Do you see your self/yourself/YOU! or someone you're responsible for and/or care for/about diagnosed or undiagnosed but with symptoms of any of the following conditions? I'm posting the % of people in the various groups that will have "pyroluria" and the main 'handfull' of category groupings: (Some say 'pyrrole disorder', others 'pyrole disorder'.

You'll notice that many sources will give percentages, such as the source below, and those will vary from source to source as well. Realize this is emerging information that's being researched by credible people and organizations but it's 'outside the box of convention' and will take some processing to figure out what information YOU think is the most appropriate.

This is a very long topic, with much to whittle away at learning or to overview and select which parts you wish to read in depth. I think this is an incredibly important area that conventional and outside the box providers and consumers are often totally unaware of and therefore worthy of a great bit of attention.

I took the link that's offered in what's in the box above, for the 2008 story / interview, and highly recommend you do as well. Here's a paragraph that will directly apply to most people who are looking for information here:

You will see below a more complete listing of symptoms which can be experienced if a person has undiagnosed and/or improperly treated pyroluria. This is a topic emerging in functional medicine, not recognized, and even 'naysayed' by the orthodox/conventional medicine stronghold, so it's understandably not yet well known and it's also not as 'straightforward' to get information about, so keep that in mind as you read on. But I hope that I have sorted through what I could find on the Internet for health professionals and consumers alike to have a streamlined, thorough experience as a Lumigrate YOUser on the subject of pyroluria: 10-11% of Americans, OVERALL, will have pyroluria. Among certain groups of people there will be a much higher % than 11% as you can easily see.

Something which was even MORE difficult to find, which eventually I did find, was that one of the experts in the US from way back about this, who basically thinks he re-vitalized this discussion years back by picking it up when it was off in the ditch being not quite figured out totally, believes that Lyme / borrelia causes the pyrole disorder condition to onset. That would be Dr Dietrich Klinghardt, MD. And for those who have not studied the information about Lyme that's outside of he mainstream, organized medicine's circles, we have it in depth at Lumigrate --- and essentially it's thought that perhaps 3/4 of the people in the US have Lyme in them at this point in time, most without having the knowledge that symptoms are from Lyme, and some without symptoms (so far).

Be sure to look over all the info, as there are sometimes opposite advisements about when to take which supplement, and there's one professional who says 'good theory but I've yet to see the results myself, though I'm a big supporter of those who developed the theory'. I had to really HUNT for something like that, though. It seemed like everyone who was talking about it was very supportive of it, and the 'usual naysaying' that goes on from conventional angles is to be expected, you have to learn to respect that as what this is about and interpret it for yourself.

In order to teach 'how to DIY', Search words for researching terms is important to share with YOUsers ... like many of the complex chronic illnesses (labeled and identified as: chronic Lyme disease (aka chronic Burrelia or Burreliosis), fibromyalgia, MS, Parkinsons, Alzheimers, etc.), learning disabilities, and mental/behavioral differences and difficulties ('mood disorder' or 'personality disorder').

"Inner tension" is one of the symptoms that simply heads up the lists and information at various sources, over and over. Seeing that Lumigrate is about an integrative approach with functional medicine, I'm going to present a variety of information from different types of providers --- PhD, ND, MD, and some who don't have D's behind their names yet are on-board this material and are out in the mix with information, services, and products to address it with apparent validity. Naturally, decide for yourselves, that's the key for YOUsers to know -- looking to others is for resources and guidance but YOU're ultimate the decision-maker about YOU.

Important to note: there are more than one location to get test kits in a DIY way, which is empowering to the patient/consumer to be in control of of getting a laboratory involved. You'll see them below in the information from the various sources I suggest. One is located in Illinois, which has an $80 test for pyroluria, and I learned about them by their leader having placed an incredible statement that just showed her 'chops' on a blogsite that had some things that weren't well shored up. She righted the thread and was impressive enough that I went to see the website she had left in her signature information. It wasn't 'spam', she clearly had processed what was being said and addressed things and just left her signature information if anyone wished to know where to find her.

And I've seen a YouTube video by some woman who was nice to make a video about pyroluria, and she said the labs were $35. You might be able to find that independently, it's just nothing I had come across in my process and I'm not seeing how super low cost labs can have good quality; I've heard there are some places that do hair analysis for $10. How can they afford to open the mail and send you results for that, let alone run the sample? So I've stuck with some sources I felt were demonstrating knowledge and hopefully quality of service follows.

This could be a topic that will be time and energy consuming for those who are interested, but at least the solutions presented have a reasonabe price tag affixed to them. I hope that if YOU put in the time and energy to take in and study the information presented at this topic, you'll see the 'connections' about information that's generally been 'disconnected', and how this is a 'missing link'. "Infections" being just one of them, which is one of the key symptoms of 'fibromyalgia'. And I have added in various differing "opinionators", below, that I have found the most interesting to consider about this zinc issue, whether it's pyroluria or otherwise. The symptoms (as presented by ONE source I wanted to present here for YOUsers to learn of, see credit where credit is due, below):

Editing this topic in early November 2014, as I've found a new resource that I think is really good that I'd like to add in up near the top AND say that when I have brought this up to people since learning of it, people want to just take more zinc and B6 and they don't seem to realize that this is NOT like saying 'vitamin C is good to take and this is how much of a range' -- this is complicated. It's something that people should thoroughly study and then decide how to proceed, and have qualified advisors if you're not at an expertise level to try this type of thing independently. Join groups on Facebook that can help to support education and skill, and connect to other resources.

and I got that link by clicking on the teaser version of it at the website, here is the link:

Summary: A review of KPU and its impact on Lyme Disease with Dr. Dietrich Klinghardt MD, PhD

In order to see a fairly DIY setup at the start, and get us thinking outside the box, here's the laboratory in Illinois that I referred to, above. (And you'll see that the BetterHealthGuy's article addresses this as well). So look into PyroluriaTesting dot com (link below) -- you can't get more right on than that! You'll see that they offer additional consultation services through a couple of physicians located nearby who have come through the orgnaization that trains about this.

The pyroluria test is $80, and I've seen a video on YouTube where a woman states that you can get testing for $35 --- I might be wrong, but a business can't proficiently open an envelope hardly for a $35 fee. It's about half a dollar now to send a piece of mail inside the US.....

I look for QUALITY in the progressive realm and offer options based on what I sort out from the pile on the Internet. With pyroluria, there's not a TON of information, but I really believe this is a major issue and am focusing on it considerably.

Therefore, I've put this laboratory up 'front'... but you'll see at the bottom of this, the Integrative Psychology information will include testing you can order from them and they also have consultations. They're outsourcing that and are a practice of NP and MD, whereas this is a laboratory that outsources to the providers. And who knows what undisclosed arrangements go on between businesses that are connected -- sometimes there's nothing and other times there are things that are illegal or unethical or both.

I also want to add in here that this well-known laboratory has a link about pyroluria testing but the information at the link to me is vague about how this is going to tell you about pyroluria. I can see it'll give you zinc and many other things, and heavy metals ... They are a resource that providers I've worked with recently have been referring patients to generally, particularly if they don't have insurance and are paying out of pocket for all the labs that are needed for the provider to give direction to the patient/client/consumer.

Many options today which simply require more time and energy on the consumers part to investigate, so hopefully I've pared things down and save YOU time by finding and posting the best (in my opinion) to this extensive 'core topic' at Lumigrate.

I've selected this protocol for pyroluria from a naturopathic doctoring perspective, which was prepared by a Bastyr graduate, same as the ND who was the first to grace the 'stage' on Lumigrate in two videos, so I know it's a quality program she's been through; Sherri Jacobs, ND, CNS. It can be found at the NDNR website. It was strange, though, they give her website link in the credits, and when I clicked to follow out it took me to a 404 dead end within the NDNR website that said something like "some guy must have gotten here before you and broken the link". Which -- if a person doesn't understand what a 404 error is, they're going to really be confused. But I did want to include a naturopathic doctor in the mix here to remind people that in their live communities or online, remotely, YOUsers might get an ND on team YOU!.

Essentially, we aware that there's a 'divide' in the naturopathic community because the traditional naturopathic doctor programs were extensively in-person, and similar to going to a program to become an MD or DO. Then the online and distance learning revolution came and programs sprouted up which didn't give as solid an education, yet they ended up with the same degree and initials after the name. States that didn't license NDs couldn't regulate what type of program, etc.

So that has been shifting and changing in various states in the US and you'll need to familiarize yourself a bit with what goes on where you are, but they're wonderful resources for this type of information, when it comes to the diet and how it affects mind, body, and spirit.

Dr. Jacobs, at the link, provides a very easy to follow overview and protocol with a case example, so I encourage you to go see the details. Here's the link:

(For general information about naturopathy and providers: www.naturopathic.org/ [23])

You will see that the above resource doesn't have a lot in their reference list, just two things. One was Joan Mathews Larson's book Depression Free, Naturally, so I looked for a resource online for "Larson, pyroluria" (for those wanting to learn more about Searching these things out independently as we want YOU to become experts at this too):

"The most exciting research that we utilize is the identification and treatment of a genetic chemical imbalance called PYROLURIA, which is responsible for many signs and symptoms in nervous diseases." You will find this powerful statement as the lead-in to a new heading and section which I am going to provide a portion of here so that you can see the kind of information they provide in this topic. I think this is a very good website for information and I want YOUsers to see a good example, with a portion of how they cover pyroluria.

This is one portion of the topic, and this topic is just one topic amidst a website of similar content. Please go see what else they have if you're intrigued by this, below from Depression Free, Naturally. [I will bold things that they don't have bolded at the source for YOUsers who have difficulty reading due to their fatigued brains (which they'll think is 'eyes' but it's as much the brains for perception. If a person has pyroluria they have a higher likelihood of learning disabilities so bolding can help with readability for them/us. (as I have many LDs, and, I recently realized, pyroluria)]

The second resource she used is from Jeremy Kaslow, MD, of Santa Ana, California. I will provide next, the information from his website's pyroluria topic. His website has similar style on a number of other topics, some of which are interrelated to this, so please go and see these sites! Pyroluria, An Inborn Mistake

This disorder is connected to an abnormal production of a group of body chemicals called pyrroles. Pyrroles are a worthless byproduct of hemoglobin synthesis. Most people have very little if any of these pyrroles circulating in their bodies. We know that through measuring levels of pyrroles excreted via the urine. Some of us, however, are not so fortunate. Pyrroles are abnormally high in about:

Pyrroles do damage to us by binding to aldehydes throughout our bodies and causing their excretion along with the pyrroles. B6 (pyridoxine) being an aldehyde is systematically removed from its many needed sites and a severe B6 deficiency results. Equally damaging is the further scavengering done by the combination of B6 and pyrroles. Together this duo also seeks out and attaches itself to zinc and so both of these essential natural chemicals (B6 and zinc), are promptly dumped into the urine.

