MUCH discussion is going on right now related to XMRV and I've asked Aimee Shannon to write about if possibly (as she has a Forum on Lumigrate and is quite 'up on it' and possibly has a bit different taken than Emma-Kate Lamb, who you will see has posted something in this Forum in the past which links to her website/blog about chronic fatigue. She, like me, is an occupational therapist but she lives in New Zealand and teaches part time for a University program there which I believe is with a medical school. .... which means she has access to some people that are really quite helpful to studying subjects. She writes very clinically -- is one of those which you read her writing and think 'she should have been a doctor or medical researcher' ... which she kinda is now that she's researching and writing about XMRV.
I suggest a few things -- the link to her introductory piece here on Lumigrate which then provides a link to her website/blog is: www.lumigrate.com/forum/new-theories-about-cfsme-xmrv-what-do-you-think [1]. There are ALSO other topics she came in and posted in the Chronic Fatigue (XMRV) Forum as you'll see here at Lumigrate.com but truly she has such limited energy that she trusts people to just find her once on here and then keep going to her site. I encourage you to do so, she is very informative!
AND, she is part of a group of people who have a facebook 'thing' which you can find by Searching in facebook on "XMRV Press Releases" and though it doesn't look right now as I'm posting it, the link at least today was: www.facebook.com/search/ [2]
Again, since Aimee Shannon has a little different take on things with this topic I'd keep looking back here to see if she adds something as well.... And naturally we want all who wish to write to add their thoughts as well OR just read and learn is GRATE too! ~~ Mardy
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate [3] and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
Links:
[1] http://www.lumigrate.com/forum/new-theories-about-cfsme-xmrv-what-do-you-think
[2] http://www.facebook.com/search/?post_form_id=d1576e37b676930cba15dbe867817472&q=XMRV Press Releases&init=quick&ref=search_loaded#!/group.php?gid=112160662164471&ref=search
[3] http://twitter.com/lumigrate