks appeared and disappeared. 
 
The worst thing of all? Being treated like an idiot or a loon by arrogant, dismissive doctors. 

---

 

KMDickson1 - #24-1  9/16/2014 2:32 PM MDT

 

They really are idiots and arrogance, you betchya. Next time you run into an arrogant you-know-what, ask them what OspA was. Tell them you want the structure/function.  

http://www.actionlyme.org/index.htm [58]

 

 

dcbill07 - #25 9/16/2014 12:59 PM MDT

 

There is more to this story: 

 
http://cen.acs.org/articles/91/i25/Shot-Against-Ly... [83]

 

 

sdevlin - #26  9/16/2014 12:36 PM MDT

 

Maybe if lyme disease becomes enough of a threat (if it isn't already) the lyme vaccine developed for humans will be re-introduced to the world. It apparently was effective, but pulled off the market because not enough people were getting immunized. Strikes me a preventive is far preferable to a treatment.  

---

 

bugjah #26-1 9/16/2014 1:50 PM MDT [Edited]

 

according to the article linked above by dcbill, it was pulled because of supposedly false claims of arthritis caused by the vaccine. The implication is that the anti-vaccine crowd won out and an at least partially effective vaccine was pulled from production. 
 
that link also discusses a potentially promising new vaccine that is early in the testing process.

 

 

KMDickson1 - #26-2    9/16/2014 2:22 PM MDT

 

Um, no. The Lyme vaccine was a fungal toxin that caused immunosuppression - a definitiojn of the disease thrown out by the DNA/Vaccine patenteering CDC at the 1994 Dearborn conference - and was the Greatest Great Imitator. That will never be repeated.  

See more at http://www.actionlyme.org/index.htm [58] 
and here about post-Lyme- and post-LYMErix SEPSIS activating latent viruses: 
http://www.ncbi.nlm.nih.gov/pubmed?linkname=pubmed... [84]

 

• kathlo - #26-2-1 9/16/2014 2:39 PM MDT   The website is so difficult to understand. I wish it and your comments were more in layman's terms as I'd seriously be really interested in comprehending what your they mean.

  

KMDickson1 - #26-2-2  9/16/2014 3:08 PM MDT

 

You can't really have a 2-dimensional website describing a multi-dimensional crime that satisfies both scientists worldwide and lay people.

 

But here is a page I like to send around to people who have questions say, on the mid-level of Lyme Cryme training, and in particular I ask people today to focus on the 1988 report by Raymond Dattwyler who discovered that Borrelial supernatants (floats on the top of a water based solvent and is therefore hydrophobic or lipid like or like the OspA vaccine) cause IMMUNOSUPPRESSION: 
http://actionlyme.org/TRAINER_2012SUMMER.htm [82] 

 

Ray Dattwyler (SUNY-SB) says in 1988 that exposure to Lyme or even just its supernatants (OspA-like molecules) turn off the NK cell activity (or is immunosuppressive): 
 
"Effect of B burgdorferi Culture on Normal PBL 
 
"..when lymphocytes are cultured in the presence of growing Bb there is a marked inhibition ( p < .0005 ) of NK activity on days 3, 5, and 7 when compared to lymphocytes cultured in BSKII media in the absence of spirochetes. This effect is not due to a selective depletion or or toxicity to endogenous NK since viability studies and monoclonal antibodies demonstrate no significant changes after culture with the organism. 
 
"The inhibition is directly attributable to the organism or its supernatants (data not shown)." 
 
From: Modulation of natural killer cell activity by Borrelia burgdorferi. 
Golightly M, Thomas J, Volkman D, Dattwyler R. 
Department of Pathology, State University of New York, Stony Brook 11794. 
PMID: 3056196 [PubMed - indexed for MEDLINE] 
Ann N Y Acad Sci. 1988;539:103-11. 
 
http://www.actionlyme.org/DATTWYLER_NK_SUPPRESSION... [85]  

 

 

GirlGenius - #26-3

9/16/2014 7:02 PM MDT

 

My husband and I had the Lyme shot when we lived "somewhere in the swamps of Jersey". It seemed to work for us (I have had more tick bites than him). but we have no way of knowing if it's still effective. No booster available. 
 
We had no side effects from the vaccine.

pbearme - #27  9/16/2014 12:30 PM MDT

 

We expect too much from our Doctors. Some are very good problem solvers. Many are like car mechanics without shop manuals. Chronic Lyme disease can also present neurological symptoms similar to Parkinson's disease. The real answer is a vaccine.

---

 

KMDickson1 - #27-1   9/16/2014 2:23 PM MDT

 

You cant make a vaccine out of a TLR2/1 agonist fungal toxin, and Lyme actually being relapsing fever means the nature of the relapse is antigenic variation, rendering vaccines a ridiculous idea. 
http://www.actionlyme.org/index.htm [58]  

 

MzCitizen2 - #27-2  6:50 AM MDT

 

You would NOT say that if you had become one of the many people who became WHEELCHAIR BOUND from taking Lymerix! 

 

lostintime1389 - #28    9/16/2014 12:27 PM MDT

 

I know this article is about humans, but on a related note my dog got Lyme disease at 1 year old. He went through the antibiotic treatment but still sometimes walks like a dog 4 times his age.

 

The vets at my practice don't believe me and even gave him a Lyme Disease vaccine after I told them he had already had Lyme Disease! It's frustrating when doctors and vets have a larger ego than intelligence. Listening to the patient isn't always a bad thing.  
 
I do wonder why humans do not have the option of a Lyme Disease Vaccine though, I would get it in a heartbeat!

---

 

KMDickson1 - #28-1     9/16/2014 2:24 PM MDT

 

The dog vaccine never prevented spirochetes. There is no vaccine for anything related to spirochetes - never will be, never was.    http://www.actionlyme.org/index.htm [58]

  

SouthernYankee27 #29   9/16/2014 12:04 PM MDT

 

Lynch - I'm a 30 yo woman, sick for 12 years before I got diagnosed last year. I feel for your daughter. Still, I've read 20 articles just like this one. As a journalist, I urge you to look deeper into the institutional issues that are causing thousands of people to go untreated and undiagnosed.

 

I'd love to see some investigative reporting into the individuals at the CDC who come up with the recommendations for diagnosing and treating and find out why it's in their best interest to allow so many americans to suffer. That's why there is a protest in front of the NYTimes building in NYC tomorrow. Because we need better reporting on the illness, and the people standing in the way of it's eradication.

---

 

trainer1158 - #29-1 9/16/2014 1:52 PM MDT

 

Have you read the excellent series on Lyme in The Poughkeepsie Journal? I only wish The Post would follow suit.

 

KMDickson1 - #29-2   9/16/2014 2:26 PM MDT

 

The WaPo knows all about this "controversy," I guarantee it. I get site stats from the server. I know who haunts ActionLyme.org and have for years. There is a press black out about this. Notice they even bring Auwaerter out again? He does not know what LYMErix was, or therefore how it failed by causing immunosuppression.

 

So, don't hold your breath on WaPo or the NYTimes ever running the truth about this huge scam. 
http://www.actionlyme.org/index.htm [58]

 

 

 

Paula Kozinn, a NYCity Lyme advocate (who you can see, below in comments with the photos of her and the protest on 9/17) posted this on her Facebook page this week (the week after the protest), on 9/21, and I thought that it was great because everyone could:

1) be aware of the situation, which is a Google group critical of Kathleen Dixon and her work/efforts/ knowledge / activism and 

2) allow Paula's FB friends/followers to lend their support of Kathleen by commenting and Liking, thereby having in one snapshot the knowledge of others' having encountered either someone being critical of "KD", or having an interaction with her ourselves that is not 'normal behavior'.  Many of us have encountered this by either following and reading the conversations she's involved in, or have experienced it first-hand.  Obviously, this can be problematic for any group process, and anyone who has been involved in group process has perhaps encountered what I have -- they've become increasingly difficult to be part of because of so much behavioral unwellness. 

Kathleen is 'difficult' to figure out. Not only is her message difficult to sort out (which is due to her disorders, she has them same as everyone so she has her unique expression of symptomology --- strengths and weaknesses like the rest of us), so is her personality. But what prevailed for me was that she has things figured out and knows things that seem to be accurate and things that I had not seen anyone else saying.  And as a person who is looking for the truth of the matter, on all matters, I will work to find a way to accommodate, to the best of my ability. 

Here is what Paula so brilliantly wrote, and 'glued' a lot of people's heads together on the subject of what many just abbreviate "KD". KD coined the term for herself 'the Queen of Lyme' and I believe coined the phrase "Cryme disease" too, perhaps. I have contributed to this process -- in adding this information here with my support and expertise insights about mental health and the effects of these cofactors on behavior and therefore any kind of activism that involves working collaboratively with others. I have taken the time to copy over the comments KD made on the Post article and simply add in more breaks that aren't possible when commenting on the source's site because they constraing the length of comments to moderately small bites for someone who has as much to contribute as Kathleen Dixon / KD does. I am going to BOLD the parts below that I really want the Lumigrate readers' eyes to see and brains to take in, as well. 

I stumbled upon a google group that's apparently dedicated to the destruction of Kathleen's character and credibility. Here's the response I left on the comment thread:

 

I have recently become part of the Lyme community, online, and immediately had interactions with Kathleen. It is too early for me to assess whether or not her science holds up, but I think that she is trying to make the medical, scientific and political community accountable for having suppressed real information about Lyme disease and treatment, [believing that it] has resulted in a genuine epidemic. 

If you want to talk to her, you'll need a coat of mail, so be forewarned. You may even need to set firm boundaries to save yourself. But you should also be fair enough to understand the situation, and try to eek out some compassion and even respect for what she is attempting to do. 