The loss of B6 and zinc is a psychiatric disaster. Many seemingly unrelated symptoms develop. Our interest in pyroluria is that it creates symptoms of inner tension, and bouts of nervous exhaustion and fearfulness that can be traced back to childhood or teen years. Without proper identification and treatment, pyrolurics slowly tend to become loners to avoid stressful situations. Their lives become an ongoing struggle to protect themselves from too much emotional and physical stress.

An abbreviated form of The Pyroluria Screening Test found in Depression Free, Naturally is shown below. If you answer postive to several of the items, you may wish to consult the full version in the book. The purpose of the test is to help identify physical and neurological symptoms that develop from losing large amounts of B6 and zinc.

B6 is the co-enzyme (meaning it is absolutely essential) in over FIFTY enzymatic brain reactions where amino groups are transformed or transferred. B6 has an important role in your nervous system's balance. It is required to utilize protein for energy. Brain depletion of dopamine and serotonin occur without B6, creating ongoing anxiety and depression. B6 slows the conversion of pyruvate to lactic acid. Elevated lactic acid creates anxiety.

Zinc deficiency also results in multiple disorders. The brain uses at least sixty zinc enzymes so zinc deficiency has a marked effect on mood states. Anxiety and depression have been observed in patients who develop zinc deficiency from intravenous feedings. These patients experienced prompt relief from their acquired depression after zinc was supplied.

Zinc plays a starring role in our immune functioning and our brain development and performance. A deficiency means poor growth and poor sexual development. We will suffer with a raft of "emotional" problems: irritability, fatigue, apathy, amnesia, depression, as well as poor appetite, and poor sense of taste and smell. In the last decade, over 50 papers in professional journals established the link between anorexia nervosa and zinc unavailability.

Zinc has the job of removing toxic metals from our brains, particularly copper, lead, cadmium, and mercury. Without zinc to do this, high copper levels result in paranoia, violent behavior, mood swings and schizoid behavior. High lead leads to learning disabilities and behavioral disorders. Mercury toxicity results in anxiety, emotional liability, exaggerated responses and insomnia. Elevated cadmium causes hyperactivity, hallucinations and central nervous system toxicity.

Maintaining adequate B6 and zinc in our bodies is an absolute MUST! It is easy to see how their continual destruction can turn a normal human being into an emotional cripple. The gradual changes in over one hundred body systems of pyrolurics slowly take their toll as the years pass. Now you have the opportunity to investigate for yourself the possibility of pyroluria being the cause of your ongoing anxiety. If you score high on the test, take heart. PYROLURIA is correctable. The important task is to identify it.

What would an MD, if you had one who was 'into this kind of thing' teach you about pyroluria, if you had one? If you lived in, or could visit Santa Ana, California and have the means to become a patient of Dr Jeremy Kaslow, he'd likely say much of this to you in person. Or give you a handout, or have a seminar about it where you could go and learn in-person. Fortunately, Dr Kaslow has provided a great deal of information at a website -- nothing fancy but it's organized really well. So, from www.drkaslow.com [26], the pyroluria topic. I'm providing one topic from his website to 1) demonstrate what you'll find if you GO TO the website as a resource for other information and 2) I'm able to make it easier for our brain-weary YOUsers by editing to make things easier to read (bolding, shorter paragraphs, adding commas, bulleting of lists -- I change nothing in the content however!) Enjoy the read! Please 'go see the sites' too!

Pyroluria is a genetically determined chemical imbalance involving an abnormality in hemoglobin synthesis. Hemoglobin is the protein that holds iron in the red blood cell. Individuals with this disorder produce too much of a byproduct of hemoglobin synthesis called "kryptopyrrole" (KP) or "hemepyrrole." Kryptopyrrole has no known function in the body and is excreted in urine.

Kryptopyrrole binds to pyridoxine (vitamin B6) and zinc and makes them unavailable for their important roles as co-factors in enzymes and metabolism. These essential nutrients when bound to kryptopyrrole are removed from the bloodstream and excreted into the urine as pyrroles. Arachidonic acid (an omega-6 fatty acid) also becomes deficient.

The effect of pyroluria can have a mild, moderate, or severe depending on the severity of the imbalance. Most individuals show symptoms of zinc and/or B6 deficiencies, which include

Most pyrolurics exhibit at least two of these problems. These individuals cannot efficiently create serotonin (a neurotransmitter that reduces anxiety and depression) since vitamin B6 is an important factor in the last step of its synthesis.

Many of these persons appear to benefit from SSRI medications such as Prozac, Paxil, Zoloft, Celexa, etc. However, as with all mind-altering drugs, side effects occur and the true cause of the mental difficulties remains uncorrected.

In addition, these individuals often have frequent infections and are often identified by their inability to tan, poor dream recall, abnormal fat distribution, and sensitivity to light and sound. As you can imagine, an SSRI will not correct these metabolic effects. More healthful benefits may be achieved by giving the appropriate supporting nutrients.

Pyroluria is detected by chemical analysis of the abnormal pyroles in urine detectable as a purple (on testing paper) metabolite in called "the mauve factor." Most persons have less than 10mcg of KP per deciliter. Persons with 10-20 mcg/dl are considered "borderline" pyroluric and may benefit from treatment. Persons with levels above 20 mcg/dl are considered to have pyroluria, especially if the above symptoms are present. The chemical analysis for KP is difficult due to the tendency for this chemical to decompose. Sometimes it is necessary to repeat the urine test to properly determine the level of KP being excreted.

To make the initial diagnosis, no vitamins or minerals should be taken for two days before the urine is collected (This is to avoid false negative results). The specimen should be handled properly as well - collected and frozen immediately and protected from any light by being placed in aluminum foil. A repeat test to determine if the condition has been improved may be helpful.

People with mild-moderate pyroluria usually have a fairly rapid response to treatment if no other chemical imbalances are present. People with severe pyroluria usually require several weeks before progress is seen and improvement may be gradual over 3 - 12 months. Features of pyroluria usually recur within 2 - 4 weeks if the nutritional program is stopped. Thus, the need for treatment is indefinite.

Pyroluria is managed in part by restoring vitamin B6 and zinc. The type of replacement therapy is very important as zinc must be provided in an efficiently absorbed form. Vitamin B6 is also available in several forms. Both zinc and B6 supplementation need to be directed by the doctor as too much can be toxic, use of the wrong form will be ineffective, and avoiding competing minerals and supplements may be necessary.

Other nutrients may assist in pyroluria, include niacinamide, pantothenic acid, manganese, vitamins C and E, omega-6 fatty acids and cysteine. Food sources and nutritional supplements containing copper and red/yellow food dyes should be avoided.

Because pyrolurics are stress intolerant, they seem to be especially vulnerable to cumulative stress over many days. For example, parents of a pyroluric child should use discipline that is "short and sweet" rather than "long and lingering." It is not unexpected that pyroluric patients are prone to relapses, especially during illness, injury, or emotional stress.

Much of the information we have about pyroluria is from the work of the late Carl Pfeiffer, M.D. in the 1970’s. Some references include:

Irving DG: Apparent non-indolic ehrlich-positive substances related to Mental illness. JNeuropsychiat, 1961;2:292-305.

Hoffer A, Mahon M: The presence of unidentified substances in the urine of psychiatric patients. J Neuropsychiat, 1961;2:331-397.

Irvine DG, Bayne W, et al: Identification of kryptopyrrole in human urine and its relationship to psychosis. Nature, 1969;224:811-813.

Pfeiffer CC, Lliev V: Pyrroluria, urinary mauve factor, causes double deficiency of B6 and zinc in schizophrenics. Fed Proc, 1973;32:276.

Jackson JA, Riordan HD, Neathery S: Vitamins, blood lead and urine pyrroles in Down Syndrome patients. Amer Clin Lab, 1990:Jan- Feb:8-9.

Jackson JA, Riordan HD, Neathery S, Riordan N: Urinary pyrroles in health and disease. J Orthomol Med, 1997: 12;2:96-98.

Out of the United Kingdom, I finally find something -- as I've been searching and looking -- that might provide some 'balance' from an outside the box provider. I actually didn't find this resource until using search word undermethylation. You'll see that he provides a simplified and common sense approach to this matter, and credits the developer of the theory OVERALL, but clearly is saying he's not sold on this himself but thinks it's something that should be included in his educational efforts to people. There's much at his website relative to mental health and nutrition, so it's a good resource to be getting into the mix for people to look around in general, perhaps. www.balancingbrainchemistry.co.uk/40/Histapenia-Histadelia-Under-methylation-Pyroluria.html [27]

I wanted to provide the link to the Pfeiffer website: They are based out of Illinois (the midwest of the US) but they show that they travel to various cities and set up appointments to meet with interested parties. They have a very nice website and are a nonprofit organization. They had originally focused entirely with the young end of the spectrum of age, but due to the underlying problems found in young people with behaviors being what contributes to dementia, they also have a tab for "Alzheimers".

However, in further Searching and reviewing of information, I came upon William Walsh, PhD, who is in the same area of Illinois with his nonprofit institute, whose information includes that he used to work for the Pfeiffer Institute, left about five years ago and that Pfeiffer is not longer in existence. You might learn from their website, however, if it's still up, as it was in March 2014 when I created this topic or April when I was adding this NEW information in about Dr Walsh and the cache of information that comes up when you use his term 'pyrole disorder'. Having been a part of a clinic startup in 2008/9/10, I can only imagine what all might have occurred, I'd just keep it in mind and continue looking for resources that seem to 'fit your bill'.

I think the whole history of pyroluria (or whatever you wish to call it) is INTERESTING because if you're reading this carefully, you'll see there were maybe some friendly competitors at play in this pyroluria discovery and groundwork about five decades ago. It reminds me of something similar with Drs. Alzheimer and Lewy, two researchers working on the same thing at the same time and discovering different things; plaques and bodies, respectively. One's a well-known disorder and the other was one I suspected was not yet discovered, but it actually had been and nobody I worked with or knew about (or read about) ever had a LBD diagnosis. I've never found anywhere WHY it was Lewy was relatively 'unheard of' until recently, despite it being more common than EVERY other type of dementia except Alzheimer disease. Things that make you go "hmmmm"!

Despite extensive patient care experience with the elderly since 1996, until 2009 and my father's diagnosis of Lewy Body Disease, I'd never heard of it. I'd not been taught about Asperger's in my conventional medical/occupational therapy program either, by the way. After my father "totally fell apart", fell down even, and had episodes thereafter with lack of reality, he was missed diagnosed despite my saying to everyone in the path of his health care that the 'dementia' diagnosis they'd given "didn't account for the symptoms", he clearly had something like Parkinsons yet they were totally missing that and putting in feeding tubes and all kinds of things. All those decisions were made with me available by phone but not able to be in person due to a massive snowstorm for four days. By then the plan was set and it was real interesting to go along for the ride after that. (Other family was present taking care of 'business' and we were in contact at least once a day but -- nothing's stronger than the 'weakest link' and with the HIPPA laws as they are, that prevented me from talking directly to staff and having to go through the present family members, who were my father's preference anyway.

He was one who would stick only to what was allopathic and science-based so that's how his treatment progressed and it was amazing what modern medicine does with a situation like that when they have good insurance. (Just sayin'.) And I'm from the school of patient care where you allow the patient their right to do or not do, so I ironically went along for a 1-1/2 year ride with that whole situation that was VERY educational and I am an grateful for it. Same as the medication bungling that occured with my sugery in 2006 that had me in bed for 24 hours loopily thinking 'I can't believe this can happen in this good a hospital and city known for medical care and with my knowledge -- someone HAS TO DO SOMETHING'. So I created Lumigrate within 1-2 years.

For anyone's benefit who's reading: I had pushed to get him to the primary care doctor for years and he had refused. I'd worked with families like these professionally. It's so much easier to be one of the itinerant workers who comes into a situation and the real responsibility is falling on the shoulders of the family system. And he didn't have lifeline because his paranoia about someone knowing how to get into his home. And that had been something I'd grown up with: we had left the keys in the cars so people wouldn't come in the house and hurt us, they'd just take the car if they needed one. I had symptoms I now realize were from pyroluria, most likely, very young, such as "worrying" when I'd go to bed about things like people coming to the house to harm us, or it starting on fire. I was given a night light but couldn't remember to turn it off in the morning and so he took it away. He took away my camera for no reason, throwing it in the trash bag in one of his visits after bedtime to go through the bedroom I shared with sibling. So you can do your work as an adult on these issues that the mental health experts will all attribute to behaviors and stress, and they've typically not looked at the underlying biochemistry of the body (which includes the brain) that are driving or at least feeding into these behaviors. I hope by sharing my story from my perspective today it will help light bulbs come on for readers whether providers or consumers.

Later when I'd have pains in my legs I'd worry I had cancer like the popular movie of the day. Oh, man, do I want THIS information to get to YOU! Young and old, and anyone in between. How differently my life might have been had this TRUTH / information not been sequestered and kept from getting out to people. I understand it sometimes takes a while to get TO THE TRUTH and that was the case with pyrole disroder/ pyroluria, but why it's not gotten out to the 'outside the box' providers that I've hired personally to help me, or to the providers who have shared part of what they know on Lumigrate for YOUsers' benefit. So far at least! I have let the most recent tier of experts all know about it -- they were all unaware and were enlightened by what Lumigrate provided.

My poor father, he was not a complainer when it came to himself, he ruminated about things and was very negative, but he had so many signs of pyroluria, it's just staggering! And really special to me that I stumbled upon this information a month ago when researching for someone wanting information about mental health/ addictions / treatment in the Front Range of Colorado and I knew of a facility on the Front Range of Colorado (see addictions/pyroluria topic in the mind/head forum or find the link, above) and they had new resources on the website that included this OR I'd just missed it the first times I'd gone. Never looking back with regrets, only at the present and looking forward. On we go with MORE about pyroluria ---

What if a psychiatrist were on team YOU! ? What would they say about pyroluria?

I've been a follower since 'discovering' Emily Deans, MD, and her 'evolutional psychiatry' blog the weekend that "Newtown" happened in December 2012. I told people I'd provide my answer to the question on everyone's minds: why are these things happening? Since autism spectrum disorder was in the mix in the media story from day #1, I went to certain Search words that lead me to Emily Deans. I like to provide a 'balance' of information on any topic at Lumigrate and this one is no exception. You'll see if you follow this link about zinc as an antidepressant that she refers to pyroluria at the very end of the topic. BUT she says 'the general population' -- doesn't that mean the average? And 10% is not the average. So I hope that there's a LOT of looking at the various aspects that zinc affects the 'general' as well as the 'special' population, however you'd define that. Here's the link to her Psychology Today article about zinc, the brain, and pyroluria : www.psychologytoday.com/blog/evolutionary-psychiatry/201309/zinc-antidepressant [32]

Dietritch Klinghardt, MD of Germany and Seattle, Washington, USA

I knew of Dietritch Klinghardt, MD as one of the "Lyme Literate" doctors, as he is one of the MDs in the documentary Under Our Skin, which I viewed when it circulated on the Internet for $0/free in recent years. And please keep in mind that Lyme is now an 'umbrella word' -- you know how Forrest Gump talked about the box of chocolates of life? Well, I talk about the box of crayons that are the chronic illnesses -- same basic reasons and many of the same symptoms.

So I am pleased to introduce Dr Klinghardt to Lumigrate's YOUsers if you're not already familiar with him. His website for The Kinghardt Academy offers this at the link about chronic disease, after a nice introduction about lead poisoning in the Roman empire times, mercury taking out famous composers when being treated for a sexually transmitted disease. If you keep looking around at what's online from him, you'll see a shift in what he presents and more recent work is about electromagnetics and energy medicine, etc. So, he's a very 'out of the box' provider that shares about his shifting to some extent, in what I viewed and read. But as you'll see, things are included, below, that explain these things, such as his foray into talking about 'Codex'. (Read on. View the video, learn or re-fresh about it depending upon where YOU are at with your education 'all this stuff'. Yes, it's a lot. No, if you're looking for fast answers and solutions this is not possible. If you don't put in the time and energy at some point, your wellness is going to suffer for it. I hope people will find and interact with the information as early as possible so they can best strategize for how to stay as well as possible, or return to as well a place as possible.

And to answer a question right up front: The medical term for white spots in the nails is "leukonychia", and sometimes the experts toss the word into the salad of words as they speak, but overall "white spots on nails" is what's said the most often. So leukonychia is one symptom of pyroluria, and pyroluria is one word that's easiest when it comes to all the variations, which you'll see Dr. Klinghardt goes over, below, AND specifies that if you want to get a thorough reference list of what's out there about the condition you need to use all the search words.

We've covered fingernails as a 'teaching platform' or put in point, since early in 2010, and I'm going to provide the link here to that topic if you wish to go look at it at some point: There's a link there to bring people here as well, so you can go in a loop with links if you wish. It was from our formative year when we were utilizing some talented women who had been disabled from fibromyalgia to write a few topics on Lumigrate about what their areas of expertise are in, and one was a nail technician/esthetician and then we had expertise from an environmental medicine MD and ND add on and 'converse'. www.lumigrate.com/forum/nails-what-they-say-about-body-and-what-do [34] . If you go, you'll see that I've done my homework to share with YOUsers about the differences when Searching with 'white spots on nails' versus also adding 'zinc deficiency' to the search; it's basically what sorts you to inside the box versus outside the box of conventional, allopathic sources. A good exercise for YOUsers to learn, I felt.

Thankfully, he's done that for us and provides that in his resources if people wish to simply utilize his shared resources. I like that he teaches the tricks to the trade AND then sets you up with what he has to offer in such a generous way. Naturally, everyone has their fans and their detractors so we always teach YOUsers here to study the topic thoroughly enough and decide for YOUrself who you are going to follow in terms of advise. We're just, basically, doing what I just said: being generous with what we have to offer at Lumigrate based on doing our research and telling YOUswers how we go about it so YOU become as empowered and capable with wellness information as possible.

Since Lumigrate's cornerstone is the YOU model and our core concept is helping consumers and providers alike with finding the various resources/provider types to put on your own YOU model, or for those of your clients and patients, whenever we can provide a new 'dot' that 'connects the rest of the dots', it's a 'GRATE day', and I feel this information about pyroluria/KPU,etc. will 'be the missing link' for many providers and consumers, alike. Our focus is going just the right amount 'outside the box', into functional medicine and integrative medicine where you're going to the underlying causes (plural, typically) to address the symptoms if there is a lack of ideal wellness. Ideally everyone would be in prevention mode but in today's complex world, virtually everyone has some sort of symptom or a whole host of symptoms.

In this video (or by reading over the written notes I provide), you'll see that Dr. Klinghardt and others were close in the past, for many years and even decades and then he was fortunate to connect with a doctor who had also picked up the threads and this time knitted things together, integrated them, and connected the dots for his patients. Dr. Klinghardt then adopted it for his clinical practice and after a year presented it at this 2009 conference which was videotaped and then published to YouTube in 2011 (by someone else and perhaps unrelated, I'm not really sure of the relationships within the Lyme literate community.)

Under Our Skin was eye opening, and I highly recommend seeing it. The link, below, to Dr. Klinghardt's website will take you to where you can find it from his website but his link takes you to the official link where you can watch a trailer or purchase a DVD it says; I've been able to find it free online in the past -- naturally, these things change all the time so you might have to some checking.