I understand that Kathleen suffers from many manifestations of various co-infections that are common to people with Lyme disease, and they [are difficult symptoms for Kathleen] to manage. The allegations you've posted, are quite plausible, due to the very real medical struggles that Kathleen has which are a result of Lyme-related infections. 

Unfortunately, due to the gross lack of advocacy for Lyme patients, in the US and abroad, people with Lyme are forced to get out there and do this pressing and important work, themselves, while being extremely ill. 

If her work results in saving endless lives because Lyme disease becomes effectively diagnosed and properly treated, we will celebrate her. And for her to do this, with a debilitating disability, is nothing short of heroic. 

Cognitive issues and extreme anxiety and feelings of rage, are symptoms that the most docile of people experience with certain Lyme co-infections. Not the best combination for a public figure. But I take my hat off to Kathleen, for staying in the fight because she has to. This epidemic needs to be stopped. People need to be held accountable. And Kathleen is pulling the curtain back to expose the puppet-master/s. Good for her. Those who would ridicule her, should take compassion and carry her torch for her, instead. 

She is no different than John Q, waving an empty gun around the emergency room to save his child's life, when his son is being told to go ahead and die, no one cares -- it's about what's covered, your life is not important enough. In the case of Kathleen, they're saying, "We're willing to pay for our crimes with your lives." 

Is hers crazy behavior? Sure it is. But people get crazy when they feel they're in a life or death situation -- even without spirochetes migrating around their spinal column and into the emotion and processing centers of their brains. 

It's not pretty... but it's beautiful. 

 

-Paula Kozinn, NYC Lyme Awareness Advocate 

 And here are the responses (with names removed, except my own as I give permission for this to be on Lumigrate, haha!) 

• Excellent points, cogent, compassionate, and so well written. I was not aware of this woman or her attempts to bring further attention to the Lyme debacle.
• S.F.: Well said.

   
• A.K.:  Bravo

   
• J.C.: Love your compassion!

   
• J.F.:  Thank you for your support. Kathleen is not your average bear (but always respectful and does NOT stoop to Lyme mentality). She is intelligent, compassionate and fights, without reward and withstanding obvious abuse with dignity, like no one I have ever known! People should try to learn before judging. I have read much of her work and based on my personal experiences with these diseases and doctors I believe she has some important and very valuable information. I just wish people would at least attempt to understand! PC and being minions to politicians has gotten us NO WHERE. I admire her courage and determination... READ and LEARN!

   
• J.S.: I really don't know what to think about KD. I admire her dedication, I resent her domineering behaviour, but I believe any group out to discredit her has the wrong agenda.

   
• Mardy Ross: It seems apparent that many of us have witnessed and were intrigued by what Kathleen presents, and her interpretation. I know I felt like there were dots to be connected before I happened along her 'work', and am not alone in working to learn to take in and integrate what she says. She's clearly piqued many people's interest -- and has a lot of things to back up what she alleges. 

  
  And therefore we all have to keep in the forefront of our minds as individuals, and collectively, what that means in terms of how the game is played. "Shills" are said to number 700,000 on the internet today -- paid to disrupt the process of people who are seeking information and moving in the direction of resolving the multitude of issue in the world today. Whether it's Kathleen Dixon or anyone else, that has to be kept at the forefront of all the minds of those who are seeking to create change with the hours of time and immeasurable energies (and sometimes/ often dollars) we put forth in this or any effort. 
  
  That is all that I can say, beyond what has been said so eloquently in previous comments and the initial, incrediable words crafted by Paula Kozinn [86], above. I've been in the trenches for along time of people who are with various disorders and active about different things, and I've never seen anything like Kathleen AND the group that 'gets it' why this is difficult for her and for each of us to figure it all out, but I see way more determinism and commitment than 'ego'. On everyone's parts. And as for who 'gets it'.. isn't that Kathleen's claim to fame saying .. 'We've got this'. That's really because SHE's got it and we have too (at various levels of having been able to absorb it all as she clearly has, and digested it and oozes it out over and over.) 
  
  I cannot imagine how frustrating and exhausting it has been to be her and over and over mentor us all. I think that is tangible and we all see that commitment. And we each have our same stories and what we bring to the table -- and commitment. And stick with-it-ness, and stick-togetheredness with understanding of the reasons for the difficulties. That is truly admirable for all involved....

   
• L.B.: Each and every one of us Lyme sufferers/survivors/warriors need support and compassion. Thank you, Paula, for addressing this so very eloquently! You're a treasure!

   
• Mardy Ross: ^ gluey treasure, I'd say maybe...

   
• D.T.: Kathleen has been fighting this battle for a long time. Longer than many of us have even been diagnosed. She has spoken out against this crime, and has endured great harm done to her family and herself, as a result. If not for Kathleen, we probably wouldn't know what we now know. She's one of the bravest ladies I know.

   
• J.P.: “In the beginning of a change, the Patriot is a scarce man, Brave, Hated, and Scorned. When his cause succeeds however,the timid join him, For then it costs nothing to be a Patriot.”

  Mark Twain

   
• J.M.: I've had conversations with Kathleen and have thought about how brilliant she was. And how intelligent. I was envious. She's very knowledgable in my book when it comes to this horrid disease. Which, we have to be in order to survive and fight it! I can only imagine it's an IDSA troll who is making these allegations ......

    
• Former Bookmaker: I'm nowhere near as smart as KD, but has worked with probability in terms of that I was bookmaker. There is no oddsbomb many of the answers we receive in the coming years indicate that KD has actually been on the trail of tragedy in two decades ..
• 
  I'm at least at most humble above, the knowledge I realize she possesses and I hope that one day I understand more of what she has been doing all these years. I think she is a good guide.

   
• M.A. oh yes, ive seen that group, ignored it though

   
• D.M.: Stunningly Beautiful!!!!!!

   
• M.A.: anyone who puts kathleen down before knowing her is a coward and does it because they cant understand what she is saying.

   
• R.G:  I have so appreciated Kathleen Dickson [87]'s brilliance in assimilating all the information from so many sources and, with her formidable brilliant mind, interpreting that information for us all. I have been sick since 1989 in Southern California where, even though my infection took place on a trip to Pawling, Duchess County, New York, I was repeatedly told I could not have Lyme Disease. They said my repeated positive Elisa and Western Blot were FALSE positives. My wife is a Licensed Clinical Laboratory Scientist who has worked in Hospital Laboratories for 30 years. She knew the doctors were in error in interpreting my tests and their diagnosis. She challenged them just as Kathleen does. The physicians then attacked my wife and did nothing to address my disease. So, 26 years later I still fight this battle of Lyme but with my wife at my side and friends like Kathleen, it makes the struggle easier to bear. Thank you Kathleen for your courage and strength in articulating complex ideas. Thank you, most of all, for your words of comfort and understanding to myself and so many others who fight this scourge shoulder to shoulder and heart to heart every single day. God bless you!
• Mardy Ross: I saw yesterday that PsychologyToday has an article about internet trolls and their personality disorders and behavior disorders. I found that there was a lack of awareness in the chronic Lyme community in 2013 about trolls and others who are masquerading on Facebook to be taking advantage in one way or another --- financially steering money their way through crime and fraud / deceit, and it's estimated 700,000 are online working websites, group pages, social media etc. to sway opinions, disrupt activists who are threatening to those who pay their employers to 'troll'/shill.

 

In my efforts to 'teach' a variety of things in my topics, one being tricks of the 'trade', I'm going to suggest that if people were to see this kind of response on a Facebook thread, they consider putting in Friend Requests and Following these people (after looking at their profiles to assess for sure); they seem like a bunch of people who turned up and took the moment or few to comment after reading what Paula took the major undertaking of time to not only post the comment at the Google group, but then bring that information to her Facebook. 

Kathleen's motto, as I've said is "We've got this." (meaning the protest, the activism strategy lined out, the ducks are in a row).  And it appears 'we got her back'. For the number of FB friends that this page of Paula's has (as it's new, but she's savvy about how she connects), this is a healthy response in support of KD and I'm sure Paula's cementing her place as a rising leader in this movement, and in my estimation, the 'glue stick'. 

I hope this is helpful to show people how the 'movement' is going at this point in time, the late summer/early fall of 2014. If you're reading this in the future a ways, I hope you plug into the movement and can see how it's going at the time YOU read. And this might help people 'navigate' activism related to Lyme (and the related disorders). 

Live and Learn. Learn and Live Better! ~ Mardy

In early October, I saw that Kathleen had posted something on her Facebook that was, I thought, as cohesive a summary as I'd seen, so I thought I'd grab it and add it in here. If, as I went over it, I thought I could do tiny things to make it more readable for tired or otherwise impaired brains, I have taken those liberties, but do this knowing that Kathleen wishes her message to be heard and she appreciates and seeks out these kinds of tweeks. (Not that I make them perfect but it might help someone reading. However, this one was miniscule what I tweeked and as always, no content is changed at all). 

                                       

The U. S. Social Security Administration is being ripped off by the billions every year since they are paying what the insurance companies should be paying in long term disability and medical care. The insurance companies took the risk of paying these bills when they decided to be insurance companies. As expected, the insurance companies are involved in the "Lyme Scam", particularly Kaiser-Permanente, which now has a forward base at New York Medical College, the center of the RICO organization, the ALDF.com or, now, IDSA. I tried to inform the SSA.gov and the USDOJ, but they don't care.

The SSA.gov is STUPID like all the rest of the dot gov agencies, but I guess the important thing is that other countries learn about this so they can disrespect the United States and not participate in any more of the CDC's or NIH's medical/vaccines scams.