One of the stand outs from the film was the map showing where the cases in the US (and world) have been reported -- it's spread everywhere and in my opinion what state a person has lived in should not even factor into the equation in terms of suspecting if it's Lyme or not when someone has the symptoms. Coming from Colorado, this has been a hold up in my case in the past. You'll see that I've created a topic recently about Lyme now being thought to be transmitted sexually. I learned this years back from the film and was waiting for other sources to be picking up and writing about it -- it was, per the movie, a theory that was not yet being shown to hold water.

After something's been out for years and there's been no retraction -- that's one thing for validation; "time will tell". But when it's standing up to scrutiny and being circulated in other sources, that's added validation, so I thought it was finally time, 2014, to include it for our YOUsers at Lumigrate, and have created recent topics about Lyme and suggest the documentary as a resource .. with a caveat, and it gets back to the thing I hope people learn at Lumigrate or otherwise have at the top of their 'filters' -- "follow the money".

I've wondered about who funded the film, I've now communicated with someone who is affiliated with the organization. My concern was and still is, that the ONLY treatments shown in the film are ones that come from BigPharma, and the ONLY experts shown doing research or treatment with patients are M.D.s. No D.O.s, N.D.s, PhDs, DVMs -- no, no Doctor Doolittles. It just was something I 'noticed' and "I'm just sayin'...." But I do recall that Dr. Klinghardt/ his clinic were one of the places patients who were shown in the film went.

THEN I found him as one of the major YouTube resources when I recently researched the word "pyroluria", which was worked into a very small component of a very nice 30 minute video about an innovative substance abuse program in Loveland, Colorado. Irony of that is that not only does the video open with the trails I learned to mountain bike on in 1992, the treatment facility is in earshot of the integrative clinic that helped me with my 'baffling' case of what was ruled out as not being MS back in 1994/5 -- the MD knew of a simple, inexpensive and barely invasive way of finding out that I was as allergic as you could be to dairy and highly allergic to a protein in wheat (not gluten, it turns out). So there must be a concentration of 'innovation' around Loveland!

The link to the topic where pyroluria was mentioned briefly by the Inner Balance Treatment Center's clinical director (who I somehow knew through working at the University Health Center in the early '90's): www.lumigrate.com/forum/addiction-recovery-and-biochemical-restoration-function-and-integrative-medicine-inner-balance [1] . The treatments at this center look at the underlying, root causes for a person to use alcohol or other drugs for a variety of feelings they have that make them feel unwell or uncomfortable, such as anxiety. This is a clinic founded by a former head of medical programs for space flight at NASA, who you'll see if you take the link/trip to their website. They look for pyroluria in both tests and symptoms of feelings/behaviors.

Keep this in mind that it's to your benefit to look into the providers you are going to gain education or seek treatment from and there will be, always, those who discount any provider outside the box and well known enough to get the professionals hired to smear on the Internet -- that's just a fact of how the system works is to hire people to discredit those outside the box in an attempt to dissuade people from seeking advise and treatments outside the box. (And there are some who simply don't understand how expensive it is to do things, particularly when insurance won't pay for what you provide and they don't 'get it' about how it's just easier for the patients/consumers to have the provider selling them things they're suggesting --- and the provider can stay in business helping people who want that kind of help.)

Also, keep in mind when you watch or read my notes of the video, they are 'drafty', you'll see if you look over them, below. But you can see that Dr. Klinghardt says repetitively what a frustration it is that a $55 test is not being done more often. This condition affects 11% of people (in the US, I presume that statistic is for). Are YOU one of them? I suspect I am based on my heavy metals challenge results from 2005 and 2010. (My father was so curious about what would be found, he paid for my testing as a 45th birthday present. After he passed when I was 50 I had a retest done -- these are the more expensive tests that you'll hear Dr Klinghardt refer to in terms of how we're often running the more expensive tests and not the less expensive ones. I also was benefitted by a $55 urine challenge test out of a Lakewood, Colorado laboratory to test my iodine absorption, which found I only absorb 50% of available iodine, not the usual 90%.

Look at the YOU model -- in my case, mine has a holistic / 'cranial' dentist (in addition to a general dentist, we proved the 'money's worth' part of second opinions with THAT one and it's covered elsewhere in forums for details ...) the holistic dentist working on cranial restructuring, which leads into things to do with the endocrine system). Please spend some time drawing up your current YOU model of providers and then dream a little bit perhaps and draw up an 'ideal' or 'dream' model if money and time and energy were not factors. I think I'd put Dr. Kinghardt on mine!

Dietritch Klinghardt, MDs Presentation on HPU / KPU / Pyrolurea at the

L.I.A. Foundation's 2009 Annual Conference

Please look at Dr Klinghardt's website, it has a lot of interesting information. Link: www.klinghardtacademy.com/ [37]

My overview of the video --

While this presentation was given to a professional audience at the LIA conference in 2009, there is a real balance of 'dots' about Lyme disease, autism, and overall environmental medicine concepts where a lot of these 'dots' connect if you're able to put in the time, energy and focus. I hope that my providing some notes, below, of the highlights helps with that process, that's something we do for our YOUsers that makes it more streamlined to look over if you want to invest in watching something, for one thing, and if you're a visual learner or that helps reinforce what you hear at the presentation, all the better.

The presentation to watch takes just two hours and he speaks very slowly and in a relaxed manner, so it's a relatively easy two hours if all you're doing is watching and learning. It's not that easy to do the notes, however, as he is presenting a lot of information here. I found him very holistic (body, mind, spirit whole person) and he has some funny stories to share. He also clearly understands the 'game' of medicine in the world, and doesn't seem to be hung up on the frustrations of 'the system' at hand, he includes great stories that show how you simply adapt and do your best with what's available and keep plugging away.

From Roadblocks to Recovery

June 25-28, 2009

At 7 minutes in, he talks about 'tomorrow going to the waiting room of my practice and those will be my failures sitting there' because those who have gotten well aren't going to be sitting there. (LOVE THAT! humility it seems ...)

Testing - HPL complex

Comments

Sun, 03/23/2014 - 11:31am

#1 [47]

Mardy Ross

Title: LumiGRATE Poster - Top of the Totem Pole

Joined: Feb 16 2009

Posts: 2032

Further listening resource - Dr K on The Morning Show in 2012

Please go to this link, where you will see the following and be able to listen to a lovely one hour conversation conducted by Patrick Timpone with Dr Kinghardt (towards the end of the hour he covers some fascinating information about hypothyroidism rates not dropping as you'd expect when mercury amalgam fillings in the mouth were less of a factor in the US. He attributes it to computer use and offers a very specific set of suggestions for people to follow related to their keyboard, processor and screen (different issues), combined with the overall EMF information he presents with strategies for decreasing exposures generally and particularly with sleep environment):

http://oneradionetwork.com/health/dr-dietrich-klinghardt-md-ph-d-the-5-levels-of-healing-january-20-2012/ [48]

Dr. Dietrich Klinghardt MD, Ph.D.- The 5 Levels of Healing – January 20, 2012 [49]

THE MORNING SHOW with Patrick Timpone
Dr. Dietrich Klinghardt MD, Ph.D. 5 Levels of Healing

Internationally known for his successful treatment of chronic pain and illness, Dr. Klinghardt combines non-surgical orthopaedic medicine with immunology, endocrinology, toxicology, neural therapy, hypnotherapy and energy psychology. His unique approach to diagnosing and treating diseases and disorders on both the physical and mental-emotional levels recognises that good health is dependent on:

A well-functioning autonomic nervous system
A healthy mind that creates a balanced emotional state
A supportive network of relationships within current and past generations of the family. His teaching includes explorations of the influence of family relationships on health, based on approaches developed by psychoanalyst Bert Hellinger

Dr. Klinghardt joined us this morning for an hour packed full of excellent information. This is a show to listen to and listen to again. Enjoy!

Visit Website [37]

dietrich klinghardt M.D., january 30, 2012

Download [50]

Similar Podcasts You Might Like: ........... (and there are some I'm interested in listening to -- a neat resource thanks to Patrick Timpone, so, ....... again, please GO to the link: http://oneradionetwork.com/health/dr-dietrich-klinghardt-md-ph-d-the-5-levels-of-healing-january-20-2012/ [48]

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate [46] and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

Thu, 06/12/2014 - 1:13pm

#2 [54]

Mardy Ross

Title: LumiGRATE Poster - Top of the Totem Pole

Joined: Feb 16 2009

Posts: 2032

Pyrole Disorder at NPT/NeuroPsychoTherapist dot com

It's always interesting to me when I find these links searching in different ways. Today I Googled undermethylation and intelligence, due to a conversation thread on Facebook -- someone who was talking about Lyme disease said they just love a good puzzle, such as the story of Lyme. Or stories, since there are more than one out there about it's history. (Read between the lines on that and just know it's a loaded topic to study and seems like there's a coverup to me going on, same as on a lot of things about health topics.... Just sayin', as the saying goes...). The topic on the link below addresses both undermehtylation and overmethylation as factors that can exist in addition to the pyrole disorder.

I encourage a trip to see this resource, not just on this topic but they have a really impressive group collaborating at the website on the content. It leads off about people with pyrole disorder making everyone feel they're needing to walk on eggshells, which might be something that occurs in some people. I'd seen other sources saying that the leading symptom they educate about is the patient feeling like they have an 'inner tension', as you can see on this topic and the 'companion' thread we link to that is in the mind forum and is more geared about addiction.

www.neuropsychotherapist.com/pyrrole-disorder-for-therapists/ [2]

__________________

Wed, 08/20/2014 - 10:55am

#3 [55]

Mardy Ross

Title: LumiGRATE Poster - Top of the Totem Pole

Joined: Feb 16 2009

Posts: 2032

MTHFR Mutation in DNA - A Missing Puzzle Piece/Chronic Disease

Depending upon the source, 1/3 to 1/2 of ALL PEOPLE have mutations in the DNA, and this is interrelated with pyroluria and pyrole disorder. Clearly fewer people have pyrole disorder than methylation issues, and some people have one, the other, both, or neither. Here are some resources about MTHFR:

A Facebook group started (and currently solely administrated by) a Dr Carol Savage, who has has a good reversal of symptoms of chronic problems that were partly the result of having MTHFR gene mutation(s) is one option: Here's the link: www.facebook.com/groups/230824260340671/ [56]

I'm sure there are other groups, so far that is the only one I have explored and it's kept me more than challenged with all the high level conversation via knowledgeables, and when someone is new and lets people know they're newbie, people are very helpful.