People wouldn't even have to become disabled if the NIH/CDC allowed us to be diagnosed early with Yale's scientifically valid flagellin method. Chronic, long term exposure to IDSA's persistent Lyme and OspA appear to activate Epstein-Barr and induce tolerance to fungi/mycoplasma in the blood, causing chronic fatigue.

At least I have been told by the NIH "Lyme Program Officer" that indeed Lyme is relapsing fever, and the only way to diagnose it with an antibody method is to use recombinant flagellins from several relapsing fever spirochetes, including the cow relapsing fever that is currently called "Masters' disease." But he doesn't know what OspA is, he says. 

Yale, IDSA, the CDC and the NIH refuse to answer the question as to what the structure/function of OspA (Yale's LYMErix vaccine) was, but as you recall, Anthony Fauci (NIAID) on CNN in 2003 said - on national TV, to the nation:

"We've had an effective vaccine, but it's the kind of vaccine that you have to essentially vaccinate people each year. And from the standpoint of its use, it has not been used as efficiently as it could have been used. So scientifically, we had a vaccine and still do have a vaccine, but it's not really well used." -- Fauci

http://edition.cnn.com/TRANSCRIPTS/0306/20/ldt.00.html [88]

That guy Fauci clearly does not know what he is talking about. He doesn't know what OspA is, and he obviously does not know how one performs any kind of analytical validation. So, I wonder what we pay Fauci every year to be clueless. 

The important thing is that the entire rest of Planet Earth recognize that the United States is a dangerously stupid place at all levels, particularly as regards human health.

As an aside, note that Fauci also said: 

"If you want to talk about ethics," said Dr. Anthony Fauci of the National Institutes of Health in Maryland, "you want to make sure something works before you announce it."  http://www.aegis.com/news/mh/1985/MH851101.html [89]

Oh. I see. I guess since Fauci doesn't know what "scientifically valid" means, nor does anyone in his office know what OspA was, nor does anyone at the NIH know a thing about ethics, we should be asking Fauci what he means by "works."

Here is something else Fauci said that is very revealing:

"Or, in some cases, the work might need to be classified." Fauci notes that the NIH does not do classified studies. 'We would have to refer it to an agency that does classified research, because we don't,' he says." http://www.npr.org/.../policy-on-high-risk-biological... [90]

This must be why there is no "National Institutes of Immune-Suppression Diseases," there is only an National Institute of Allergy and Infectious Diseases. The Immune Suppression Diseases are like Lyme and HIV, both of which are apparently bearers of the infamous immune-suppressing antigen - the infamous Stealth Disabler - OspA.

We know Plum Island is the original outbreak area (accidental release hot zone) because we were so informed by someone at Porton Down (UK's CDC) and then, noteworthily, the infamous Lyme Witch of the UK, Susan O'Connell, suddenly quit her job last month. But we also know because Ed Bosler demonstrated that Lyme, CT was the unlikely original outbreak area, and that phylogenetically, these spirochetes were not likely to adapt to the Ixodes vector:

UNCOORDINATED PHYLOGEOGRAPHY OF BORRELIA BURGDORFERI AND ITS TICK 
VECTOR, IXODES SCAPULARIS:
http://www.ncbi.nlm.nih.gov/pubmed?term=20394659[uid]... [91]
"Despite the intimate association of B. burgdorferi and I. scapularis, the population structure, evolutionary history, and historical biogeography of the pathogen are all contrary to its arthropod vector."

Yes, you guessed it. Lyme was an accidental release of a bioweapon, and then the whole thing was screwed up again because, as was revealed by Porton Down, the project was "given over to industry," those "tards" being the likes of Crazy Eddie McSweegan, who never actually worked in a lab, and his crooked psychopath Master, Durland Fish.

And now, 10 years after the FDA ordered SmithKline and Yale to remove the OspA "vaccine" from the market, no one from the entire HHS.gov, or Yale, or IDSociety.org can answer the question, "WHAT IS OSP-A?"

In case you missed it (below):

1) The USA supported a failed LYMErix-MRSA- and a failed LYMErix-HIV vaccine (PDF), and they, to this day, have not reported why the LYMErix-Tuberculosis vaccines all failed (3, 4, 5). 

2) No one in the NIH (or the CDC or Yale or IDSA) can tell us what was the structure-function of LYMErix. 

3) The CDC and the murdered Don Wiley published that a pandemic flu will be an H9 SWINE FLU (6, 7), 

4) the CDC published 3-4 times that the live attenuated viruses in vaccines reactivated by the presence of LYMErix-like antigens (mycoplasmal TLR2-agonist contamination or vaccination of an already fungally-immunosuppressed host) cause the brain damage we call autism (8, 9, 10, 11), and 

5) Once the German scientist Roland Martin, recruited by the NIH because he discovered that Lyme caused multiple sclerosis, found out it that it was LYMErix that induced the immunosuppression that resulted in the MS outcome of Lyme (activation of Epstein-Barr/Similars), he quit the NIH and went home to Germany (12, 13).

Roland Martin quit the NIH and went home to Germany because he found out OspA was the cause of the immune suppression that resulted in the multiple sclerosis outcome of Lyme-- the very reason he was recruited from Germany to work at the NIH in the first place. 

And the pandemic of vaccines-induced autism?; the CDC already knows the source of. It isn't the Thimerosal.

 

CNN.com - Transcripts [92]

ANNOUNCER: This is LOU DOBBS TONIGHT for Friday, June 20. Here now Lou Dobbs. LOU DOBBS, CNN ANCHOR: Good evening everyone. Tonight, blazing Arizona, a fast moving wildfire near Tucson is threatening hundreds of homes. It's already destroyed nearly 300 houses and tonight the winds are picking up. Fi…

EDITION.CNN.COM

 

I was told that Truth-Out had a great PhD involved with a lot of stories, and it turns out they're doing a series about Lyme. In looking for Jessica Bernstein's name, with Truth Out, I came upon this article which I wanted to add here because it actually uses the 'feminist' word, which I thought was interesting. Drawing upon the experiences of our history in the US with other movements is a key for the Lyme movement. Examples: the right to vote for minorities including women, even though they were not a 'minority' in number, just treated like it by the society in the past. HIV/AIDs. Etcetera. 

www.truth-out.org/news/item/24405-lyme-disease-is-a-feminist-issue-an-interview-with-sini-anderson [97]    

As I 'do' to encourage taking the trip to see the site I like and recomment, providing a snippet of what's at the link, is below (and this does NOT inlude the info in the article where they get information from Dr Horowitz as to why it's seen in more women than men):

Dennis J. Bernstein spoke with Sini Anderson [98] about her film on Hanna, as well as what she has discovered more recently as she continues to interview dozens of terribly ill women for her upcoming documentary about Lyme disease. 

Dennis Berstein: Well, Sini Anderson, it's really good of you to take some time out to speak to us about this very important issue.

Sini Anderson: Thanks Dennis. I'm happy to be here talking about it. 

Alright, well let's start with your film about Kathleen Hanna called The Punk Singer. First of all, I think it would be great if you make sure everybody knows something about who Kathleen Hanna is.

Sure. Kathleen Hanna is a feminist, artist, musician who is largely credited for the beginnings of third wave feminism, a movement that really started to pick up speed in the early 1990s. She was a lead singer of a band called Bikini Kill, and then went on to another band called Le Tigre. And she is an amazing artist and activist, as well as a musician.  

Alright, and talk a little bit about why you got involved with doing the film and how, in the midst of it, it was revealed that Kathleen Hanna was diagnosed with Lyme. How did that happen? 

Sure. Well, you know, the idea for the documentary kind of came about when Kathleen had come to me. We'd just been working on a documentary about her band, Le Tigre. It was actually more of a tour film, at that time.  

And Kathleen had not been performing at that point, for several years. She'd pretty abruptly left the music scene, and had never really, publicly, talked about why. So Kathleen was actually extremely sick, and didn't have a diagnosis and didn't know what was wrong with her. 

But [after] a few years, after taking a break from Le Tigre they wanted to put out - her and her bandmates - wanted to put out, "Who Took the Bomp?" - the Le Tigre documentary. I suggested to her, at that point, that I thought it was a really, really good time for her to tell her personal story. I also should mention that Kathleen is a good friend of mine and so there were a bunch of us that were very concerned about her health. Kathleen didn't know what was going on and, you know, to be quite frank, she didn't know if she was going . . . if she was gonna live.  

She'd been getting really, really sick, and nobody could figure it out. So, not only were her friends worried, but also her husband, and she was really worried, and we thought this is a really good time to preserve her legacy, and for her to tell her personal story. About six months into the filming, she was finally diagnosed.

And how did that come up? So it came up in the middle of the film? She had been very sick . . . you started filming and then she finally got a diagnosis?

Correct. Half way through production.

And what was your reaction to the Lyme diagnosis? How did you respond to that?

Well, I think that I was really relieved. You know, I was really, really relieved. I thought, "Oh, my God, this is it. The diagnosis is Lyme disease . . . that's something you get from a tick. Like, no big deal." I mean I was actually pretty shocked that it was a diagnosis that I thought, at the time, was something that was so manageable and really couldn't be all that awful. So, it was confusing and relieving at the same time. 

Well, now then there's a real turn of events. Tell us about the really strange coincidence about how you got diagnosed with Lyme disease, I guess, shortly after she did. Had you been sick for a while? Did you just suddenly get the symptoms? 

Yeah, well, I mean this is just like a crazy . . . this is like a crazy story. In fact, when I did get sick and found out that I had Lyme disease, I was like, this sounds like a bad senior thesis film. Like I can't have this thing that my friend has and I'm making a documentary about.

What had happened for me is I had all kinds of strange symptoms for five years prior to that. But they had been coming and going. And when they would go, I would kind of have . . . took the attitude: out of sight, out of mind. And I'm kind of a workaholic; I just, kind of pushed my way through it. And earlier on, I thought some of these symptoms were just like due to aging, or stress, or, you know. And I was pretty much in denial about them. I wasn't, to be honest, too concerned with my health. I would just push through - you know - eat healthier, go to the gym more. 

When I became extremely sick in the filming of The Punk Singer, I mean, Lyme disease was the last thing that crossed my mind. And, what happened for me was Kathleen was diagnosed, and about two months later, I ended up in the emergency room. We weren't sure if I was having a heart attack and I had been in contact with my doctor and had my sixth upper-respiratory infection of the year. I thought I was having the flu again, for the fourth time in the year, outside of flu season.  

My doctor heard my symptoms; they just very suddenly got extremely bad and multiple symptoms came on - and my doctor sent me to the emergency room because we weren't sure if it was a heart attack; I didn't know if I was having a stroke . . . my speech was slurred. You know, I just knew something was really, really wrong. So I got in a cab, went to the emergency room and spent a few days there, without knowing what was really wrong.

Did you come out of the hospital, with a diagnosis?

No, not at all. I left the hospital, and, you know, it seemed like minute by minute, I was getting worse, and they ran a whole slew of tests there. My partner and myself were completely baffled. We had no idea what was going on with me. I was released from the hospital and I was told, you know, I was kept for observation, to take a look at my heart, and I was released and I didn't have a diagnosis. What I was told is, "There is nothing wrong with you. You are totally fine." And, I was really, really scared at that point because I had seen a lot of doctors in the hospital, and I was getting worse by the minute and they're telling me that "actually there's nothing wrong with you; you're fine."

I guess in a way, that is the terrible seed that drove you forth . . . not only to find out what was wrong with you, but to consider this in the context, of perhaps, a woman's issue because there is this historical pattern of sick women being accused of having a bit of hysteria. I mean, you also, probably had a few doubts, I understand about maybe whether Kathleen was really sick or just . . .

September 17th, 2014 was a day I was going to dedicated to the honor of my father, who was born on September 17th, 1921. He died in 2010 of Lewy body disease, also a disease that has been very 'quieted' in the trainings that doctors get to make them aware in order to diagnose and treat it. However, the irony is that Lewy body is the SECOND MOST COMMON FORM of dementia! (Alzheimer's being #1, which has been shown in legitimate research by a legitimate researcher, Alan MacDonald and his predecessory and colleague since, to have in 80% of cases, Lyme in the brain tissues of those who died and had Alzheimer's). 

I got the idea of tha was how I could honor his birthday when I saw that the article from the Washington Post, in the comment, above, had run this week, and had the tremendous discussion going on in the comments, but they were difficult for me to understand and I knew that had he been alive, he'd have been interested as well, but with his brain as it was the last part of his life, he'd have needed it broken out just as I needed it broken out and made easier to read, in order to learn what was being said at the comments at the Washington Post. 

Then I saw in my Facebook feed, photos that caught my attention of the RIGHT THEN going on in New York City silent protest! Wow, what a day this is! Happy Birthday to you, to my dad, right?

Here is the press release posted earlier in September about the event that took place yesterday. 

truth-out.org/speakout/item/25963-lyme-activists-to-speak-out-at-new-york-times-with-silence-against-silence [100]

AND here is a link to see how it went, from LymeDisease dot org!  I enjoyed the photos and the summary too. 

lymedisease.org/news/lyme_disease_views/nyt-lyme-protest-summary.html [101]

And this is what some of my FB friends who are Lyme literate AND activists and were involved had to say (bolding embellishments from me to make things pop for YOUsers):

Nancy Cleek Dolan (of Missouri): "The recent protest in NY was organized and carried out by those of us who are bedbound, homebound, and/or feel challenged. This did not prevent it from happening, nor from being successful. Jessica, ULA founder, was responsible for organizing this event and managed to do so from her bed. Jessica rallied and petitioned other ULA members, patients, media outlets, and so many more. No matter our condition, or how challenged we may feel, we have STRENGTH. Lyme does not mean loss of POWER."

Paula Kozinn (of New York) posted on her FB places about how the protest was for her, as she has Lyme symptoms that affect functional status: 

"Yesterday, I had a new understanding of how Lyme looks to outsiders. I know what it is to have it. I know when I was stuttering or slurring, and having palsy in my face, I did not answer the phone. When I'm too sick to go out, no one sees me. At the vigil, I saw a group of people who looked perfectly normal, happy, pain-free. I know that there are good days and bad days, flares and remission, and the people who were well enough yesterday to come, did come. And those who couldn't, watched from their beds and couches as the photos came in.

Yesterday was not a good Lyme day for me. But I had told Jessica that I would take photos, and I know that change will not happen as long as Lymies are invisible. So I shlepped down to the Times, and by the time I got there, I was ready to come home. I had extreme fatigue yesterday and the bottoms of my feet felt like I had large rocks in my shoes. I wasn't able to stay for the entire event, so I moved around and tried to capture as much as possible, and I left promptly when the dancers left. It took everything I had to get home. The train ride home was difficult. I couldn't keep my head up and had to rest it on the bar -- a germy thing I hate to even touch with my hands.

But who knows what I looked like from the outside. When the AIDS group got recognized, it was when the SICK ones came out, with IVs and in wheelchairs. We are a group who likes to pretend we are okay when we're not. And we hide like hermits when we are at our worst. Getting ourselves a drink or something to eat, or using the bathroom is as much as we can manage on some days. I had plenty of days when I was at my worst, when I couldn't even manage those basic things.

I think the photos did more to show our suffering, through art, than we have managed to express, ourselves. We all need to come out dressed in Scream masks and black hooded robes. We need to organize bios and testimonials of reputable people and known celebrities, so people will open their minds and hearts to this, so they will look at the science and the politics and be appropriately freaked out.

Even if they have no compassion, they should want to get this fixed, because it is the biggest part of our declining economy that no one is talking about. I used to start businesses, do tons of non-profit stuff, and helped everyone around me. Now, I can barely help myself. Imagine what 300,000 more people a year, becoming useless, looks like in terms of our economy. This is has been ignored by so many for so long, because it is going to take a lot of money to fix. But not fixing it, is compounding the problem."

I wanted to show a photo of her that I thought might represent the fatigue she was talking about and she allowed me to use anything on her FB and I found this one and thought it represented what she was saying about her fatigue level on the day she rallied and 'schlepped' to take photos. 

                  

AND then I found this 'selfie' from another day (clearly as her hair color is different a bit): 

                          

LymeDisease dot org had a topic about Paula attending the protest (same information she provided on her FB that I provide here, basically) -- I learn she is a writer and is writing a book about Lyme. Her FB indicates a website concept for awareness raising too which would serve to connect and help organize this burgeoning group of activits' efforts/websites and information (and the typical various co-infections too) . 

lymedisease.org/news/touchedbylyme/kozinn-nyt-protest.html [102]

Those who work with people, live with people, are a person with these disabling, fatiguing conditions know that some days and 'times', even for weeks and months or years, things are better.  Then often/ sometimes you lose some ground on your wellness, and it shows in your photographs of you (if you get a photograph of you, I have gaps in my photos because of this, in part, for myself (operating under diagnoses in the past from organized medicine of CEBV, CFS, FM and I have not pursued a dx of Lyme or any of the others, I have opted to go by the symptoms and common sense FOR NOW, for me..).  

I hope that this pairing of photos, along with the one of the protest from Paula, which shows the 'normals' (the public who we can presume does not have a Lyme diagnosis as they're walking by looking like the do -- WT_?) and with Paula's words underscores how 'they walk among us'. And hopefully picques YOUsers reading this to think, if they don't already know 'am I one of them? are my symptoms something that might indicate I'm one of them? And hopefully you don't have chronic illness symptoms, and also do not have the 'bugs' (as you can be asymptomatic).

But please, do learn of the issue and become effective as one of those among us who can help to pressure where things need to be applied to create the change that is needed. From aware, to educated, to active, and that does not mean one has to go carry a picket sign, as we've learned here. Just make a phone call to an elected official, follow the story and mostly, learn the symptoms so if someone YOU know has it, you can help them learn if they don't already know.

And that is how it goes, from there. The 'ripple effect'. I'd say there was a BIG SPLASH  in New York City with this awareness, and education event! (when the reporters came out and the students for journalism, from awareness to educated they went. And here -- our YOUsers -- educated if you take the time to be! 

Note that in what Paula wrote, above, she is using the 'official' figure of cases per the latest change CDC made to increase the number by 10x what they'd said before. So ... is 300,000 the actual number? No, it's still low but she's using the official number and I just try to embellish for our YOUsers and remind that it's usually thought to be 1M new/year in the US (and some thing maybe several million now, new/year, see the information I provide for you overall here, you'll see that around). 

So I talked to Paula, who is my newest FB friend at this moment, and she said anything on her FB I could use here so I have included her photos here. Thank you, Paula. Thank you, Nancy. Thank you everyone who is involved ... you know who you are. That is, if you're an activist.  To connect with Paula on FB, this is a page for her Lyme work via her name: www.facebook.com/LymeNetKozinn [86]

But do you know if you have Lyme lurking? THAT is the ultimate question. Perhaps not needing to be nailed down by a laboratory result, perhaps it does, or would be ideal -- in the mean time find a symptom checklist by Dr Horowitz online as well as reading overall and symptoms and the conditions diagnosed frequently by mainstream, organized medicine which have not lead the patients/ consumers to know about Lyme's involvement in the condition. FOR the reasons that I believe are made clear in the information, above on this tread. 