From HolisticPrimaryCare dot net, this ND educator provides a great overview piece, I highly recommend taking the link and going to 'see the sites', as I say.

holisticprimarycare.net/topics/topics-a-g/functional-medicine/1353-mthfr-mutation-a-missing-piece-in-the-chronic-disease-puzzle [57]

Dr. Ben Lynch is an ND (naturopathic doctor, aka naturopath) who graduated from the same school, Bastyr, as our first ND at Lumigrate.com, when initially the website was goign to be the education platform for anyone to learn what our cool new integrative centers in W Colorado was doing. (Videos of seminars plus case examples (which would be done in a way to merge information from several patients and nothing would be about one particular patient, but as a way for YOUsers of Lumigrate to see example that might help them cypher for themselves how to apply Lumigrate's information to themselves or those they were studying and advocating for). (He was also my first personal ND way back from a year before and he'd done my health a LOT of good.) In the ND world there are two 'camps', and they're not fond of each other basically. The ones who go to programs like Bastyr are going to programs that are set up much the same way as someone would become a medical doctor or an ostopathic doctor.

The other type of program's colleges do more online learning and home study and then convene for shorter periods in person. One of the programs, Clayton College, was actually shut down, and there were maybe more. I just like to interject this because it's a continuing issue that is affecting people a great deal.

My home state of Colorado has made new laws in recent years based on this difference that limits what the less hands-on program graduates can treat, leading to shifts in what the providers are doing. One that I spoke with (actually spoke with their staff/ assistant) is so in demand for speaking with allopathic providers wanting to learn her tricks that she'd not gotten to writing the book and getting the website up for expanding her ability to educate. You'll notice that Dr Ben does not do consultations and is focused on education (and research as he's asking for donations you'll see.) Other providers are kind of going underground, it's a very interesting thing to observe and pushing innovation! But a rich resource is MTHFR dot net, and here's the link to the About tab regarding Ben Lynch, ND:

mthfr.net/about/dr-ben/ [58]

I also suggest people take the link at mthfr.net that is about podcasts --- here it is:

mthfr.net/mthfr-podcasts/ [59]

And I really liked the May 2013 podcast of an interview Dr Ben Lynch did with OneWorldRadio. Below the loose transcription overview I've provided here for looking over or reading is the podcast link (and it will download and start playing when you click on it, I believe.. at least that's what it did for me just now).

Folate vs. methylfolate

One in 2 people have the minor form. One in 4 people have the severe form (of the MTHFR gene mutation).

When you get your 23AndMe test results, you get a raw data file and no interpretation, so then you can go to mthfrsupport.com, which is a group he's working with a lot. Data is taken confidentially and privately and they.

He stumbled upon this folate problem about 2-1/2 years before the podcast was recorded. He was about to tell what the interesting thing that occurred that lead him to it when the interviewer let him know there was not a good connection with the microphone of Dr Lynch so he went inside his home and called on the landline. (So for a while they edited in another interview and then they pick back up with Dr Lynch after a few minutes. It's information about cleansing and detoxification, sauna --- relax portable far infrared sauna is what the OneWorldRadio guy, Patrick, talks about. They'd tested it for EMFs and it had none, and he brought up an interesting point about EMFs on your legs when you're in the car. Produced by a medical company in Taiwan that took about 10-15 years of research and development, and he thinks they're more powerful than the $3-4k saunas, and these sell for under $1,000 and are a reasonable cost for shipping if you're outside the continental US). 888 664 6486 .. patrick at one radio network dot com is his website.

Then he goes over Ben Lynch's websites:

mthfr.net

seekinghealth.com -- where he distributes products

drbenlynch.com -- but he's stopped doing consults as he's doing research, presentations, teaching other physicians is doing more overall good than working 1:1 with people with MTHFR issues/ questions.

How he got into this: There are those people that do well no matter what. And others who don't do well, no matter what. When at Bastyr studying environmental medicine, he'd see some people get better, and others would get worse -- rashes, brain fog and not feel good at all. So he was trying to figure out why that was, the difference.

The human genome project opened the floodgates of information. He was working with a patient with bipolar and took another look as he'd not advised about that for a while and found the MTHFR information ... 4,000 articles popped up. (There are many more today.)

The folic acid (synthetic added to food and supplements) cannot be converted to folate in these people with the MTHFR gene mutations.

Folate is an umbrella term for three types of folate

folic acid (which he also calls "synthetic folic acid" often in the interview)
folinic acid
methylfolate - used for DNA repair and processing homocystine.

So when someone says 'folate' you're not sure what they're talking about. Labs are starting to distinguish things more. Very few of them do, and many more need to do it.

Note added 10/26/2014, 3 pm MST. So this made me (Mardy) go to the supplements that I've taken presently or in the past from the two places that I've recommended people go for qualified personal assistance in vendors who sell quality products, USANA (distributed by Robin Thomas) and ITC Pharmacy (co-founded by Alan Jolly and Gary King who appeared a great deal in 2011 and early 2012 before Gary had pancreatic cancer symptoms come on and he passed late in 2012, sadly. Alan continues on at ITC, there to answer questions from those who utilize ITC as a resource. They service patients in all 50 states of the US, or did in the timeframe we were building resources together in the forums at Lumigrate in those years.)

ITCs multi uses folic acid, per the label. 400 mcg, which is 100% of the RDA. USANAs products list it only as 'folate', so I called their 800 # and was put on hold for a short time and the answer to my question of 'what form of folate are used in all their products was answered 'Vitamin D9' after the customer service representative contacted someone there. I thanked her and said that was helpful information, and complemented her on her fast response time and hopped off the phone.

So I will now direct you at this point to a comment on a thread at Lumigrate which I prepared today (on the thread about thyroid testing as the podcast by Dr Ben Lynch was in response to questions from an email about hypothyroidism symptoms), where I state that after a long pause with the layer from that era having settled of experts that included Robin and ITC, where we really had some great conversations on the Forums for our YOUsers with their involvement (as well as Dr Spurlock of Dallas and Dr Kennedy (DDS) of Grand Junction and others), am now bringing another resource to the YOUsers of Lumigrate as a resource to seriously consider utilizing when purchasing supplements -- those forumulated by Dr Ben Lynch (ND) and marketed at his other website (that is not specifically about MTHFR).

www.lumigrate.com/forum/who-why-how-test-hormonesthyroid-etc-gary-king-rph#comment-2734 [60]

NOTE 11/22/14 - Dr Carol Savage (MD) on FOLATE and the forms and a great summary (Dr Savage has a great group on Facebook titled MTHFR gene mutation (or it might be capitalized Gene and Mutation), where I found this gem to mine and place here WITH full credit (and I've made her aware I am going to put some highlights from her work in the FB group on Lumigrate when I think it will help our YOUsers).

Folate is a generic term for all folates.

1. Folic ACID... SYNTHETIC and the only one that gets STUCK in the BBB [FRa] receptor sites and ends up blocking the entry of L-Methyl Folate into the brain.
2. Dihydrofolate [DHF]....natural
3. Tetrahydrofolate [THF]...natural
4. 5-10-MethyleneTHF...natural
5. L-Methyl Folate [5-MTHF]....this is the one you want...natural
The Methyltetrahydrofolate Reductase [MTHFR] C677T gene mutation [SNP] interferes with the enzyme’s ability to properly produce L-Methyl Folate [5-MTHF].

Insufficient L-Methyl Folate [5-MTHF] often leads to the elevation of
Homocysteine. Elevated HOMOCYSTEINE increases the risk for forming clots. But, there are also other reasons why a person may have an elevated homocysteine level.

Back to the Ben Lynch interview:

What's going on with these folks that it's an issue with them?

It depends on diet and lifestyle they're living in.

People who exercise, have a good diet, no new carpets, no new paints --- they're fine, they're doing fine....

But if they have the gene mutation, they're building up the synthetic folic acid in their tissues and have this unmetabolized folic acid, which reduces your immune system.

They started adding folic acid to processsed food in recent decades to prevent neural tube defects, this being aimed at pregnant women or those who will soon be. But it backfired and caused a lot of problems. His theory of one contributing cause of autism is folic acid. So we have this genetic defect that has been around a long time but we've not seen the symptoms until we gave it something to rear up against, which was the synthetic folic acid that was introduced in the last decades.

He said they get pregnant women showing up with symptoms. Here's the cold hard truth of how this works:

If a woman has a pregnancy and she miscarries, there's something wrong with the embryo or the health of the woman, and nature runs it course and the baby is lost, and this is horrible. But those potentially weak genetics are also lost. So the whole survival of the fittest is being messed with by the synthetic folic acid because these weaker genetics are getting into the population pool. Otherwise these kids would maybe not have made it to being part of the population. So they're out in the real world and then are faced with the stressful environment of Earth today, and these are all contributing to autism in a big way he thinks. He mentions EMFs specifically and overall chemical toxins.

Mainly, folic acid is added to grains and cereals, breads, certain milks can have it added, but it's mainly grains, as they're shelf stable and cooking does not destroy the synthetic folic acid (cooking the natural folate renders is inactive). Cooking destroys the active folate in greens. Hence the need to have these raw.

There is a test out there that will measure the unmetabolized folic acid, and that is something that should be run. So if you look at the labels and you're eating a lot of grains and you're taking a supplement, how much folic acid are you getting?

Look at labels and add it up. 400 micrograms of folic acid is what is in most supplements. His guess is people are getting 1 to 3 miligrams of synthetic folic acid a day depending on their diet and what supplements they take.

So this can be a problem for anyone, not just those with the MTHFR gene mutation variants. The enzyme that converts synthetic folic acid into the food form of folate is a very slow enzyme. So the body will only take what it needs to survive and the rest of it is circulating around. There is a very, very slow enzyme that makes the folic acid convert to being active folates, so it can be a problem.

Eat like a caveperson ate, and use proper utensils he jokes.

Obviously, not everyone can eat whole foods every day, so there are going to be some processed foods, just try to get them as 'clean' as you can.