Live and Learn. Learn and Live Better! ~ Mardy

There was a vaccine on the market in the past, for Lyme -- you will see that in the information, above, from what I'd gotten from the Washington Post's website with the September 15 article that provided the incentive for the conversation to ensue which Kathleen Dixon was a great part of, as you have seen. 

This is an enormous topic to understand, it is essentially a 'rabbit hole' -- where you think you're going to go quickly learn about Lyme disease and ticks, and acute, new infections, and then you learn there's the chronic Lyme that's with the same symptoms as what others are diagnosed with that believe they have 'fibromyalgia', or MS, or maybe they only have symptoms and aren't diagnosed. Then you get into why the statistics are off. And then there was a vaccine and now there's a new vaccine maybe coming out, or is it the old one. On and on. ... why won't insurances pay for the treatments, what is the treatment, what do people do beyond what insurance pays for, or instead of. On and on. 

So I'm trying to create a topic thread here that will step new or novice and intermediate learners along the path and bring out the more pertinent things that I see as I go.  This is one. You'll find it at this link to a Google group. I actually saw someone else, another woman with debility from these disorders, post this link on Facebook: (to a google group)  groups.google.com/forum/#!original/sci.med.diseases.lyme/Vrrkct5cR-w/doAMrkyhBGQJ [104]

It is set up showing that it's an email from 2006, she does not disclose, that I can see, who the email is from, which is naturally, the expected protocol for a whistleblower to use. Notice the next to the last sentence, third to the last line. And then the statement of trust and the length of time this writer had established with the source.

I hope this help you understand the history. I also hope it helps YOUsers understand why I have taken up the space and your time and energy (and used my time/energy) to include what Kathleen has to add to this subject. She is difficult to understand sometimes, she just has known so much and for so long, and it's a complex 'mystery' type of subject to try to relate to people. Most people who are trying to figure it out have compromised brains too -- what a mix. Yet they persevere. Because it's important and 'worth it'. 

Many people with these disorders are, it just depends on where we are with things that day, that phase, and what our 'makeup' is about. When there's a legitimate, dedicated person who is so actively working daily on behalf of getting things to change, I think the right thing to do when possible, is to figure out a way to help their message get further. So this is my effort.

"I have a friend that works for the Ct Dept. of Health and he explained
to me what really happened with the Lyme vaccine.
He said that it was not really taken off of the market becasue of poor
sales, but instead it was because of pressure from a state official
that was directly and financially involved. He said that the vaccine
was know never to be safe because of poor testing. The federal gov was
close to a full scale investigation and  they decided to pay a few
individuals 'quiet money' to keep them from running their mouths if an
investigation came about. He specified 3 names to me from Yale
University. At first I thought this Kathleen woman was nuts, but I'm
seeing she may have some valid information. I trust my friend's
information........he has never lied to me in the 30 years we've been
friends." 

April 21, 2015 - I updated the other main thread at Lumigrate about Lyme activism that has quite

a lot about Kathleen Dixon and her group with the Occupy event set for May to July 2015.

Here's the link: www.lumigrate.com/forum/great-imitator-lyme-borrelia-history-and-statistics-can-be-far-whats-reality#comment-2868 [105]

Richard Longland is a resource I have linked to on the 'main topic' about Borrelia, Lyme, Biofilm -- he got his start producing a video/DVD about biofilm and then has gone from there to the 'underlying' or 'coexisting' subject of "Lyme", interviewing the leading researchers doing outside the box of convention research, but who are at established, mainstream research / education organizations (schools). 

Late summer of 2014, he wrote a letter to the editor that ended up spawning comments and he posts about that keeping his fans and followers aware of the progress and saying "don't underestimate the power of one". I guess I'd suggest that it could be more like 'the power of one droplet that creates a ripple effect'.  Here's one of the rings in the ripple effect that his letter created that I thought was pertinent, particularly when you see who the person is and where they work, and what they are paid to do. 

Everyone in this movement is very 'primed' right now, the momentum is being sensed. It is a time of much work and much hope and I see a lot of things 'coming together'. ~ Mardy

There are 37 known species of bacteria that cause Lyme disease, but the current Lyme two-tier test inadequately tests even for the one spirochete it is designed for—Borrelia burgdorferi. Because of this we are missing many Borreliosis infections, and our patients are subjected to immeasurable suffering because they aren't receiving timely antimicrobial therapy. Research shows that such patients might go on to receive faulty diagnoses of psychosomatic, psychiatric or neuromuscular illnesses instead of prescriptions for antibiotics that would cure their infections.

A paper co-authored by Barbara Johnson, an expert with the CDC Lyme program, reveals that the current two-tier method is positive in only 31% of those with erythema migrans (the bull's-eye rash associated with Lyme disease) and in only 63% of those with acute neuroborreliosis or carditis due to burgdorferi Lyme disease. This means that out of 100 patients who have Lyme disease, we might misdiagnose 69 of them, leaving their infections untreated.

Recent research out of Johns Hopkins University suggests we likely aren't using the correct antibiotics. The drugs we are using might be contributing to persistent bacteria and may not be fully clearing infections.

Given the current urgent state of affairs, we should be racing to find better testing strategies that will identify all of the Borrelia species and associated co-infections, and to find better antibiotic regimens that will cure our patients. We need to find these infections early—before life-altering manifestations of cranial nerve palsy, meningitis, myocarditis, arthritis, permanent disability and death.

Nevena Zubcevik D.O.
Resident physician and tick-borne illness advisory board member
Harvard Medical School
Boston

From the Gordon Medical Group's website: (please take the Home link, below and go see their site, they have much information worth looking into).

[110]

ILADEF’S PIONEER AWARD TO BE GIVEN TO A “RAY OF HOPE” CHARLES RAY JONES

And, where I actually learned of this on Facebook was of a share from the Under Our Skin YouTube channel: www.youtube.com/watch [121] . One minute and 24 seconds of video. Standing ovation and seeing a pioneer in his later years, honored, and having his sentiments caught on camera, thankfully.

This was shared by a major activist that came up in 2013/14 after getting properly aware / diagnosed and then treated enough to get back the energy for activism, Divegirl Deb. Her FB page is about Lyme and Eugene Oregon if you're interested.  Many of the people in the group commented about how he'd helped them, sometimes free of charge and while pregnant, and now six years later their child is still Lyme free. 

 I was KEENLY interested to see how Dr Oz's show covered Lyme on April 9th.  As soon as I saw a tick on the backdrop on the graphic over the stage, I was not liking this coverage, but then I also was not at all surprised and had actually predicted this.  Hence, I've not shared things on Facebook that have a tick in the graphic.  Why? Because it's just wrong to educate anybody about Lyme and NOT SAY 'it is apparently spread in a number of ways and Lyme is one of them'.  

They did, at least, say that many people go misdiagnosed or not diagnosed but in my opinion they didn't say it in a way that made people REALLY register that a HUGE NUMBER OF PEOPLE don't know they have evidence of Lyme in their bodies whether they have symptoms to attribute to Lyme or not.  

Then to raise awareness (for what they WANT people to be aware of, but is it really the best thing to be focusing on..., are there Pied Pipers involved or not?), they're doing a 'challenge' to take a bite out of Lyme, where they have people eat a piece of Lyme.  Does this remind me of the walks and runs and other challenges that make people feel like what they're 'doing' is WHAT is the BEST / RIGHT thing to be DO-ing? 

Here's the link if you wish to watch, and I suggest you look around at the information and Seach on Lyme and really investigate the information that I have provided at Lumigrate.  It might take a while, I'm sorry there is just no way around that. 

This is a very complex story and will be more and more in the mainstream, which I've said before -- I started covering the mainstream covering the Lyme story because I think it's going to be used the same as so many other things in the past to scare people, to confuse people, and to get some people who aren't putting in the TIME to learn things and to get in touch with themselves and what they can intuitively feel their way through to what's RIGHT FOR THEM to do or not do related to treating or preventing things.  Similarly, think about how it used to be a good thing to get the measles, now there's fear stories and vaccines and pressure. The flu too. 

Within a week, I just learned, Dr. Oz covered mold and had Dr Shoemaker on as a guest.  Just an interesting combination in such close proximity.  Something to maybe consider if you're reading between the lines and trying to figure out what's what and who to believe (and not).  

Thanks for being here, I hope it's helpful.  Live and learn. Learn and live better! ~ Mardy

As of today, April 13, 2015, there is nothing I'm finding by searching on good keywords to find where Dr Oz's website has anything about the mold segment BUT I did find this where someone covered it. In the same week mold then Lyme is interesting enough if you're trying to figure out what the mainstream is wanting people to know and not know, let alone when they omit one from their website (as far as I could see, as I said). 

I'm focusing on this because there is emerging information from 'lay' (non professional) researchers that indicates that the mark's been missed or intentionally painted to distract people when it comes to these 'environmental' factors being the cause of chronic illness.  A growing number of people are aware of cyanobacteria and it's interplay with other environmental factors and that ultimately what's driving chronic illnesses from A to Z is the growing cyanobacteria (for decades and over a hundred years, perhaps about 200 years I have seen them saying).  

You'll notice in my wrap up on the above comment that I encourage people to read around Lumigrate about Lyme and to also use the Search bar here.  I recommend you also search on cyanobacteria, and something I have been simply calling 'the stuff we all have', aka 'the stuff'.  Turns out there's ultimately one main cause, and the way to reverse symptoms of the disorders labeled as A to Z is ultimately the same too. 

Lyme isn't what we were lead to believe by a number of sources, apparently.  Same for mold.  We can hope that science catches up whether being performed by professionals or amateurs. We can hope the word gets out to people so they can be the most efficient and effective at figuring out what they (YOU!) believe is reality and what is the right thing for YOU to do about it.  