He offers supplements at a good price, Patrick notes. Dr Lynch responds with "We try... some of these are so specialty that you cannot get them anywhere else." He has them made in Florida, Colorado, Nevada, California. He forewarns the manufacturers that 'you dont' want to work with me, I'm goign to be the biggest pain in your butt' and they don't believe him until they get into the process and then some say 'no, I don't want to work with you' because his standards and expectations are so high. Due to them being so customized the price, you can tell he is realizing they're costly but that is the nature of this type of item.

It's a crap shoot for us to take stuff without guidelines and someone who really knows what they're doing, Patrick notes.

A couple of curve balls -- look at vitamin b12. Very well known, and if you run a blood test, it can be elevated and the doctor might say you need to back off of b12. There is no toxicity on B12. If someone has high B12 they might have genetic defect of MTHFR. The B12 in your blood has to get inside the cell via binding to the B12 with a carrier protein, so if B12 blood level is too high, you might have a carrier protein deficiency. Or you might also have a folate deficiency, as folate and B12 work in tandem. If you have B12 elevated in the blood it does not necessarily meaning what is often thought.

He then outlines the forms of B12 and which ones are best and not.

If a person complains they have low energy, is it reasonable to take B12? Dr Lynch said it's pretty safe. Some people will flare from it and others will do very well with it. Patrick talked about his going to get B12 shots and he felt better and then a guest said that the injections that are multi use have preservatives so he stopped before getting the last two. "It's a minefield". Most likely it was not mercury or aluminum, Dr Lynch said, and there are some preservative-free ones so you have to shop around.

Email from a follower was read, who lived in Alaska with history of microtoxin / chronic mold exposure, and MCS being VOCs primarily (lived in a water damaged building). Dr Lynch said this man has 40% reduction in ability to convert folic acid to methylfolate, so his methylfolate levels may be low.

Mold toxicity is a huge problem in Alaska, it's very common due to the dampness, lack of sunlight. Mold loves damp, humid environments ... such as New Orleans too.

In terms of a perfect ratio, everyone's different and so that's difficult. He refuses to do a "protocol" -- he believes in "systems", not protocols. So he suggests you support the mitochondria first before you go to the methyfolate or methylcobalbamin, because these support the detoxification pathways.

...this can take a toxin from the environment

...vitamin C, glutathione, NAC, glycine, etc., then you're building up more toxins,

... then these toxins get into the mitochondria and they get sick, and then you get low energy, muscle pain.

So it's not as easy as buying and taking a full dose at the start.

If you do supplement, start very low. Take his supplement, for instance -- a B12/methylfolate / ____ mix. Break it into quarters and start with that one day. The next day do half. The next day take 3/4, and they'll often feel really good at 1 full lozenge. And they do this for 2 weeks... and say they feel the "best in 20 years" and they think it's a magic bullet. And then they slide downhill. It's a bell curve to envision this hill you go up and down.

If you start to feel good and hit the peak where you feel incredible you stop taking it, until you start to feel like you're sliding, then you ease back in to take it again and you get back up on the top again then stop again. This stuff is strong. You push the pathway and you're making more toxins than you can get rid of them.

Patrick reads another question -- about injection of intramuscular methyl B12 and sublingual is asked as a question and he reminds again of pushing the detoxification pathway too hard.

The best thing is sauna for micotoxicity (mold toxicity). You need to take things such as healthy fats to protect the cell membranes and the brain before we get into the sauna. Coconut oil, olive oil -- phospholipids is what our cell membranes are made of. Phosphotelycholine is what our cell membranes are mainly made of. He's developed a certified non GMO sunflower seed derived phospholipid product with no flavoring and nothing else in it (which was so new he didn't even have it yet for him to take). Cell membrane health is very important, otherwise they break and die. A good website is nutritiondata.self.com (he believes) where you can look up any nutrient. Or Google 'high phospholipid containing foods'. Eggs are a great food for this. "A beautiful food."

He talks about his family, wanting to raise his own food more than they already are. He wants goats and chickens, grows vegies now.

Question: MTHFR C677T is a thermal labile. A1298C is thermostable. What is the significance of the C677T being thermal labile?

The enzyme is sensitive to heat. So if someone has a fever, then their enzyme of MTHFR is more likely to break and then not do work, and so you'll get synthetic folate accumulating and not making the methylfolate. So thermal sensitivity testing is done in a petri dish, and testing what is going en vivo in the human body has not been done to his knowledge. To stabilizie it during fever, take more riboflavin /B2, and methylfolate itself to stabilize the MTHFR 677. And eat raw green leafy vegetables.

These numbers just mean where on the gene the problem is. So genes are made up of DNA. If you start at the beginning of the MTHFR enzyme and move over 677 bases, you'll see a switch from a C base to a T base, so that's what this nomenclature means. All you need to do is take riboflavin, take some methylfolate or eat raw green leafy vegetables.

How to see how much natural folate is in foods. There are 150+ forms of food form folate. It would be very expensive research. There's a good book -- Advanced Human Metabolism in Human Nutrition. Garbanzo beans are high but they have an enzyme that doesn't make it bioavailable, so it's out the window. Spinach is high, then some seeds too. But you can't quantify it you have to eat a broad range of foods.

The synthetic folic acid is bottlenecking the folate, and whole food diet will have you pretty well covered.

I practice what I preach, Dr Lynch said, and "yeah, I own a supplement company but I preach this primarily:" Clean up the lifestyle, the diet, the environment. Uncooked leafy greens, grow your own food if possible. We have to go backgrounds in order to survive. Electronics is cool -- we have this interview, but we need to slow down and go back to things nature intended.

EMFs were asked about by Patrick. Dr Lynch said it's a nightmare. He studied with Dr William Rea in Dallas --- ehcd.com is his website. Worlds leading clinical ecologist. He had people from all over the world when Dr Lynch studied there. Everything in the clinic is natural, no fragrances, no cell phones were the rule.

Dr Lynch said when he turns on wireless technology in his house he feels it. The kids get irritable. It stimulates the excitatory neurotransmitters in the brain and excites it too much and it becomes toxic he thinks, similar to how MSG works. You increase the damage in the brain, and you need glutamate for offsetting that. He thinks it would be interesting to see if any study has been done on the NMDA receptor and wireless technology. He gets a headache from it. So he has a corded phone in his home and his office is in an outbuilding at home and he doesn't want to have the cordless phone in his office so he works without the phone in his office.

A caller, Ron said he ran test results through geneticgenie after the 23AndMe results were available from his submitting for testing.

Ron asks about CBS SNPs (pronounced 'snips'), another genetic mutation. CBS is another important enzyme that also lowers homocyctine. CBS699 speeds it up, so if you have two copies of that, you're increasing the production of hydrogen sulfide which is toxic in high doses. Asthmatics have low hydrogen sulfide and you want to raise that. CBS is a good thing and a good thing to look at.

GeneticGenie.org runs the data through for free, but he asks that you donate to them if you're able. Dr Lynch's biggest thing for CBS snips is molybdenum. Which breaks sulfer bonds apart. So these people (with the CBS anomoly) need to eat less sulfer containing foods. If you start feeling worse, you add some sulfer more back in, take the molybdenum, and also look at the glutathione levels too.

Ron asks about the CBS 360 SNP, and Dr Lynch says to look it up at "snipedia" (so that might be SNPedia, and I think he spelled it out in the podcast but I didn't catch it) whether it slows it down or speeds it up. You don't even need to take the genetic test; If you get headaches easily or you smell like sulfur, you're probably deficient in molybdenum and you maybe have this genetic problem with CBS. Foods high sulfur --- google that -- and this helps a lot of people to change diet. Chicken is high in sulfur. Eggs, garlic. Many people have improved from this. But it's like the bell curve mentioned above, where you have to adjust as time goes forward based on symptoms.

They go over the websites again for Dr Lynch.

Question from Robin: B6 and batane and how they interact with MTHFR before going to meth -- they work in different parts in the methianene cycle. You have the folate cycle. Put your hands up in the air.L is folate, R is methianene cycle. Where these two intersect is where this .

B6 is at the bottom of your right hand and this goes down to CBS and glutathione. Butane is up your middle finger on your right hand. (He went over this fast and so go to the podcast and listen, it's a good model but I didn't catch it all transcribing it here).

He didn't know what Robin was looking for with the question. They will help lower and elevate things, TMG = batane. TMG is important to convert homocyctine to ....

If you're vegan and not eating enough protein, your methianine might be too low. Vegans and vegetarians, he respects this, but you potentially make yourselves very sick. ... your choline levels can be very low which is important for the brain and cell membranes. Some of the sickest people he works with are vegans and vegetarians and you can do fine if you do it right but that is extensive to do and a big learning curve and some people do well. The best food for choline would be soy lecithin, but he is not a fan of soy, and .... phospholipids and that sunflower oil product he has ready to sell soon would be perfect.

You can have a supplement that says it's non GMO. But you have to ask 'what is the starting material'. So if a company says their soy in non GMO, is it becasue it got burned out in the process and the starting material was GMO. If the starting material was not non GMO, he does not want them in his supplements/ products. He's a 'purist type' he says about this.

So he said he didn't know this until recently and the manufacturers were needing to be replaced and remanufacturing the products.

Long term we don't know what GMOs will do to the body. The rise in food allergies is through the roof. What to attribute it to? He has an article on his computer that when they GM a food, they use a bacteria to insert that into the food. So if you GM a seed, say a tomato seed, that bacterium that's in that seed to get the genetic modifiction inserted, that bacteria ends up in your digestive system. So your reaction in the body is the immune system of the gut recognizing it as something to be reacted to.

Patrick said that this is what people are saying about animals consuming GMO corn. Dr Lynch said he was no expert on this but he was interested in it.

Question from email. Morning blood sugar of 160-170. Dr Lynch's response: Look at the evening meal and what it is and what time it is taken in. You eat say, spaghetti at 6 pm, and maybe a little chicken. You go to bed, wake up at 8 am, you're now 14 hours fasting, so the body naturally increases the blood sugar to feed your brain. So eat some form of protein within 1/2 hour of going to bed, whatever you want and is good for you. An egg. Or nuts and seeds but they're hard on the liver. So humus is good. Chicken, fish is good. Just a little bit. Then you wake up the next morning and the blood sugar on awakening should be lower and more stable. That's a quick point to look at, but there are a lot of other possible factors.

(We professed this on Lumigrate from the beginning -- dropping blood sugar is a common reason for the brain to wake a person up --- hey, hey, we're needing more food it says.) (That was something I learned from a D.C. who spoke at a live fibro forum education meeting and then I passed that info onto the N.D. who unfortunately didn't schedule off his time to come to learn from the other provider speaking on a different week than he was, nor did the DC come when the ND spoke. That was in 2007. I presumed when we had live seminars in our new center together the next year that everyone would come to all of the seminars and learn from each other but proiders typically did not come to the other provider's seminars unless they were on the docket as a presenter. Just a little tidbit I thought I'd toss in here).

Raw vegetables. Cooked are easier to digest, and brocholi and cauliflower do best to be steamed as they're hard on the gut otherwise. Lettuce, romaine are better examples for raw. Someone gave us teeth to use, so chew. If you look at your stomach, there are not teeth there. So say you take an egg and you chew it a few times, you get dime-sized things in the stomach and it's hard to penetrate the whole thing. If you chew it well, until it's much, then you have thousands of pioces of egg in the stomach and thousands of areas of surface area -- more than if you didn't chew a lot.

Same thing with vegetables. You'll do better the more you chew. If you belch when you eat or after, you're either eating too fast and taking in too much air or your stomach acid is too low. Take an ounce of water and put a quarter of a lemon juiced into it, and drink this prior to eating. And you can add a teaspoon of apple cider vinegar. HCL is another way that Patrick asks about, but Dr Lynche prefers people use the more natural route with the lemon and ACV.

B6 is critical for making stomach acid, and that can be very low (and Patrick interrupted him to push something he was selling/ advertising, and I think Dr Lynch was maybe about to talk about pyroluria, I'm not sure, he was cut off mid sentence.)

Rebounding / rebounders was discussed -- they both love it . 'Fantastic' Dr Lynch called it. (they have been said to help get the lymph and etc moving in the body is what I/Mardy have learned elsewhere, they did not say this here though, it was an email that came in that was not at all about this interview going on was how it sounded.)

#1 health tip ever from Dr Lynch. Eating more frequently throughout the day, every couple of hours. Eating 3 squares a day was ridiculous and perhaps part of industrialization and modern work schedules. Eat less each time but more frequently. This maintains the blood sugar levels. It's easier on the gut. A lot of people have mental dysfunction and mood dysfunction, addictions. The first thing you reach for is something that will be a fast fix and you'll make much better choices so you don't have to dive for the 'quick fix'. This is a big difference lifestyle thing. He used to not eat frequently because he was busy working.

He'll have a protein smoothie with some chia seeds and berries and healthy oils in it to start the day. Later have maybe an egg. Then later a salad. Then maybe some nuts and seeds. He has water mixed with vitamin C all the time in his office that he drinks. Then have a more substantial lunch with meat and salad. Then an energy bar later. Then a dinner next, then maybe an apple with almond butter on it.

If you're feeling hungry go eat. Chew it well. Have it be balanced and a good food choice. Take a teaspoon of honey if your blood sugar is dropping as it's a good form of sugar and then prepare your little meal. Then don't go that long next time and try to avoid needing the teaspoon of honey.

The diet is without 'carbs' -- make them good quality carbs. Put nuts in the freezer or fridge so they don't get rancid, and in a dark container if you have them out to the light. If they taste rancid, don't eat it as you're damaging your body by eating rancid things.

Look at parents walking aroud with their kids screaming. They're needing food. His family will go into the store and just eat things as they go and then turn in the wrappers and pay for them. This works in the US where they live but his wife is Russian and so over there the security guards stop them.

He can eat wheat just fine in Russia. In western Europe or the US he cannot eat wheat.

They discussed his amazingly powerful and diverse probiotic and he said to start it on an evening when you'll not be in public the next day as it can cause flatulence if a person is really needing what's in it and they haven't been taking it.

THE LINK to go listen (please do!) is:

192.168.1.1:8181/http://www.oneradionetwork2.com/mp3/health/challenges/05.28.13_lynch_ben_naturopathic_doctor.mp3 [61]

__________________

Sat, 09/06/2014 - 5:00pm

#4 [62]

Mardy Ross

Title: LumiGRATE Poster - Top of the Totem Pole

Joined: Feb 16 2009

Posts: 2032

More About Pyroluria (HPU / PKU) and Lyme / Borrelia

A very popular website about environmental health issues is Planet Thrive dot com, which has a great article at the following link:

http://planetthrive.com/2010/04/hpukpu-protocol-for-lyme-and-autism/ [63]

And you'll see they refer to Scott Forsgren, so this PDF has an article about pyroluria and Klinghardt by Scott Forsgren (also known as The Better Health Guy):

http://www.publichealthalert.org/pdf/2010/2010_05.pdf [64]

I found these at a blog about Lyme with a cheerful blogger saying 'sorry I hadn't been tending to my blog's comments or adding new topics but it was because I found this whole new and complex thing to study and it took me a few months' (not a direct quote, I was summarizing/ paraphrasing). I felt better. Well, in a way I felt badly as they'd found the pyroluria connection -- THRILLED as I was, clearly, as I was as it is a huge 'missing link', I think -- in 2012, two years before I did. I've read in The Mood Cure that the esteemed Julia Ross (author of The Diet Cure and The Mood Cure) thanked the person who clued her in about pyrole disorder, back in 2002, and she was just starting to incorporate that information into her treatment approach at the time she was writing The Mood Cure. So I hope to do my part in making more people aware of it, sooner than later, hopefully.

I related to what this blogger wrote, as I'd taken a few months to study geoengineering before posting about that after my Aha! moment when finding out about that unfortunate reality on June 1, 2013 and seeing how significant the health issues could be from it. THEN I got BACK to Lyme information after having someone cue me to inquire about alcohol treatment on the Front Range, which lead me to see the video that had the pyroluria word in it. From there I found Klinghardt, which then got me BACK to Lyme. So here we are, the wagons are getting in a good circle at Lumigrate I think!

Someone who's avatar name started with M posted this: And he give his name and a website link, as you see:

I have proof that Pyroluria is definitely Not genetic but rather a very common, multi-resistant INFECTION. You can't gradually reverse a genetic disorder with natural products but you can reverse Pyroluria. And you can begin to feel the Anxiety (also OCD, Agoraphobia, PTSD, & ADD) subside, stop a Panic attack, & calm the strong urge to drink in about an hour. This is absolutely for real.
OCD, Phobias & the other mentioned problems are some of many different manifestations of Chronic Anxiety caused by the same basic issue which is Infectious Pyroluria.
Once a person has Chronic Anxiety it demands a response or outlet of some kind.
Please do your own follow up research.
Mike http://www.55fix.com [65]

Mike returned with:

The key is to understand the Pyroluria disease cascade.
It begins with

1. Leaving the "hunter gatherer" diet that Nature (or God if you prefer) designed for us to eat, & moving to a farming diet. See Jared Diamond "Worst Mistake."

2. Aggravating that diet still further with the "Modern Industrial Diet." See Weston Price.

3. A weakened immune system.

4. An opportunistic & multi-resistant Infection, possibly fungal in nature. See Dr Constantini.

5. The infection, not a genetic flaw, creates the pyrroles.

6. The Pyrroles bind with B6 & then Zinc & are urinated out.

7. Deficiencies result.

8. This causes many & varied Physical effects.

9. Since B6 is critical to neurotransmitter production, this creates mental effects such as Dyslexia, and

10. emotional effects such as Anxiety.

11. The Anxiety causes further effects like Panic attacks, Phobias, or demands a behavior response such as self medication or OCD.

Fighting the infection stops the disease process. The 55Fix temporarily interrupts this disease process for about 5 hours. It takes effect in about one Hour. The Long Term 55Fix also kicks in within an hour but gradually gets the upper hand over the infection & permanently reverses Pyroluria over time along with some moderate diet changes like almost no sugar.
Mike

A new user to the conversation enters with answers: Borrelia burgdorferi, also known as lyme disease!! It was found out that high doses of niacin treated Pyroluria well, back in the 1950's. What wasn't known at the time, is that Lyme disease existed, and was treated with the same, high doses of niacin.
A bio-engineered, modified version of the original lyme escaped from labs in Germany during WW2, and again from lab 257 in the U.S., after microbiologists were brought from Germany to the U.S. via Operation Paperclip.

This is the reason the epidemic of Lyme is being kept hidden from people. It's being covered up because either the government screwed up leaking this out, or they purposefully experimented on the public and it's since gone to infect a large percentage of humanity.

Several pathogens have been dispersed on us all, including various stealth viruses and mycoplasmas. Most chronic illnesses are a result of these mad scientists actions. Lyme is implicated in MS, Parkinson's, Alzheimer's, Schizophrenia, Autism, and many more. . .

Blow the cover on this.

Get the book: Lab 257
http://www.amazon.com/Lab-257-Disturbing-Governments-Laboratory/dp/006078184X... [66]

Blog away.

Demand action from our media, and answers from our governments.

Response from the most recent answer-giver:

Try the inositol-hexanicotinate version. I get it from CVS. It's inositol bonded to 6 molecules of niacin. It enters the bloodstream and slowly breaks off the bond, so you don't get nearly as much of a histamine release, which is what causes the burning sensation. Also try taking ascorbic acid along with it. Niacin releases histamine, and vit-c destroys it. Taken together they balance out histamine levels. Vitamin-c is also an anti-fungal, antibacterial, and boosts the immune system. All of this helps to get well, as lyme sufferers usually have immunocomporization and resulting co-infections.

I take 1 gram of INH along with 2 grams vit-c 3 times daily. I originally started with 1 gram each, but bumped up the vit c. You may want to try 500 mg of each, three times a day initially. After a week, if there's no major side effects, bump it to 1 gram each 3 times daily.

__________________

Thu, 12/11/2014 - 11:38am

#5 [68]

Mardy Ross

Title: LumiGRATE Poster - Top of the Totem Pole

Joined: Feb 16 2009

Posts: 2032

Nutritionist doing telephone consults all over world (women?)