I'm very glad to see the raised awareness about Lyme and mold as they are truly cofactors in a lot of people's (and other things') wellness.  But I feel that there's a lot of smoke and mirrors, monkeybusiness, whateverYOUwant to call it going on as well. But here's a link to something about Dr Oz's show about mold. 

www.wellbuzz.com/dr-oz-general-health/dr-oz-mold-poisoning-dangers-identifying-mold-sources-in-the-home/ [124]

Live and learn. Learn and live better! ~ Mardy

PS - thanks to all who work to get word out to people, to investigate and there are some people who have been unwell that rolled up sleeves and grabbed oars to figure out what THEY think is behind all this 'stuff'.  Tip o' the hat to all.  Again, please search on Lumigrate about cyanobacteria, it may be something you find worthy of your time and energy. 

Cutting Edge and VERY Different Perspective About What Causes Symptoms of Chronic Illness/Fatigue/Pain Essential to Study. Link below. 

Many people who have known they have "Lyme and Company", as it's affectionately called due to there being other bugs that are commonly found in people (and other beings) with Lyme / Borrelia b., tried the diets, the supplements, went to the 'Lyme literate doctors/providers' and saw temporary improvements but often not real "solutions". Some kept looking.

And some of those found their way in 2014 to a group on Facebook started by a man named Steve Beddingfield, who has a self-professed 'hillbilly laboratory' in rural North Carolina.  A hillbilly with a history of microscopy work and photography, who, in his mid-life, developed a very debilitating and extensive case of the form of 'The disease we all have' of the variety labeled by mainstream, organized medicine as "Morgellons".  Singer Joanie Mitchell has been extremely ill (and in ICU in the spring of 2015) with this form of 'The disease we all have' to some extent or another within our bodies -- our brains due to it being in our guts/ intestines.  Intestinal interlopers I simplify it to be attributed to initially.  He has quite a collection of photographs to show people. Here's one.   This is the crux of our problems. And the link below leads you to a topic where more is said about it, same graphic shown there, and much more.

Yes, I say "The disease".  Maybe we can just call it 'The', the way that people around The Ohio State University call it 'The'.  Or I call it 'The Stuff We All Have' sometimes too. It's very simple once a person has enough time to digest that whether the person has what's labeled as 'autism' or 'Alzheimer's' or 'addiction' .... and that's just a few that mainstream labels have starting with the letter A -- hundreds of things to do with mind, behavior, emotion, body, and even spiritual unwellness, I say, is actually being caused per this emerging perspective, by the same 'stuff', and it all responds to the same treatment, and so it's very simply put as 'our disease' by one of the primary leaders in Steve's group. 

Pause if you need to and really let that soak in. I highly suggest it. Taking the TIME and putting some THOUGHT / energy into this aspect right up front will save YOU a lot of time and energy and possibly frustration if you're serious about studying this material.  I've now had enough time to work verbally with people on this information and that's been my experience so far. Months into opting to do the protocol they're still not operating in a way they've REPLACED the OLD LEARNING with the NEW.  They know what we've learned as it applies to them and they know this aspect but they've not INTEGRATED IT fully.  

And unfortunately they're sometimes trying to teach others about it and they're not yet really qualified to do so.  I have enough experience with educating on things to know when I'm ready to and not and had to have some 'guinnea pigs' that were getting the early not experienced version of my method of providing the information to them.  So this is one thing I've learned. Wrap your head around this aspect for sure. Then refer people to adequate resources for help if you're not qualified to do so.  I did, until Steve's group stopped taking new people I simply routed everyone there. Then I asked people to contact me so I could find someone to help them if I wasn't yet able to. And there will be future new groups with experienced people, many very smart, compassionate and 'sound minded' people are going to be coming out of the initial 1,750 in his group at the time I'm writing this in late April 2015. 

Steve's research, which began about seven years ago, lead to finding there is ultimately one rather complex thing causes all our conditions, and he went on to work out a treatment that worked for him. I won't lie to you, it takes a person doing their best to comprehend things we'd call 'science' and 'biology' to follow the trail of information Steve presents. Followers of mine and of Lumigrate know I'd long provided information on 'the overlapping conditions' of chronic illness.  When I first learned of the condition form that Steve had, the symptoms were clearly that of an overlapping condition but with a primary symptom being skin lesions. I remember thinking 'why isn't Morgellons included in the overlapping conditions information I've found and provided on Lumigrate; why am I just now (mid 2013) learning of "Morg"?' 

I'll be honest and say that until Steve was aided by a handfull or so of women who had gotten into the group before I did, or in one case a month after, who took the time to learn what he was relating and THEY felt starting the protocol was right for them and their children in some cases, then also had good results which lead to them excitedly looking into providing more substantiation to support OR trying to disprove it yet finding things that substantiated, I was not 'tuned in'.  Then I tuned in and copied a lot of their information to group it up which I think helped one of them or others too see a need for them to write up things to help others learn.  One has a graphics design background so did a one page version of the protocol.  (Please note this is the first image they did of the protocol and it's currently correct as of April 2015 but they might make further modifications WHICH I WILL PUT IF AWARE at the topics that I link to from this comment.) 

For those who want to be able to read just the words now that you've seen the photos: 

 Again, this is from early 2015. Check for updates by following the link and really studying this information, and be connected with someone experienced who can advise you along the way if you find this is information you'd like to pursue 'doing'.  

This is not easy to REALLY understand at first, and then once you get over a hump, it 'clicks' and then 'everything that didn't make sense before makes sense now'.  Worth the time.  There were many things about progressive Lyme thinking that didn't make sense to me, which was totally explained once I digested what Steve's theories teach. 

I've had to dedicate myself to thing that were difficult for me to learn, and make time I'd not planned on to cover this information because I felt it was what needed to be done. For myself and for others. I have a bachelor of science degree and had to take quite a lot of science to have a career in occupational therapy as I had in the past before going into education of people about their occupation of health care information and proactivity. I call that group of allies 'the Et Al.'s'.  Steve and the Et Al.'s are making the emerging perspectives in causes and treatments learnable. That's what this comment on this thread is all about.  Please keep reading. 

Steve developed a 'protocol' after he'd treated himself, and started a group on Facebook in 2014.  I have been in the group for eight months or so at this time, and there are about 50-60 people who have been in it longer than I. It's capped currently at around 1,750 people as a workable size for educating others who are learning, considering trying the protocol and/or doing the protocol or components of it, and then asking for guidance and input. And they share their 'healing journeys' too. There's someone in the group dedicated to herding those stories together and unfortunately the documents/files in groups on Facebook do not function well on many devices people have to access the Internet.

Steve et al. really wanted the information to reach people and they've been completely non-proprietary and appreciative of my putting the most important parts of the information (and maintaining it when I can as they update) onto Lumigrate. I was the first to put it on the Internet, early in January 2015.  It was uncharacteristic of me to cover something so yet-proven, but I had a forum about activists, Facebook, the Internet's contribution to health care moving forward. So I put a topic there.  Which got a lot of attention. So I took that as I always have, as an indicator of where I need to be putting my efforts. The 'demand'.

Not to mention 'one of those 'coincidences' when I went to look into the livestock medication that's part of the protocol so that I knew where to obtain it since the joke was '20 bucks at Tractor Supply was all we needed and we all spent our fortunes on the doctors and their treatments'. There's a little more to it than that, as red reishi mushrooms (medicinal mushrooms) are the other component in terms of 'medicine', plus you have to clean up your water source and your home and your foods, in terms of cyanobacteria being in them and then getting into you. There were many workers that day, some of whom were gabbing to each other and not asking to assist me. Others were helping other customers.  

I had a feeling that I was just supposed to keep looking and not approach them. Middle age has helped me refine this 'inner wisdom / compass'. Then as I gave up and started to head toward the people who were gabbing, a woman with a vest from the company came out of nowhere and asked if I'd found what I was looking for.  I told her I wanted to look into the forms of fenbenda...... 'zol' she finished my sentence. I 'had the fenben word down pat but hadn't gotten the whole word of fenbendazole down yet.  She knew exactly what I was talking about. "Is it for a horse or a goat?"  

I said 'for people' and explained there's a fabulous smart research guy in North Carolina who's come up with a theory of what's causing all the complex chronic conditions and his treatment protocol is (I explained it briefly) and the joke even is that we all could have just spent $9 at Tractor Supply instead of going broke and ruining our lives trying to get well with what the concierge doctors and product pushers lead us to believe was the answer.

We had a 'wow' and hair going up on our arms moment plus a little tears welling when she related that she'd been studying why her husband was with the symptoms he had. The had been in a home with mold when his symptoms started. They moved and she was fine in a week. He's not been well since.  Her background in veterinary medicine and science had her very, very close to having figured out what Steve had, and this was 'the missing link' for her.  I left and went straight to my computer and created the first topic about the man with the microscope, the theory, the images he takes of bacteria and 'the stuff' making us sick, and his Facebook group.  

I met Steve in a very good Lyme group on Facebook, which I noticed has become a secret group now.  I'm glad I did.  I hope YOUsers at Lumigrate will benefit from his and my time working on Facebook to make the connections that allow our work to have the ripple effect it has.  I believe we'll be synergistic, meaning 1 + 1 = greater than 2. 

It was, I believe, meant to be, so that I could bring the information to the Lumigrate YOUsers.  I currently wonder how many topic threads on Lumigrate I started since launch in March of 2009 which I'll be putting a version of this comment thread on in order to help people who find that thread become aware -- if they read on and put in the time -- of this innovative theory. I wonder how it will unfold in the future. How many people will be helped. What interferences we may encounter; such is the nature of the truth-tellers, after all.  

I relate all this so people might realize I put time in watching the group, getting to know Steve and the et al.'s / gals, and have done my own experimenting with the aspects of the protocol. I've guided some people to the information and then followed what their experience was. No problems. I've done my own process with portions of the protocol and have almost four months under my belt, no pun intended. I've taken it low and slow. I've had to back up and try a different combination of things.

I've listened to my inner guide about what's right for me, which is repeated everywhere in the protocol and frequently by the et al's / admins / experienced ones in the group.  I've helped people get into the group and the most recent one has already contributed a lot in relating her symptoms and changes and 'story'.  That person was about to go to the ER to get a better diagnosis on the form of the symptoms they were having and her symptoms were so much like PosterGal's and they didn't live all that far away from each other in the US, I asked PosterGal to do a little mentoring and she obliged and then took it to the group outwardly ASAP for everyone's benefit.  This helped me, every day something would be said that further confirmed that this is truly (I think) MEDICAL HISTORY IN THE MAKING. 

I've prepared topics starting in early January of this year, and continue to update, modify and improve.  Steve and his dedicated group of people helping pull and formalize information and find substantiating research and patents are still in the process of creating that information and polishing it.  The more people ask the same questions over and over, the more they see the need for making the information more understandable. I forsee they'll have a website about this eventually. And a book.  And a place in history. Until then, we have to make our way around the expected issues that come from something brand new catching on like wildfire. So I make sure to tell people on my threads at Lumigrate to contact me on Facebook or go to the About at the home page of Lumigrate and call me or email me. Calling's best as you know I've not missed a message somehow. I will call back if it's a valid call.  

This is being done by a group of people who have been varying degrees of debilitated.  Myself included. I had a baffling relapse of symptoms that hit suddenly in late 2010. My 'environmental medicine MD' couldn't figure it out much aside from that he had me re-test heavy metals through Doctor's Data and I'm glad for that --- it makes me have some good labs to show there's barium and other things in the environment from the geoengineering program that were perhaps part of the problem. Ultimately, this protocol of Steve's gets to The Root of The Problems. All I can say at this point is I can see things improving in my skin, my mental clarity, my balance, my weight, my energy, my tolerance.  

Perhaps our graphic developed in 2012 will help: ©2012 Lumigrate

People who had seen me after 2010 but not in 2014 or early 2015, which is only two, have both instantly said 'wow, you look good!'.  I am good! I was even 'good' when I was in the relapse, I'm just better and on the way onwards and upwards and hopefully THIS TIME, for good! I have, since 1985 had successes with improvements and then relapses.  Why? Didn't get to THE ROOT. This does, according to Steve et al.'s research and documentation.  Go if you wish and learn and decide for yourself.  

Most of the et al. gals/ The Et Al.'s have children who are also unwell; naturally each generation gets a magnified condition from the last, generally.  Some are single and have had to keep working in professions that have nothing to do with health information preparations, yet they're doing marvelous work preparing information for people.  

Yesterday, I transferred that gal's first draft information about cleaning and laundry to a new topic at Lumigrate, for instance.  I've interviewed or had conversations privately with 2/3 of the leadership of the group -- all but one has spoken of what a spiritual path they feel they are on to be providing the solutions and be part of this growing ripple effect movement of what could possibly be 'the treatment' for people to do to maintain their wellness and improve it.

I've put in a substantial amount of time since Christmas 2014 dialing into the information -- my attention was caught and interest piqued when I saw the gal I've called on Lumigrate "Poster Gal" posting a blitz of links to patents and having a funny yet passionate 'hissy fit', because the patents that have been obtained and products NOT marketed lets everyone know that this has been known by the conventional, organized medical/industrial/etcetera complex.  

Maybe the Lumigrate YOU! Model is going to help at this point.  See how many providers an ideal team could have on it, for those who were following the 'integrative medicine' format for addressing a complex chronic illness condition? And as you see, there's the instructional cue 'Who Would You Add?'.  Many people today have gotten some of their best advise from boards and groups on the Internet and Facebook.  So people could be adding 'Mardy and Lumigrate for information guidance'. And what I'm suggesting is that people consider adding Steve and his protocol and the et al.'s who advise about information with Steve's protocol.

There will STILL BE AMPLE NEEDS as people rid themselves of the intestinal interlopers and the damaging effects subside, for residual damages to be dealt with. We'll benefit greatly from using the providers we've had at our disposal before, but there will be enough GREAT ONES of them to go around.  EVERYONE is unwell in some way or another unless they've been aware of what's causing illness and addressing it. People who have had life-long struggles in the mind and with behaviors and addictions, or other more physical problems, often don't identify themselves as unwell.  What they think of as well or unwell is simply not the way I and others look at it. We all have this in common, worldwide (unless people have been able to escape the changes of the microbes that are changing on Earth).   

With Steve's protocol, there might be the addition by some people of a colon hydrotherapist, it's imperative proper elimination continue so that the stunned interlopers can be evacuated before they much get absorbed by the body. Or in my case, a naturopathic doctor (the one from the formative materials on Lumigrate who provided the full barrel syndrome model and information) in 2006 had focused on my intestines. The only doctor who had ever put hands on my belly and said 'you have a bunch of stuff in your intestines, you're not processing and eliminating correctly. And he advised me about that.  I've let him know about this protocol and information and he might expect some patients coming in who have learned of the protocol.  

And I've told Steve that the beauty of my website having been on the Internet since 2009 when 'we' launched with information about hypothyroidism, detoxification and cleansing, supplements and disease prevention, the power of the mind/body connection, and IgG food allergies and food sensitivities is that people who are 'catching up with him' in terms of what they're knowing / learning, will be searching for those topics. Some will find Lumigrate. Or they'll know of Lumigrate and then utilize our trove of information. Which I can easily set up to help anyone with the things from A to Z find their way to this emerging cutting edge theory and protocol.   Expect to find a version of this in many places on Lumigrate if you're looking around the forums. 

Lyme, today in 2015, is a burgeoning topic.  Mainstream media, part of the medical/industrial/etcetera complex is making it so.  And the topics I created at Lumigrate about Lyme and many, many other subjects can easily had added comments to them, such as this one, which will then allow people finding it to be steered to this cutting edge information.  

Be prepared, as always at Lumigrate, for this being a journey that a person needs to commit TIME and ENERGY to.  These are not topics and my format and method is not to provide things people read in the normal attention span of Internet users.  

I care about finding people who are ready to do the WORK involved in STUDYING and becoming MASTER-full.  Think of it like getting a Master's Degree, perhaps.  Or taking a weekend seminar where you dedicate 16 hours or so over a two day period of time. Or you make sure you get an hour in a day, or a half an hour. Get 'inside your head' and look at how you spend your time, find the things you can cut out or cut back on and look at what PRIORITY your wellness should have (or that of a loved one, pet, human, livestock, garden, plants etc.).  Yes, the information includes treating pets because ideally you treat the whole system and environment and get your 'load' you're getting in you down.  

Which brings me to "load theory", which is a method of explaining chronic illness brought to us in recent years by an environmental medicine MD.  I appreciate his teaching me his analogy, it was similar to the full barrel syndrome analogy that our launch-era naturopathic doctor had brought to his presentations and I developed as a core concept. Here's the graphic and below will be a link about how to find the topic provided by the MD about it at Lumigrate, as well as something from the ND as well.  That give you the foundation and pulls our historic information into today. 

LOAD THEORY on the Left           ............................................                Full Barrel Syndrome on the Right. 

Unload the boxes after elevator's crashed or to prevent ...........               Drain or bail the stuff from the barrel. 

     Load Theory © 2012, Lumigrate                               Full Barrel Syndrome ©2009, Lumigrate

Can a person ONLY do the 'work' of taking the products and making their water and other things they put in their mouths and noses/lungs and on skin with fewer toxins and get resolution of symptoms? I think not; they'll have to address the things of mind and spirit as well.  Will they have an easier time addressing the psychological traumas and the spiritual stressors or lack of spirituality? I think so. Will these varying kinds of providers want to support something like this? Many will have restrictions on them by the associations they're affiliated with which guide and mandate what can be said to patients.  This is why I quit being a typical occupational therapist and started being a guide and teacher and supplier of information and encouraging people to be proactive in their 'occupation' of taking care of their wellness. 

An example I think of most often is relative to vision therapy, as not only did that allow me to go to college the second time and be a success not a failure as a student, but I currently keep tabs on a young student whose mother and father eventually heard me and others saying 'go to the Denver expert vision therapy optometrist' and she's now years into not much liking to do her home program and made very slow progress.

What would have happened had we known about this FIRST, if the parents felt this made sense, and THEN had her go to the behavioral / perceptual optometrist and her OTRs for therapy and special glasses with prisms and filters and whatever she might need.  I needed both prisms and colored filters to have the best resolution of symptoms from my spectacles.  

I wonder in the future if my prescription will change, once the intesting interlopers have gotten out and nothing new's been venturing up the vagus nerve and into the brain, essentially causing syptoms of brain injury.  I was a patient in the first year as an OTR of the Denver expert who was the first to say 'your brain sure acts like it's had an injury'.  Much food for though. 

Food; another subject to highlight quickly here. Eating clean and away from glyphosate (chemical in Roundup) and GMOs and all that is advantageous, in my opinion. Study and decide what your opinion is.  BUT people who did the protocol have tried all kinds of things because of financies perhaps, or because they'd been on restricted diets made popular by the Lyme and chronic illness providers who knew there were reversal of symptoms coming from diet.  Everyone had improvements no matter what their diet was.  So there's that which I like about this protocol as well. It's a hard sell about the food changes. Again, study is needed by everyone to decide what to do and then up to you to do or not do.  Sounds like something Yoda would say. 