It's so interesting to find a gem like this website when Searching on words like "Morton's toe" and nutrition. There was nothing at the topic about Morton's toe is the interesting part, and nothing at Judy's website, EveryWomanOver29 dot com, when using the search bar there. ... but she had broken out the B6 versus the zinc for the various symptoms she gathered for her list ... and cites her sources. So here is yet another GRATE resource... Live and Learn. Learn and live better. ~~ Mardy

www.everywomanover29.com/blog/pyroluria-questionnaire-from-the-antianxiety-food-solution/ [69]

... a sampling of what you'll find at the link, to encourage you to go IF it looks good to YOU:

If you check off 15 or more items, especially the more common ones, it’s highly probable that you have pyroluria and will benefit from taking zinc and vitamin B₆ supplements. I encourage you to be tested, but if this isn’t possible, or even if you don’t have pyroluria, supplementing with zinc and vitamin B₆ may be worthwhile if you have a large number of these symptoms.

This questionnaire is based on my experience working with many clients with pyroluria, along with information from Depression-Free Naturally (2001), by Joan Mathews-Larson, Nutrition and Mental Illness (1987), by Carl Pfeiffer, and Natural Healing for Schizophrenia and Other Common Mental Disorders (2001), by Eva Edelman.

I start my clients with zinc (30 mg), vitamin B6 (100mg) or P5P (25mg) and evening primrose oil (1300mg), plus a good multi-vitamin (with manganese and no copper) and a multi-mineral and sometimes additional magnesium.

For the zinc I have found Opti-zinc (Solaray is a good brand that doesn’t have copper) to be very well absorbed by most of my clients. Using the liquid zinc sulfate/zinc status test is a useful way to assess your zinc levels (see link below).

We increase zinc based on the zinc test and the vitamin B6 based on dream recall. And obviously social anxiety symptoms too.

This questionnaire and information is taken from chapter 7 of The Antianxiety Food Solution:How the Foods You Eat Can Help You Calm Your Anxious Mind, Improve Your Mood and End Cravings, available in major books stores, at Amazon and viawww.antianxietyfoodsolution.com [70]. You can find more detailed protocol information in this chapter.

11/5/2013 update – since doing this post, I’ve done a number of other posts related to zinc, vitamin B6, pyroluria and even introversion and I am including links to some of them here:

Overcome your fear of public speaking [71]

Zinc deficiency is common: using liquid zinc status test as an assessment tool [72]

The comments on the posts about anxious introverts and the possible connection to pyroluria and/or low zinc and low vitamin B6 have been enlightening to say the least! Additional comments and feedback is always appreciated:

... again, please take the link as suggested and see it all!

__________________

Thu, 03/26/2015 - 10:53am

#6 [73]

Mardy Ross

Title: LumiGRATE Poster - Top of the Totem Pole

Joined: Feb 16 2009

Posts: 2032

Protocol for Lyme and Autism via Planet Thrive dot com

This is a well done topic at Planet Thrive which I liked so well I invested in the printing of it onto paper, something I suggest people do in general IF it helps you be a better learner and/or teacher to others of information. Remember there are people who have printers and perhaps would do that for you, in addition to the usually thought-of businesses where you can send links to have them print things out for you to come pick up / purchase.

I will say a few things to preface when you read this, however --

when you read them talking about needing a qualified physician to help guide you about how to reverse pyroluria / pyrrole disorder (HPU, KPU, etc), I TOTALLY AGREE this is one that is extremely difficult and takes a TON of knowledge .. BUT to use the word 'physician', I TOTALLY DISAGREE with. It can be a nutritionist who specializes in this, for example, such as I've suggested on this and the other thread about pyroluria.
the 'side stitch' symptom is one that I've found when speaking with people is one of the more frequent to have them say 'yes, I had that one', in the very long and DIVERSE list of POTENTIAL symptoms of pyroluria. But most people 'remember it' if you say 'when you were a kid do you remember having side stitches', and in many of the lists I've seen they specify that it was a childhood symptom.
They didn't specify that there are many diverse symptoms and people are somehow used to seeing a list of symptoms and thinking they need to have ALL or MOST of a list of symptoms, when in fact that is not the case sometimes and this is one of those times. Many people have had few symptoms but the symptoms they had were dramatic ... 'inner tension' / anxiety for instance. Often people are so used to feeling the way they do they don't think of themselves as having 'anxiety' or 'inner tension' so this sometimes takes a little work on people's parts to SLOW DOWN and consider the information from a place in mental space where you can be as close to having insight as possible.

Here's the link, please go and take a look. Interesting comment thread too.

planetthrive.com/2010/04/hpukpu-protocol-for-lyme-and-autism/ [63]

Live and learn. Learn and live better! ~ Mardy

__________________

Wed, 07/15/2015 - 9:13am

#7 [74]

Mardy Ross

Title: LumiGRATE Poster - Top of the Totem Pole

Joined: Feb 16 2009

Posts: 2032

Linus Pauling Institute as B6 P5P Resource

The more I work with people surrounding this information, the more I'm thinking there's something about deficiencies in these nutrients that makes people CHEAP about SPENDING MONEY on CONSULTATIONS for INFORMATION that is GOING TO HELP THEM -- and help them SAVE MONEY, be more productive (make money). The OCD I'm seeing when looking through my 'OCD lens' is massive, and in one person they might spend money on a lot of other things but simply will not spend a time on someone advising them. Yet their brain function is not good enough to wade through and learn what is needed to be their own advisor.

So the best I can do to help all is continue to bring a complement of resources to these threads. I see many things. I really do work to get things pared down on topics on Lumigrate to be both unique and of high quality, and hopefully the experts I'm routing to are of genuine nature and aren't into all this for money-making aside from what is needed to keep in operation and alive. I'm realistic, naturally, we can't be doing this work and not be compensated somehow.

So when you get to the end of this resource, notice, please, the note about funding in 2014 for the last revision of the information. Consider these things, and be reminded to always be thinking 'follow the money'. And then keep all the information you find in mind and come up with your own conclusions, take action accordingly. I'm increasingly suggesting people learn about AK testing and finding the right information for them as independently as possible, and having that tool in their very own toolbox. That's a big far outside the 'box of convention' for some, but it's becoming increasingly accepted, even in central western Colorado.

Of what I've looked at and experienced in my time with this information, I think this is good information to have in the mix. It has enough detail yet is simplified. They cover the highlights such as hypothyroidism, carpal tunnel syndrome, mental status -- things that from my standpoint are symptoms I see and have seen over and over in my work. I encourage people to really took a look at NUTRITION. And keep thinking 'what is going on me that is robbing my body of specific nutrients'. How do you give your body what it needs and support it to be able to function as well as possible AND then also be working to reduce that 'load' of things 'robbing you'.

Also, I encourage people to keep it in mind something that I'm finding beneficial this year to highlight. My mother was a teacher in our rural school in the 1960s and 1970s, for about a dozen years. For about 10 of those, she was aware of sensory motor processing problems and wanted to work with the students in her home room class, which was 1/3 of the fourth graders, so she'd screen ALL third graders. And then those with the most symptoms would go into her home room -- we were 'ability grouped' back then. I was in the opposite group from hers, I was in the home room with the least special needs, YET I remember in fourth grade having better ability for comprehension reading if I walked around, I had a lot of symptoms even as a child of brain-based learning problems.

In OT school I was told by the professor who specialized in sensory integration that I was a mess in that regard. So I was by comparison not one of the more problematic at age 10/11, yet I was THAT messed up by the time I was 34-36 in OT school. That was the timeframe I was being looked at by mainstream, organized medicine for things they couldn't figure out; it presented like MS. I had five punctate lesions in my brain, I was weak, fatigued, had a tremor on one side of my body more than the other and it came and went. Thankfully within a couple of years I'd seek out an MD who would come upon IV nutrition and try it on me, and others, It saved my career in occupational therapy! It saved my life possibly.

The take-home message, though, is that WE ALL HAVE SOMETHING GOING ON, it affects everyone a little differently but we ALL HAVE IT. My mother told me she found only ONE student in all those students over the years who she could not find anything with her sensory processing and output -- it was a classmate of mine, who was right up there on the honor roll, in the same classes as I was. But she could sit on the bars on the playground like a bird, she had coordination to get the artwork out of her brain and to her hands to be an artist the art teacher made a 'pet' in what I thought was a creepy way.

She could do gymastics, cheerlead, etc. I've talked with her, she cannot identify anything that made her issues negligible, indistinguishable, or possibly non existent. She went on to be the most 'awake' person in our class, in my opinion, and has lead quite a cause for telling people about the system. She 'unschooled' her children, and went on to teach others at her property via her new family of inhabitants learning and being together how to be able to live and leave behind the system that has created most of us, schooled most of us, given us our medical advise, etc.

Virtually ALL had impacts to their neurological systems / bodies even in the 1970s, in the area I grew up in, outside Denver, Colorado in the mountains. (The show South Park was inspired by the area, one of the creators is ten years my junior, he just missed my mother, if I have my timeline right when she was forced to retire over her doing these activities and tests to help the students.) What was creating that? Please look around the topics at Lumigrate, look at the About tab and get ahold of me if you would like individualized guidance with where to find education that is what YOU are needing at this point in time. Or someone to provide appropriate medical advise.

Here's the link for LPI:

lpi.oregonstate.edu/mic/vitamins/vitamin-B6 [75]

Live and learn. Learn and live better! ~ Mardy

__________________

Pyroluria, Kryptopyrroluria (KPU) or Hemopyrrollactamuria (HMU) -- Many Names, Causes, Connections

What if a psychiatrist were on team YOU! ? What would they say about pyroluria?

Dietritch Klinghardt, MD of Germany and Seattle, Washington, USA

Dietritch Klinghardt, MDs Presentation on HPU / KPU / Pyrolurea at the

L.I.A. Foundation's 2009 Annual Conference

My overview of the video --

From Roadblocks to Recovery

June 25-28, 2009

Testing - HPL complex

His personal clinical tips -- for those of you familiar with common lab work

Common Lab Abnormalities Slide is shown

On Indigo Children

When to suspect HPU

Codex - Comparing things to Hitler and He Relates Inside Sources Info

The Pulse Test

Integrative Psychiatry dot net.

About Our Staff

Comments

Dr. Dietrich Klinghardt MD, Ph.D.- The 5 Levels of Healing – January 20, 2012 [49]