If you need help, Lumigrate's home page's About area is where I update the ways to get ahold of me.  I can sometimes assist people and other times I suggest other experts, many of whom have provided topics on Lumigrate, such as life coach (who I initially didn't know in person but ended up getting to spend about ten hours with when she was working in Grand Junction when we were both doing our work in Grand Junction). 

Below is the link to the primary topic about cyanobacteria / algae, and from there links can be followed to get into the information about Steve and his 'et al.'s' as I call them (those assisting him), his Facebook group, his protocol.  I foresee there will be additional new groups to guide people to which I can update there.  I foresee this being a ripple right now with only a few thousand people having heard about this, which will rapidly grow.  Steve had foreseen the spring of 2015 bringing an exponential growth of the bacteria that are causing the problems in our environment and thus in everything living on Earth.  

It essentially has to do with thing that were locked away in frozen ice and snowfields being released with the warming on Earth as well as possibly things coming in from the cosmos.  How do they get here? Anything that comes in from the cosmos, the most commonly thought of being meteors.  And who knows, maybe there are other more 'far out things' than that! I'll just stick to the essentials here for now.  Essentially an intricate interplay has gone on with things that are 'symbiots'.  The bugs basically morphing into new things that have occurred very rapidly in terms of how various species can adapt.  

Near where algae blooms (of cyanobacteria) occur, there are exponential increases documented and reported on even in mainstream sources --- even with the way the medical/industrial/etcetera complex tries to suppress statistics being reported by not educating doctors in things they could diagnose, or making ugly time-consuming hoops with extra steps for them and their staff to have to 'do', perhaps getting them looked at by the organizations that rule things, etc.  I provide links about that on the topic at the link (and the links from there).  Poster Gal has a great example.

She was diagnosed with the M.S. version/label of 'The' disease we all have.  They moved states and were in an area near Lake Erie before the algae bloom that was very much in the news in 2014, and naturally the algae was of significance in the water before a 'bloom'.  Before the bloom her neurologist in a town of 7,000 said he had about 65 patients with a label of M.S.; by around the turn of 2014/2015 he reported to her at a following appointment there were now 'about 400' on his books with M.S.  This is found similarly with ALS, Parkinson's, etcetera.  This information is documented at what you'll find at the following link as well. 

AND most of all, I want people finding this comment on this thread to know that what Steve's research has indicated would lead people AWAY from using natural or patented medicine forms of 'antibiotics', which is one of the primary treatments of many of the "Lyme-literate providers." This was my gut 'reservation' about what I came away with from watching the movie Under Our Skin, or about many of the treatment protocols I learned of for those treating people who had Lyme.  

In recent years I presented a very wide variety of information in the forums at Lumigrate about Lyme and company and various provider types and websites.  Some believe you need to 'eradicate' the bacteria and one which did so but it was the most extensive website I think I've ever seen (a Canadian woman).

Others said you just get things improved and let the body take care of things and keep things in balance, reduce the 'load' on the body systems.  This made sense to me because I'd had complete wellness for only a few years in my early 30s after encountering an exceptional chiropractor and being very dedicated to his methods, and had symptoms of Lyme and company as a child, as did my mother, really (and perhaps her mother). So this life experience helped me to not 'run with any of the balls' I saw about Lyme. 

I am now running with the ball about 'The' ... being that most of us do have Lyme and company in us and MANY other things. But Lyme isn't what we've thought Lyme is, Steve et al. present a different perspective and one I think is imperative to study for anyone who believes they have symptoms of Lyme or have done testing to tease out a confirmed diagnosis. Here's the link to 'The Ball', so to speak:

www.lumigrate.com/forum/algae-toxins-blue-green-cyanobacteria-water-underlying-cause-whole-gamut-illness-conditions-z [126]

Live and learn. Learn and live better! ~ Mardy

The links I stated, above that have to do with supplemental, foundational information at Lumigrate on:

Load Theory by Dr Spurlock, MD: www.lumigrate.com/forum/are-you-loaded-what-i-see-causing-illnesses-soar-children-through-elderly [127]

as well as this topic about detoxification strategies and how to reduce burdens, always good advise but not addressing this cutting edge aspect naturally (as it wasn't 'out there' yet as it is now/ 2015): 

www.lumigrate.com/forum/body-detoxification-maintain-wellness-or-reduce-illness [128]

and

Full Barrel Syndrome and complex chronic illness/ fibromyalgia, etc. by Dr Lepisto, ND

www.lumigrate.com/forum/my-interview-naturopathic-medicine-cfs-and-fms-cinda-crawfords-website [129] -- where you will also see the full barrel model, the load theory model and the way these things dovetail, similarly to if you take the time to read the topics provided by Dr Spurlock in the layer of providers after Dr Lepisto's layer of invited expert providers. 

Again, take your time. Make time. Put the effort into this as if your life and that of your family, and quality of life, depends on it.  Because it does! ~ Mardy

On Mother's Day, in order to 'catch' the people going to the BLOG tab at Lumigrate, I created a topic titled about what I want all mothers and others to know, and then link to all the topics on Lumigrate that build upon or toward Steve Beddingfield's research and the information I'm putting 'surrounding that' to reinforce, that way there's one 'master link' that I update whenever I add anything.  So this is that 'master link'.  

I added on a comment on Father's Day geared towards men, fathers and about dogs, since my father loved dogs and due to that love that he shared with my mother prior to my being born, I grew up with dogs and interestingly at Father's Day timeframe was working with my first 'case' that included a dog since learning Steve's perspective and providing it at Lumigrate.

Suffice it to say you might have trouble getting a horse to drink from the trough, but dogs are hard to keep from going to the pond where we're now aware what is brewing in the water. Challenges of how to implement things 'in real life' is what the old occupational therapist in me (my profession from mid 30s until late 40s, when I started Lumigrate and shifted to health education focused), APPLICATION of things in how we occupy our time, that's the key to success after becoming educated (which is after 'awareness').  

.... www.lumigrate.com/blog/what-i-want-every-mother-and-others-know-then-go-there-cause-all-problems-presented-emerging-re [1] 

Please take the journey .... no matter where you live... to a great website offered by a fellow Coloradoan, who has created a nonprofit called Colorado Tick-Borne Disease Association.  This is a Facebook friend of mine that created it, and I felt it has very good information. It sounds like we have similar passion for helping people with their wellness!

I wanted to highlight on Lumigrate that there is a significant issue in Colorado and other states sometimes not thought of as an environment for ticks / Lyme, and they've done a very nice job with this website.  So here's the link --  

coloradoticks.org/1148-2/ [131]

I hope you take the link or came back and are benefitting from the selections I provide. 

Live and learn.  Learn and live better! ~~ Mardy

Among the people learning around in groups on Facebook, in a group with Lyme in the title, I saw a share to the following area of the Tired of Lyme dot com website.  Many people said they'd used many of the products and techniques suggested, and really loved this website.  So I wanted to offer it to YOUsers of Lumigrate so YOU will be able to more easily find your way to the beneficial, best sources that people talk up on Facebook without spending all day on there trying to sort through the unhelpful / harmful groups and providers and the ones not really doing much of anything of significance to move people along, AND GET THE GOOD ONES.

www.tiredoflyme.com/detox-methods.html [133]

This is what you'll find, so you know ..... and then can better determine to GO (or not).  Again, I suggest GO.

Detoxing
Cleaning Up The Mess Left By Dead Spirochetes

 Picture - Standard type, relaxing looking woman's head as she relaxes

​Detoxing is an essential part of fighting Lyme Disease and achieving relief from a herx.  Many people just think about what antibiotics to take and let the body do the rest from there but killing the bacteria is only half the job.  One must help the body remove the endotoxins that spirochetes release in the body once they're killed.  In fact, well over 90% of the time you're not feeling well is due to a a body that is not detoxing effectively.

The Golden Rule Of Detoxing

The golden rule of detoxing states that if you're going to intentionally help your body kill a foreign invader, you should intentionally help your body remove those foreign invaders from your body.

A herxheimer reaction is not an immediate reaction to spirochete die off but more of a result of an accumulation of toxins over a period of time.  You can kill off spirochetes and have no herx reaction as this is due to the body's ability to effectively remove the endotoxins the spirochetes release, in a effective manner.  When you start to herx, the body's tactics for removing the endotoxins are overburdened due to an accumulation of endotoxins. 

This is where detoxification comes into play. Certain detoxification methods are used for near immediate relief from a herxheimer reaction, such as an Epsom Salt Bath or Burbur Detox.  Other detoxification methods such as Milk Thistle or Cruciferous Vegetables work in the long term by continuously cleansing the body of endotoxins in small amounts, which in turn decreases the likelihood of encountering a herx in the first place.

Detox Methods

You can rate each detox method that you've used for its effectiveness.
↓
Is Tired of Lyme missing a detox method?

Submit A Detox Method

Then it goes to a great interactive listing of things they've provided to date on detox methods, as you see, above, people have rated and are asked to suggest others to add.  Again, please take this resource seriously. 

I'm going to also offer a link to the comment I have created about what German auricular medicine specialist MD Claus-Peter Kessler says about herxheimer which is a little different slant on things, and I believe it's very much worth considering spending a bit of time reading, thinking about and integrating into what you are doing and believing IF YOU FEEL it / THINK it is valid and 'for you'. 

You will find it on this thread, which is in the forum area devoted to Facebook (and other Internet/ social media) sources (but I focus on Facebook).  www.lumigrate.com/forum/claus-peter-kessler-md-facebook-learn-test-order-system-disrupted-his-mantra [134]